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Freidreich's Ataxia

My neighbor's oldest daughter which is 15 yrs old has been diagnosed with Freiderich's Ataxia. I have read about it online and the prognosis doesn't sound good. Is there anyone out there that has had experience with this disease. She is the sweetest girl and loves to drive her parents around town to practice for her drivers license.  Please if anyone can help give me more information on this disease I would really appreciate it and so would her parents.

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