Pseudo Tumor/ ICP and Topamax

[Kera109]

Hi everyone! I was just released from the hospital and I have Pseudo Tumor Cerebri and ICP. I am 33 year old female and never had a headache problem so this constant pain *****:(

I know that Topamax won't treat a headache but helps to prevent... But I wanted to hear if anyone had any positive experiences with Topamax? Today is only my second day and I've only noticed mild dizziness. Any major side effect experiences?

Thanks a bunch!!

[horselip]

Hi there,
I had PTC and I was allergic to Diamox. (it has a type of sulfa).

My neurosurgeon gave me a copy of a journal article that showed that Topamax worked very well compared to Diamox in lowering csf pressure. I don't have that article anymore but it was a well done study published in Lancet or some similar publication.

In my case, it did work well and Topamax brought my pressure down. It had an added benefit with headaches that I have as a bonus.

Good luck

[selmaS]

  Hi, TOPAMAX helps change the morphology of ur HA, so u may have approx 2 weeks of an adjustment period and as long as ur dosage does not change u should be ok....

I am surprised u r not on DIAMOX as it is a stronger diuretic and helps reduce the excess CSF fluid,

TOPAMAX also is a diuretic but not to the extent that DIAMOX is,.....

U may want to look into anti inflammatory foods that may help with the pressure HA's u get with this condition.

[Doodles_Mimi]

HELLO, I AM SORRY YOU ARE IN PAIN, AND DEALING WITH THIS HEALTH PROB. I HAVE NOT TRIED TOPOMAX MYSELF SO I CAN'T SAY I CAN HELP YOU WITH THAT (SORRY) I WAS WONDERING, DO YOU MIND TELLING ME WHAT KIND OF ILLNESS IS  "PSEUDO TUMOR CEREBRI AND ICP" I HAVE NOT HEARD OF IT? I AM FROM THE NEURO COMMUNITY. I HOPE YOU FIND A FEW HELPFUL ANSWERS.