Who has burning sensations?

[patsy10]

I am curious as to how many of us have or have had burning sensations.  This can also include tingling and other sensations like numb feelings, cold sensations etc....

[Ree4tu]

I think burning may have been one of the first symptoms I had, but dismissed it as I must have pulled a muscle or something.  My first symptoms were a stiff neck which also burned like fire and the muscle twitches with numbness and tingling in my fingers and toes. I also had flu-like symptoms.

[patsy10]

I have had prolonged periods of numbness down my left side as well.  It starts on my face and runs in a line down my neck, back, cheek, hip, side of leg to foot.  It's like someone drew a line.  It feels numb but there is really no true loss of sensation.  I had an MRI during an acute episode of this and it was normal.  It has lasted for months at a time.

[SOONERMOM]

I've also had every hard to explain paresthesia including burning, numbness, tingling, crawling, vibrating, buzzing, and water dripping off of head.  Sometimes the numbness is deep and I would swear my face is drooping, but it never is.  My neuro symptoms are almost all on my left side, and I once went completely numb all over on my left side.  It mostly just comes and goes.

I also get a weird feeling of the blood flowing through the left side of my face, hard to explain.  Almost like there is impaired blood flow there and in my feet sometimes.

I am starting to accept that it will never completely go away.  I have had periods of "remission", but it has always returned.  I have been at this for just under a year now and  haven't tried IV's yet (although I did try IM).

[jason80]

hijacking thread -- have others tried the TENS unit for any of these sensations. I didn't find it helped any but am curious how others responded. I get enough tingling!

[patsy10]

Looks like we all have this in common.

[patsy10]

The oral meds work for me.  I'm not sure if doxy alone will work for you or not but it does for me.  Doxy works the best for me, even at a low dose.