Rash is out of control!

[MsDragonSlayer]

I finally got a steroid cream for this rash that now covers my entire body,(except my face and genitals.) I started using it this afternoon. I am starting my 11th week shot tonight. I have to inject it give it into a rash. I am freaking out. Does anyone know how long it may take for the rash to subside. I am trying to not throw in the towel. I am at my VERY worst and I need HELP !!!!!!!!

[Lifenet62]

thinking of you being pain free today dear Carolyn......

[redsurfer]

i had the same rash.. was hospitalized 2wice ... had to take hydrozine and use the creem .. no sleep... couldnt even wear shoes ..my skin was all swollen and it was like lizard skin i could hardly get the needle thru it ...but week 10 it got a little better.. one week after finish incivek.. it was almost gone.. such a huge relief i feel almost human now and my skin feels normal...week 19 !! i hope you are feeling better!! hang in there

[flcyclist]

Carolyn, sounds like you and the doc have a good plan.  Hope with dropping the INC, the rash will subside and you'll begin to feel better soon.  Inf/Riba won't be a breeze, but hope you can tolerate for the remainder of trt.    Also hope you can get back on track quickly.  Best wishes to you.

[MsDragonSlayer]

Hey everyone, I am not restarting incivek. I will restart the ribo soon, injections I do Wednesday evenings, so hopefully Ill pick it back up maybe even tomorrow. Today I am starting to show signs of improvement except I am extremely dehydrated, water doesn't seem to help it.

We decided to stop everything including the magic mouthwash and the
Pozac too...mistake...big mistake.

The Prozac for me is necessary! It truly helps me to keep the nerves at bay and keep those ungodly smells and tastes from over powering everything.

And yes, we reduced the ribo to half at first, but there was no change in 48 hours and since it was a Saturday and I was so scared we just shut it down. I am hoping tomorrow I can start back up on the ribo, along with my other rescue drugs.

Thank you all for your time and concern, you have really helped me through this weekend,
Big love to you all!
Carolyn

[SusieS2010]

I didn't read this entire thread but the part I did read where your doc says if your rash improves you can start up again, is worrying me. Once you stop Incivek you must not go on it again. Since you've finished 11 weeks, I bet stopping that drug a week early won't hurt you. But please do not stop and start. Have you called the nurse's line? They should be able to guide you.

[Dee1956]

Still rooting for you, I hope that you will be ale to start Riba again this week and thaten injections on Friday.  I had a friend who went through something this severe, she had to be transfused 3 times and took two weeks off of everything.  She was on a triple trial back in 2008.  While she did finish up with the 48 weeks there were alot of stops does reductions, hospital visits and 2 years later she is still SVR.  I wish you the best
Dee