Ready to quit Tx

[khoffman]

I have geno type 1a.  59k viral load and stage 1 grade 1 liver biopsy when i started tx on May 28, 2010.  I was UND by 8wks, maybe earlier but the Dr forget to put in the lab work for it at 4wks :(

I was having very little sx at first then slowing had to stop running, then started feeling extremely tired.  I have been having other small sx (dry skin, mouth, and scalp etc). For about a month now i have been having diarrhea about 3 times a wk but only once when would have it.  

I had some diarrhea friday before my shot and then 2 times after my shot.  And Saturday I felt horrible ALL day I was having stomach aches, diarrhea, then headaches, and being extremely tired.  I could not really eat much but when i did i stuck to the BRAT diet.  Today Sunday, my stomach is not hurting as much and i am not as tired but have still had diarrhea 3 times.

Also TH and F i was extremely tired.  The problem is that i am a stay at home to two young boys, so i have to be able to function during the day.

I took my 30th shot Friday night and I am now ready to quit.  I can not live my life like this, i am been stuck at home in bed all weekend.  I it is really hard and sad with two kids wanting you to play.  My older one has been saying for months mom why do you take those pills if they make you so tired.  

I am REALLY worried at Christmas morning, If I am going to start feeling this BAD after every shot.  I want to be able to enjoy christmas with my kids.  

[nygirl7]

"I have HEPC type 1b, so treatment is not recommended for me.  "

Agree with Trish I had 1a and 1b and treated for 72 weeks and am SVR for three years.

Treatment is difficult but I cannot see wasting the 30 weeks when you are so close to the end. We all struggle through it (i am a single mother who had to work every day and take care of the kids - no great husband here but somehow I did make it through).  If you do it one day at a time you will find it will go by and you will be finished shortly. Then you will be hopefully SVR and never have to worry about it again.

Do it for you kids they need you!

[Susan_1a_CC]

We are all pulling for you.  Please, insist on the help that you need from your doctor, or the nurse - don't let them brush you off - call, call, and call again if necessary.  You have to be your own patient advocate right now and I am concerned that with the holidays approaching you may have to really be vigilant to be heard.  Hopefully, I am wrong.  Best of luck.

[can-do-man]

Your in the rough area for tx, but i have a feeling things will level out in a few weeks again, i also had bad diarrhea  and the doctor was able to take care of it. Just try to hang in there you can do it............ As for the boys, well theres always rope and duct tape, JUST KIDDING.

Wishing you the very best to you and your family.

cando

[Trish77]

"My husband has been 100% supportive and helpful"

"My husband works but helps out 100% when he is home."

Tough out the last 18 weeks.  You have a goldmine there.

Good luck.

[Magnum]

When I felt like staying in bed all day, as you felt, it was my 4th attempt. At that time I was taking an overdose of Infergen. I called my doctor and he said to stop immediately. The next day I was told to get blood work. My AST & ALT went through the roof as well as my Bilirubin. I was jaundiced...

In my case, it was the infergen overdose that was actually killing me before killing the virus. The reason I mention this, is that you should contact your doctor and get blood work right now. Opinions may vary on this subject, but I'm passing on a cautionary tale of what I went through. You don't want to damage your liver any further by the possibility that you can't tolerate the meds at the dosage you're taking. Call your doctor to be sure and best of luck...

Magnum

[khoffman]

Thank you all SO MUCH.  That is just what I needed. I needed someone to tell me not to quit.  My husband has been 100% supportive and helpful, but when i say i am having a bad sx or i want to quit he says ok lets quit. I am going to call the dr in the morning to see if there is something i can take to STOP this diarrhea, b/c i can not keep anything in me right now.  

This is to answer some of your questions:

I am scheduled to tx for 48 wks.

I am 30yrs old woman.  My boys are 3.5yrs & 1yr.  We put the older boy in full day pre-K when I decided to start tx.  So I am able to take naps and rest during the day.  

I was diagnosed in March, when went to the dr for constipation, she did blood work and saw my liver enzymes were high and then got it retested for Hep. I was stage 1 grade 1 when i had a liver biopsy in April.

My husband works but helps out 100% when he is home.  My parents work so can not help me during the day.  

I am going to have to talk to the dr about the B-12 shot.