Since mid January (about three months ago) I've had bouts of dizziness, confusion, and disorientation. I become uncoordinated to the point where I stumble about rather than walk, and can't drink water. My depth perception is off, things seeming to be closer or bigger and then farther or smaller. I've been told the right half of my face "looks tired" when this happens. I'm unable to follow a conversation and finding words is difficult, and my verbal filter seems to be gone. Lights flicker a bit, not quickly but they deem to dim and brighten on their own, and I become very light sensitive. My whole body feels floaty, sort of like when you're in the ocean too long and can still feel it when you get out. Parts of my mouth go numb and I get very nauseous. The outer half of my hands go numb, but that may be related to a different diagnosis. I've noticed the worst of the episodes (attacks? I don't know what to call them) seem to be triggered by light hitting my right eye from below.
The first time it happened I went to UC and the doc there said it may be a hemiplegic migraine (I do have a history of ocular migraines, which run in my family) but sent me to the ER. At the ER they did a CT scan but found nothing wrong with my brain but "Mild maxillary sinus disease bilaterally." They gave me meclizine which I have been taking whenever the disorientation starts, which helps somewhat.
Since the ER visit I've been to my primary and a neurologist. I've had a ECG and a metabolic panel, both of which came back normal. They did do a CBC and my platelet count came back high and my MPV low. In addition I consistently have white blood cells in my urine, though multiple cultures have come back negative for anything.
I have arthritis (not sure what type), probably lupus (needs confirmation), dysmenorreah (managed with BC), an unspecified vitamin D deficiency (2000 d3 per day to manage), and chronic pain. I don't know if that effects anything. I also have as of now unexplained pelvic pain (a uterine ultrasound with transvaginal came back normal).
At this point I'm in communication with both my primary and the neurologist and am set to start vestibular therapy soon and am set to have a host of other tests, including an MRI. Mostly I'm on here to see if anyone has any ideas I could come back to my docs with because I'm pretty close to the end of my rope.