thanx

[freebird711]

i am grateful for all your feedback and for this site.   i know im dying but am ready to except gods judgement.  i am however not going outwo a fight. yes, they do have some new drugs out but they still couple them with the interferon, a drug i can never take again or i risk going blind.  i had bloodwork done and my levels were through the roof.  and a biopsy i had several yrs ago put me at begining of stage 3 then. i want to get on a transplant list but they fear im too sick already. i am a stay at home mom but even that job has become extremly difficult.  i am only 30 and the doctors say i probably dont have more than 5 yrs if that.  does anyone know what they do for you in the end. i just dont want to su ffer anymore.my husband is getting tired of caring for me, the house, the kids, and work.  I wish i could be healthy enough to fulfill my duties as mom and wife, but i cant.  my primary wont touch me, and the new specialist cant see me for another month and a half.  should i try the er?  i don t know how much more i can take. i have even been too sick to even go to church.  what sre the symptoms you get in the end.no one has to say it but i know, im dying and it is slow and painfull.

[SonniQ]

We're all dying here, Freebird. And many of us will probably die sooner than if we didn't have Hep C.  Some of us will even die of things totally unrelated.  It's life.  But you need to try and stay positive.  Your mind is a very powerful thing.  Sometimes it's hard to stay positive.  I think of 7 grandhildren I want to see grow up.  I'm pretty sick, too.  Stage 4, cirrhosis. Treatment didn't work for me.  I've had it 35 years.  I've had some good years and some bad years with it.  Ascites is no fun and the final stage of cirrhosis.  I have a 50/50 chance of making it 2 years.  But the point is to not give up.  Love yourself.  Sorry about your husband.  I used to have one like that so I divorced him, moved to Key West and married a man who loves me no matter what, and if need be he takes good care of me.  My father died of cirrhosis in the mid 80's so even knowing what to expect,  I keep my spirits up because of my mother, my grown kids and other family.  You can do this.  You really can.

[rexx73]

you wrote "i want to get on a transplant list but they fearFears and phobias im too sick already"

how they /you come to think your to sick for a transplant?

im sure you still have the chance to get a transplant even you feel very sick.

[Vic1967]

You say you can't risk taking Inf because you risk going blind.. I do not know anything about this at all.  But if it was me, I would rather be alive and blind with my family than not alive at all.
I am not trying to sound callous, just if that's what it takes then I think it would be easier to take than the alternative.
I hope you are able to get the help you need. Hang in there.
Stay positive!

[Kristina538]

I've always had the very best treatment at the ER in NZ - I would take a book with me to read while waiting!!!  

I was told between 5-10 years before tx and very much empathise with how you are feeling (I did manage the IFN..), and while I'm know it's hard on your family, I'm sure they would rather have you here.   The ER is a safe bet, and they usually do such a great check up here, it may give you a little more decision making power for your options.  Hugs to you..

[GSDgirl]

I agree with copyman.  Go to the ER.  You just might get lucky and end up in one that has a hepatologist or even a gastro on staff.  I would also call around and get on the cancelation lists.  

It sounds as if you are giving up and not fighting.  You also said they gave you 5 years, if I remember correctly.  A lot can happen in 5 years (and I mean a lot of good).

Please keep us updated.

Take care of yourself
Denise

[copyman]

first, you have stop saying you are dying !
as long as you talk like that you will remain weak.
you have to do what you say and that is FIGHT! you have to live for your kids!
the best advice I can give is for short term relief go to ER, long term keep calling "Hepatologist" until one can see you right away. Most university hospitals have liver clinics and / or Hepatologist (liver specialist)

best wishes