My sister is experiencing episodes of sudden extreme sharp pain starting in the back of the neck and quickly shooting to the rest of the head, and within 5-10 minutes will lose all consciousness, completely unresponsive for several hours. During these several hours, a lot of twitching takes place mostly with the hands and feet but also the rest of the body as well. After 2-3 hours of this, she then slowly starts to wake up (takes about 20 minutes) and then she is back to normal. She has had the following tests done:.
MRI - Normal
CT Scan - Normal
CT Scan with contrast - Normal
Spinal Tap - Normal
EKG - Normal
EEG (twice) - Normal
Video EEG for 24 hours during which an episode occured - Normal - no signs of epilepsy or seizures
Ultra Sound - Normal
X-Rays - Normal
Blood Tests - Normal
Blood Clots - Normal
EMG - Slight inflammation of the peripheral nerve in both palms
No diagnosis has been given to this date. It has been going on for 8 weeks with no answers. Episodes occur at least every other day, and at times back to back days. No trigger can be identified. She has extreme sharp pain in both arms and both upper portions of her legs. She gets tired really quick. Lack of energy and extreme fatigue.
We are extremely frustrated as we have not been able to get any answers and been knocking on doors of at least over 10 neurologists, and still no diagnosis. Unable to stop the episodes. Has anyone heard of such a thing or at least can lead us into the right direction. We keep hitting road blocks and confused on which other direction to go. Please HELP !!!!