no SVR for me

[bjack59]

I am 3 months post treatment, I found out Monday (last monday) that the virus is back.  the doctor told me it was a scarce amount and we would wait a couple of weeks to see if my own immunity could fight it. If not,  my two options were to treat now with a combo or wait for new drugs.  I already have cirrohsis so the new drugs might not come out in time.  I told him I would not treat again at this time. the last few months were a nightmare ( i was literally in bed for 4 months) I have started feeling better physically, although i am still struggling with brain fog (more like brain dead to me.)  my doctor has put me on some antidepressents ( I am already taking some, but he told me to take both kinds) I really don't have a question, but advice i can always use.  I h ave been trying to get on this site since last Monday,  I tried every day and med help finally emailed me today with a new password and I still could not get in.  has that happened to anyone else?  Someone told me to go to recovery in the control panel and do something there and then i got it.  

[orphanedhawk]

So sorry to hear you relapsed. This happened to me the first time I did tx.
I would encourage you to get up and get moving. Take walks~ no matter how short or far. Movement helps both our bodies and our brains.

As afar as not getting into medhelp~ that happened to me a few months back.
It was a major pain. Since then I make sure to copy my password and put it in a folder in my documents.

Will made a good point~ why not get another PCR? just to make sure.

I hope you're seeing a good hepatologist experienced with cirrhosis.

The only other advise I have is to drink lots of coffee~ 4+ cups daily is supposed to help keep the virus from replicating. Do a search also into curcumin, the active ingredient in turmeric and Vitamin B. None will rid you of hep C but if you can help keep the virus from increasing, that should be a good thing.
You might consider taking milk thistle since you aren't on treatment, or look at hep tech's products to assist you.

Best of luck~
OH

[HappyByChoice]

As miserable as TX makes you feel, there's nothing as debilitating as getting the news that your TX failed!!  My relapse sent me into a tailspin that lasted several days!  That was back in 2003 when there were no other options.  You do have options today!!  Give yourself time to grieve and deal with this news.  Be kind to yourself!!  Then, weigh your options, and do what you have to do!!  We are all here for you and you've received some great advice above.

Hugs,
Janette

[crossroadsec]

This is tough news. Makin me cry. the thought of starting 48 weeks again sounds exhausting. If your dr (a liver transplant specialist I hope) thinks you can take a rest and go for it.....
My dr and I had already talked about if I failed. We were gonna try it again w the new drugs. I was on triple w Incivik.
Don't give up on your dreams. Try and keep yourself mentally boosted by thinking about the future. With all the new options? You've got a lot of living to do. It's hard living w/ cirhossis.  Take it easy on yourself.
Karen :)

[bjack59]

thanks for the concern - i am type 1, am seeing a hep - he is sending for another blood test on aug. 15th. He wants to see if my own immunity is trying to fight it - i have never heard of that.  i was on triple with Incevik for 6 months. He will moniter me to see if i can wait for the new drugs. Last year at this time I was F/2-F/3, so I guess it just turned to cirr after August.  Maybe after the severe depression goes away, I will find the strength to fight again.  I know many of you have have treated 2 or three times.  That is truly amazing.  Did you really have it bad with the symptons or did it get better the second time around?

[HectorSF]

Hi.

I am sorry to hear about your recent relapse.

....I just saw your latest post after writing my response. Now I have to revise it as your last post contradicts everything I had assumed previously.

Okay, you are genotype 1.
You say you were on "on triple with Incivek for 6 months".
If this is true, you can't retreat with either Incivek or Victrelis or any PI and treating with only peg-INF and ribavirin would be pointless.
So you treated for 24 weeks because you never treated before and didn't have cirrhosis correct?

Last year at this time I was F/2-F/3, so I guess it just turned to cirr after August.
You can NOT go from stage F/2-F/3 to F/4 in one year. So either one or the other stage was incorrect.
If you were cirrhotic in August, why didn't you treat for 48 weeks as all patients with cirrhosis should?
Who says you have cirrhosis? Your GI? Based on what?
What does your most recent biopsy say?
When was it done?
What was your platelet count before you started treatment?
What were your ALT and AST counts?

If you don't have cirrhosis then you can wait for new interferon free treatments to be available. If you do have cirrhosis then your only option for treatment would be to wait for a clinical trial that excepts cirrhotics. Or wait a few years for your viral resistance to clear from your previous treatment and then do 48 weeks as all cirrhotics should.

In order to assess the status of  your liver disease we need real data. Numbers, quotes from reports such as you biopsy, scans etc. You can get copies from your doctor. I am sorry but the information you have provided is contradictory so it is impossible to determine the true status of your liver disease and what you should do after recovering from your previous treatment. If you can provide some real data then we can tell you something more than generalities.

Good luck.
Hector

[cindyh113]

So sorry to hear this. I know what its like not to SVR. Did the riba/inter. in 08-09 48 weeks. Relapsed in the 3mo. after. Now, doing the triple threat, on week 11. Praying for SVR this time and will be praying for you also. I know one other person who became UND and then DET. But now they are SVR! Praying it was a fluke! Hang in there!