so absolutely discouraged and worn down !!

[candy158]

Hi, well, it is through teary eyes, that I tell you guys that my infection ( UTI) for those that don't know me)  is back.  My GP does not know what to do.

I will be going back to OPAT ( IV antiobiotics centre) , on Monday, and will see what they say they should do.  

They have talked about an indwelling cathater, and I DON"T WANT THIS !!!   very teary now, what the h*ll is going on, I just don't get it.

I'm supposed to be getting ready to start the Avonex and then my blood came back high in alkaline phosphatese and they held off sending the request, not they say that it is ok, and should start next week.

I don't know if I can take that one too, what if I do get sick from it ??  How will they know what it is from ???

I just don't know what to do now, soooo very discouraged, and lost trust in the Dr's ...

sniffing,
Candy
:(

[PastorDan]

So very sorry, Candy.  I will pray for clear answers and quick resolution.

[Corriel]

Oh Candy, I am so very sorry for this latest news.

As Pastor Dan said, I will be praying for quick resolution foryou.

Tons of gentle hugs, you sweet, strong and courageous woman,

Corrie

[karryon55]

That is terrible news Candy. :-(

There must be a solution to your problem surely.....I would have thought anyway!

Sending lots of gentle hugs your way.

Karry.

[Lulu54]

darn it anyway!  After all you have been through this is just not fair.  Of course not much of anything in life is really fair, though.

No, the idea of an indwelling cath is not one that would make me comfortable, either. But having permanent kidney damage would be even worse, perhaps. Please don't jump to the worst case here and let the docs do their thing, even though it would be hard to believe anything they say at this point.  Remember the docs are probably almost as frustrated as you about their lack of success.

lots of gentle hugs and a few  tissues to you!
Laura

[Mike_Shuswap]

So sorry to hear this Candy!

Are you having to travel to the mainland for your appointments and treatment, or is this being handled by medical staff on the island? I think I remember your Neuro is at the UBC MS clinic.

I think Laura gave you some good advice, let the docs try and help you out. I don't know what else you can do.

All the best!

Mike

[MommyofNatTyZach]

I am so sorry, Candy! How awful. I started the Avonex yesterday and I am doing the gradual dose, so it was only 1/4 but it was ok and I am ok today! I wish I wouldn't had worried so much about it. I am telling you this to tell you don't worry about the Avonex right now. I pray that the UTI gets cleared soon!!! I can't imagine.

HUGS,
~B

[aspen2]

Oh, Candy,  I'm SO sorry.  It's relentless.  You must be so exhausted ... on so many levels.

I am thinking about you.

[Guitar_grrrl]

Dang it, Candy, you need a break!  I hope this resolves sooner than later.  Don't fixate on an indwelling cath, today.  Deal with today.  Treat yourself extra well.  Big hugs to you, dear.

[candy158]

thank you guys, today is a little better is spirit anyways !!   I do just have to let the Dr's do their thing, you are so right, but, I tell ya, if I had not done MY thing, the darn Dr's would not even have their information....  grrrrrrr

Hoping to start the Avonex next week, and will go to OPAT a 45 minute drive away on Monday.... and see what they say, that is where I went everyday for 5 days 2 weeks ago for the IV treatment ...... so, will give that a try and see what happens.  I think I won't leave the hospital until something is done.  My GP said to call him if the OPAT clinic won't help, then he will push for something..... DUH !!!

Going to have a rest,

((HUGS)) to you all,
Candy

[supermum_ms]

I'm just so sorry your still dealing with all this, my fingers and toes are crossed that the OPAT clinic can help!

HUGS.........JJ

[candy158]

Will let you all know how it goes tomorrow.    

Thanks again,
Candy
\

[mikeysmom1995]

Oh Candy,
So very Sorry you cannot get over this terrible infection. I too have bladder issues from not emptying completely which results in UTI. As maintenance to keep my bladder healthy, and so far so good, I take Cran-max and multidophillus. It seems to be helping.  It's just a thought.
I hate to here of you suffering so. Many prayers and lots of HUGS your way.
Barb

[anon07072023]

Uuuughhh! I'm sorry Candy. Is it E-coli related? I hope not. I hope the IV antibiotics will get rid of it for good & that you DO NOT have to get an indwelling catheter.
Sending hugs your way!

[MommyofNatTyZach]

Hope your apt. went well!!! Prayers!

[candy158]

Hi  guys,
Thanks again for all your support and prayers.  

Kelly, yes it is e-coli ....... the SUPER BUG kind .. I was told this morning.

I am back on IV antibiotics  for the week though, and there are a lot of new Dr's on my case now too.  There are a number of options surgeries though, that they can do .. one was the in-dwelling  cathater, or making my bladder surgically smaller so it can't hold as much, ( I have a very BIG bladder that is floppy , apparently) , that is what I was told my my urologist.  

The Dr.';s will be speaking to him too, and waiting to see what they want to do about the prolapse bladder surgery that did not work, and the new Dr' is supposed to have some other kinds of ideas.  So, we wait again, going to the hospital everyday again,and will go to see the NEW Dr. on January 7th ...

So, we are terribly busy, and not doing so well, my son-in-law's brother, whom we are all close to, was taken to hospice yesterday , so, we are needed there too.
Those who pray, please pray that things will lighten up a bit, and to give D his strength he will need for his journey, and the faith that we left behind can hold on to !!

Thanks again,
((HUGS)) to all,
Candy

[anon07072023]

Whatever they do, I hope they can make it right. You shouldn't have to go thru all of this.
Hugs,
Kelly

[candy158]

thxs Kelly, how are you doing ???

[anon07072023]

Oh, wonderful as usual. Not. :-) Getting ready to have hip surgery on Dec 10.  
Repairing my labrum tear (cartilage around the hip socket) & will do debridement around it & the bone & then re-attach it to my bone. Then they'll do a secondary surgery lengthening my iliotibial band (IT) band & do a trochanteric bursectomy.

All the while have to do it inpatient & stay in the hospital as I have a risk of carcinoid crisis from my carcinoid cancer (already happened before with just a mini anesthesia during an endoscopy EUS - tachycardia, flushing, etc). So, needless to say - I'm a little nervous.

And they found another new lesion in my lower right abdomen next to or on my ovary or bowel, that's 2.2cm. Oncologist still doesn't know if he wants to do surgery or if the surgeons will agree to do it now.

ho-hum. :-(    

[SarahL2491]

hang in there girl, we'll get it worked out, one step at a time!

hugs
Sarah

[rendean]

DEar Candy,
So sorry to hear about your bladder infection and your son-in-laws brother!! SO MUCH on your plate!!!

Sending good thoughts, some brains for the doc,lol, and hugs for you!!!

HUGS,
Ren

[HVAC]

It sounds rough. I am thinking of you.

Alex

[candy158]

well guys, they stopped the IV treatment today, said it was an MS attack, and said my urine looked clear.  

I don't get it, on Thursday last week, we had a SUPER BUG and now it is clear.  God only knows what is going on, and I'm to tired to fight back right now, so will just see how we do, emerg. isn't all that far away if we need it.

We lost our Don this morning, he was our SIL's brother, and he was 44 years old and fought the good fight, but lost his battle with colon cancer.

It is a VERY sad day for us right now....

[Corriel]

My condolences to you and your family on your loss.

So the bacteria just disappeared? I don't understand either.

I guess if all is clear now that's a great thing, but a head scratcher for sure.

[mikeysmom1995]

Oh Candy,
So sorry for your loss. I will continue to pray for you and your family.
HUGS, BARB