I was feeling sorry for myself today

[HVAC]

I was feeling sorry for myself because I realize my MS is progressing faster. I have been so fortunate. I got down right terrified projecting into the future.  Then my husband called in tears to tell me a good friend lost his battle with ALS. Kinda put things back into perspective for me. I hope Our friend is riding his bike with the sun on his face and the wind at his back.

[Saadbell]

ALS is a monster, bless his heart, he is now free.  I tell myself only the best get ALS, always someone who is a wonderful person, just seems nasty people never get stuff like this. He will be rewarded heavily, and forever have a smile on his face as he rides into the sunset. I sure understand the denial, did it for 12 years and the first 4 years having siezures, I am good at it, so if you need some hints, let me know. lol  

[Sparkysarah]

I share with all the heartfelt compassionate messages sent to you by your friends on this forum and send you my condolences on the loss of your friend. Your post touched a soft place in my heart as my mother-in-law died from MND two years ago on 31.1.09 and having cared for her I was relieved when she was put out of her suffering and at peace.

This gaelic blessing is for your friend

"May the road rise to meet you
May the wind be always at your back
May the sun shine warm upon your face
May the rains fall soft upon your fields
And until we meet again
May God hold you in the palm of his hand"

With love

Sarah x

[figuerpa]

Alex,

I am terribly sorry for your loss. My thoughts and prayers are with you and your husband.

You are entitled to feel sorry for yourself. We all do sometimes and times like these make us realize what we need to face.

Stay strong,
Paula

[HVAC]

Thanks you are wonderful.

I had a great Dream My husband and his buddy with ALS and there other buddy were on one of there brevets (that is a 200k, 300k, 600k, 800k, 1000k rides) and they stopped at the place where My husband had his bicycle hand made in California and they were like kids in a candy store laughing and joking.

Alex

[supermum_ms]

HUGS!!!!

[drsdonthelp]

Alex,

I am so sorry for the loss of your friend. Tragedies like this can definately get your emotions going,  and to say you are feeling sorry for yourself is..... what it is. Sometimes you have to... sometimes a good cry can help ease the pain.

Always know that you are not alone, we are all here for you.  
Hugs,
Pam

[michelleric]

(((Alex))),

My thoughts and prayers are with you as your grieve your friend.  Such a sad loss.

You are allowed to feel sorry for your self, angry, sad...Etc. There are those days, when you just can't always be positive about things.  There is plenty of "grieving" for the loss of our own bodies, and the things we used to do, that continue to change.

Please take care of yourself, and "allow" your feelings to be felt. It is OK.  

My condolences to your and your hubby,  Feel better.

Sending you a shoulder to lean on and many hugs...

XO,  MIchelle

[Udkas]

Hi Alex,
Sorry to hear about your friend, I guess they are at peace now.

As for you of cause you have a right to feel sad, it is a natural emotion to what you are dealing with, living with MS is like a roller coaster with highs and lows, waxing and waning, of cause it is difficult to deal with and nobody can predict the future with MS.

Living with MS or not none of us know what our future holds from one day to the next, so enjoy life and live for now, but don't be hard on yourself for feeling sorry for yourself as although if we look around there is always someone worse off than us, it is them and not us, we can all have our moments of pity, it is our bodies way of releasing things too, sometimes a good old cry makes us feel better.

Sending Hugs your way, go spend sometime with your dogs, always makes me feel better.

Udkas.

[RedFlame]

I'm so sad to hear about your loss.  ALS is such a horrible disease, I will be thinking about you

Red

[COBOB]

Sorry to hear about your friend.  

After reading your post and my post I wonder if the Winter Blues have set in.  Seasonal Affective Disorder may be in full swing.

Today is one of those days that the words of my old Physics Professor ring true:
            "There is no such thing as gravity, the Earth just s.u.c.k.s!"

I'll keep you and your friend in my thoughts.

Bob

[AMO]

alex,

I am sorry to hear your freind died, it never is easy whatever the circumstances.
It's ok to feel sad for you too. Changes of this  disease are not easy whether they come fast or slowly. Take your time to adjust, spring will be here soon:)
tkae it easy on yourself... amo

[rendean]

Alex,

You have every right to feel sorry for yourself. Your body is not keeping its end of the bargain.You have a right to feel cheated, mad and angry then, knowing you , you'll pick up the pieces and keep on going.

I'm so sorry about the loss of a good friend and I , too, hope he is riding with the sun on his face and the wind at his back. I wish this wasn't the reason you stopped yourself for grieving for yet another loss of body function.

Sending hugs to both you  and your DH,
Ren

[addicted2harleys]

Holy SH IT!!  Please excuse my cognitive issues in my previous post.  I sure didn't mean your husband going peacefully!

I am so sorry and so embarrassed...

Addi (sticking head in the sand)

[addicted2harleys]

Aw, Alex!  I am so sorry!  I hope your husband and your friend went peacefully. And he most definitely is riding in the wind.  :)

A family friend of ours passed from ALS several months ago.  On top of the sadness of losing someone close to you, you have to deal with your own feelings of the unknown with your own health.  Our friend learned of his ALS later than he should have.  He was gone within a year of dx.  But we sat and had a few conversations about his health and my own.  

I completely understand what you are feeling right now, as I did the same thing.  I wish that I could send some comfort and peace of mind to you!   I guess all I can offer is the advise to keep living in the now.  Ride that horse of yours!  And enjoy the abilities that you still have right now.  But you know this.  :) I believe I have seen you post that advise to others on here.  

I will light a candle for your friend tonight.  Give your husband a hug and enjoy a quiet evening with him tonight, if you can...

Hugs,
Addi

[Ness78]

I am sorry for the loss of your friend.  That is devastating.