Rash is out of control!

[MsDragonSlayer]

I finally got a steroid cream for this rash that now covers my entire body,(except my face and genitals.) I started using it this afternoon. I am starting my 11th week shot tonight. I have to inject it give it into a rash. I am freaking out. Does anyone know how long it may take for the rash to subside. I am trying to not throw in the towel. I am at my VERY worst and I need HELP !!!!!!!!

[willbb]

Stopping INCI    somewhat early would seem good strategy at this point in light of this rash.however  it is odd that they stopped the other two .especially INF. which  could very well  adveresly  affect overall outcome and may have nothing at all to do with the rash..

Agree with the others  to  get another opinion if at all possible .before you are due to do another Inf. shot..

Good luck
Will

[spectda]

It's a shame that this got so out of control. A doctor prescribing Incivek should understand the potential for severe rash and how they will handle prior to tx. I think he really mishandled it and I feel badly for you.

I also wonder as flcyclist mentioned if it is necessary for you to stop treatment altogether and would want a second opinion ASAP. Difficult to do while in your condition but It would be a shame for this potentially successful tx to end in this manner. Is your doctor a hepatologist? Was he involved with any of the trials? Maybe you should speak to the advice line at vertex about what is going on.

Good luck, I hope things improve for you quickly.
Dave

[researchmonkey326]

I had that needle thing after showers too. OTC made things worse.  A lot of the advice on here is good for people experiencing a mild rash but not nearly what you need at this point.  I hope you don't have the scalp rash that I had.  It was one of the worst things that I have ever experienced- horrible.  My thoughts are with you as I know how awful it is.  BTW, there are a lot of opinions regarding the use of steroids (I had the Kenalog 40 injection) but sometimes you gotta do what you gotta do.  Taking the shot was better than developing MERSA or Stevens Johnson syndrome and I made it through unscathed.  Good luck!

[working dog]

i would think keep up with the interferon....stop the incivek and cut down or stop the riba for a few days....btw...i'm going on to week 18 and every night i get the needle thing for a couple hours...i think its because when i take a shower my pores open up .... then i use soap ...rinse off...stop the shower and my pores close...so whatever was naturally on my skin takes a while to come back...i don't know...i know i still bleed from the clawing and picking...mentally things got much better after the incivek...but the riba really kicks my a**....good luck.....billy

[flcyclist]

I stopped everything for now.
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Did you stop the Incivek and the Inf/Riba also?  It sounds very reasonable to stop the Inc at week 11, especially if your PCR's have been und.  But I'm surprised the doc would have you stop all, rather than dose reduce.  

So sorry to hear about the rash being such a pain - 80% of the body is certainly a game changer.  I hope the remainder of trt goes easier and you have a great outcome.  Best of luck.

[Lifenet62]

Aw.  You are amazing amd I love yoi, too, Carolyn