I'm new to this site, I have been diagnosed with hepc, gen1b, biopsy showed grade1,score 1. I have just started tx. Did my 1st shot last week it was incredible the way I felt, I couldn't even bend my knees. But, I did get over that. But, one of the biggest problems I face is dealing with my boyfriend, he is jaundiced dignosed with hepc, cirrohis and liver lesions, his legs swell up and cramp so bad his toes get stuck. His stomach is big and hard as a rock. He doesn't sleep well. I have him on a real strict no sodium diet, lots of fresh vegetables and fruit. He takes vitamins, uses honey for sugar and only olive oil as butter. His mood swings or horrible, he forgets things, blames everything on me, his job has failed. He went to a local hospital a month ago and they said they couldn't do a liver biopsy as it was to risky because of his platelets. They tried to increase them but it was unsuccesful. They wanted him tom go to another hospital but said he has no insurance and they were unsure if that hospital would take him. He has been stadily pushing me away, but, if it weren't for me he would have noone. Can anybody nout there help me with some information on how I can seek help for him even through some kind of a study? Because, he can't afford medical insurance. The dr's here say he needs a transplant. How does this disease progress and what are the final stages?
although my forgetfulness is not quite as bad .you described to a tee ,alot of mine and Im sure other peoples "brain fog " Im on week 17 ,I went through a terrible time with crankyness around the same time {wk 10} walking into a room & needing 5 minutes to figure why I am there ! It gets better ,but you will need to watch him closer {which Im sure you are already .} Ive been doing word search puzzles ,kids mazes ,and other mind excersizes . playing solitare , etc
I just joined this community and am currenty going through treatment. Patience, support, space are just as important as anti-depressent, but anyone going thru treatment shouldn't be surprised by depression,mood swings, and brain fog. I am 35 and never had a problem w/ focus and concentration until treatment. My husband deals with my mood swings by getting away from me and I can totally get why, sometimes I cant' stand myself. PMS times 1000!!!! Hang in there girl and keep on keeping faith and prayer daily, my faith has been my saving grace. Esp. with a 16yrld, 6yr old and 3 yr old KNow he loves you and treatment isn't forever, just for now.
He needs immediate intervention from his medical team. Please print out your post and bring it to them, if he won't.
It is common to get cranky and absent-minded during tx but from what you describe, your baby is in potential danger, whether from your husband snapping or accidentally filling the house with smoke.
I hope he is seeing a highly-trained specialist, who has the knowledge to help him without jeopardizing his treatment, while still insuring that you and your baby remain safe.
Oh how I can sympathise with you..my husband has been on Tx twice and the first time he was psychotic and had these full blown rages,it was so difficult to live with him, at that time we had only been together a few months after meeting online while I was on treatment..I noticed a pattern with these rages they always seemed to be worse at the weekends he injected on the Tuesday...when we talk about his first treatment there are gaps where he has forgotten major things...Once we got him on A/Ds he changed and was able to continue with tx relatively safely.....
Your Hubby sounds like he needs Anti_Ds and quickly....
If you need a shoulder to cry on please feel free to Pm me.....PXX