telaprevir? incivek

[jemaggie]

Started yesterday on the triple combo, they have it down as telaprevir, but that is just a different company's name for incivek, hoping that i can get thru to week 4 and have the required response, hope all you other heppers out there are doing well, any thing i shouild be aware of, didn't sleep last night, had terrible pains in every part of my body, but i have spinal stenosis, so i said i had spinal stenosis on steroids, boy the pain, has eased a bit now, so here's hoping, and will be aware of it next week when i have the next injection, xx

[jemaggie]

thanks sweetie-- yep!! it's so good , so happy, will help me heaps, please keep in touch hugs xx

[Reidmusic]

So you're saying the 5,040 grams of fat I ate while on Incivek wasn't necessary? I wish they would have had that conference about 9 months earlier when I treated. I feel your joy in this new way of ingesting Incivek.

I had the rash too and there are pics on my profile under photos. If the cortisone doesn't help ask for the Triamcinolone and the Hydroxizine. Those two medications really helped me.

[jemaggie]

hi sweetie, good news, dr faxed thru a script to my pharmacy, oh! the modern era, sent a pic via phone, and script, arrives, so good, cortisone cream, good result, first use, also, the 20 grams of fat has been stopped, apparently was a conference in melb, last weekend, and now as long as you eat, like a glass of hot chocolate(full ream milk though) or lavish reall butter on a crumpet, no need to count the 20 grams, oh boy!! how good is this, a present from, god was really battling, to eat it, and keep it down, so now, it's on the back burner, also zirtec tabs for itching, take them with a zantac tab( yep! antacid tab) it inhances the ingredients in the zirtec, and makes them much more effecient, so am happy, will try and get the better of all this now, except, this pain in the bum, seems funny to say that, no it's not my hubby!! it's my bum!! ha! ha!, thanks guys, you are all rocks,, hugs xx

[Dee1956]

I should have said I would wet the wash cloth or bath towel, put it in the freezer...then apply to the place that was itching.  It would numb the nerves so I did not itch as much.

I also had what I called convulsive itching where I itched every where.
Try to be as prepared as you can be.  when the itch was jumping around..so was I.  I would not have been able to go to the store like that :)
My best to you, Dee

[Dee1956]

Hi when I had a problem with itching I took benedryl.  When that did not work I put ice cold wash cloths on the area.  If you are cold you may not feel like doing that but it really helped me when I was desperate..
I was also given a prescription of I believe Hydroxine for the itching and promethazine for the nausea.
I also remember one member using oatmeal on the area.
you can also click on the magnifying glass at the top of the page and look up Incivek itching and you will come up with other suggestions.

Good luck to you, please keep in touch :)

[Advocate1955]

You're welcome.  I hope some of the ideas in the link above will help too.  My husband took warm only showers, used Eucerin body wash, patted himself dry, plastered himself in Eucerin cream after the shower, put tea tree oil on the rash when some areas blistered a bit, stood in front of an open freezer door for a few minutes, stood outside in the night air for a few minutes, or turned a fan on pointed toward his body to get some relief.  The hydroxyzine and triamcinolone helped a lot and made it bearable.  The rash did change over the 12 weeks of Incivek, and improved greatly after he completed the Incivek.  You may also start to notice a sensation of tingling or zinging in your skin.  He did.  That about drove him crazy too, but that will improve after Incivek.  The hydroxyzine is a strong antihistamine and will help you sleep as well.  Sometimes it's good to sleep through some of the rashy side effects.  If you begin having trouble sleeping, you might ask for a mild sleep aid as well, such as Zolpidem.
Advocate1955