csf leak

[csfleakgirl]

10 years ago I had a spontaneous csf leak out of my right ear, had surgery, they placed a "bone & glue" patch.  Neurosurgeon said the patch should last about 10 years which June 2010 is the month.  Two years ago I did a sleep study and it was determined that I have sleep apnea, so I started on a CPAP machine.  I haven't ever been really comfortable using it, I always wondered if it was too  much pressure.  I asked my PCP, who wasn't my PCP at the time of my surgery and he kinda blew me off, said yeah its ok.  Well today I have a horrible neck ache, and pressure in my sinus.  Unbelievable pressure.  Just wondering what suggestions might be out there.

[Dr. Kokil Mathur]

Hi
Thanks for writing to the forum!
Lowering the CPAP pressure can help but do not do this without consulting your sleep specialist. Switching over to bilevel pressure or C-Flex may help also.
Hope this helps. Please let me know if there is any thing else and do keep me posted. Take care!

[selmaS]

Hi.....in Aurora (sp), CO u have a NS that is tops in his field and deals with other spinal conditions some caused by CSF leaks. Dr Oro.

I would suggest u get a brsin MRI and a cevical spine MRI....and a CINE MRI which is a CSF flow study to check if u have a blockage.

Do u know what caused the orig leak?

"selma"