Any Ideas~? Please help !!

[rachy34]

I have been trying to get a dx for over 2 years now .. I really dont know where to turn next..
The story starts here:
I had a few funny turns at work.. feeling faint and blur vision.. Went to GP and he put it down to my BP?
As the months went on I became quite sick.. Rushed to hospital found out I had a kidney infection?? Back and forth hospital and bam my bladder stoped working? No reason why.. I had urodynamics testing and was told I would have to self cath for life due to no signal to make my bladder contract  *confussed*
During all this I had allot of numbness in my right arm and leg .. Leg then became week..
I was then sent to see a Neurologist as GP suspected MS ..
This is where things got worse
I woke up in the middle of night with severe cramp down right side of body .. this went on for weeks until my foot went into complete spasticity.. I couldnt lift my foot without it turning in and cramps.. I was walking like a crab..Had several falls ... Neuro was puzzled..
He sent me for MRI and LP all came back normal..
Since this episode my leg is now left weak and numb.. my ankle will not lift and I have what looks like muscle wastage in calf also find it difficult to lift from the knee ..
Im getting allot of burning and pins n needles sensation over body too.. Right armd weakness too ..
I am wearing a foot brace and use crutches to get about .. If I am going far I need the wheelchair .. Its so hard not knowing why


I have suffered bells palsey too 3 attacks this year .. but Im putting that down to stress..
One Neuro suggested that I had a viral Infection on the spine but im not so sure..

my meds..

Baclofen 90mg - spasms /spasticity
Deazepam- realx muscles
Tramodol-pain
amatryptaline- burning

I am having EMG and Nurve conduction tests next week.. Will i get any answers from this?


Any Ideas?

Thanks all in advance

Rachy xx  
      

[lal70]

hiya,
yeah i was under a neuro at liverpool,but he cant find anything so is refering me too someone else(about the 5th consultant ive seen).had an MRI and CT spine scan blood tests.I was also refered to a psychiatrist becos they thought it was all in my head!!!!!!!!!i am also having physio once a week but nothing is working,they noe say i have spasticity in my leg muscles and may be having some botox injections in my ankle muscles ut depends on what my new consultant says but the physio recommends it.no signs of stroke but now they are saying something about a silent stroke that has left no damage!!!!!!apart from the leg and arm hey.......never mind....

keep in touch
alan x

[rachy34]

Hey .. sounds daft i know but its great to hear someone with same symptoms.. I am not gong mad then lol

What tests have you had so far hun? You under a neuro?

Keep in touch

Rachy x

[lal70]

hi omg i am the same as you .right sided wkness pins needles and my right foot is the same turned in wards.and am a waiting a foot brace asweell im on a lot of meds as well the only differce is you have bladder problems and mine is bowel all other sytems are the same im on gabapentin 4 the pins nedles and codine 4 the pain and a lot 4 my bowel problem soory but my nuro does not no whets up with me im in a wheel chair aswell now ive been like it 4 two years now and no further foward.