Post Viral Syndrome

[Stef1971]

I was diagnosed with post viral syndrome this February 2009.  I had pneumonia in November which turned into asthmatic bronchitis.  While I was on all the medications, I developed very odd symptoms:
tingling/numbess in hands and feet (sometimes lips and face)
burning and cold sensations throughout my muscles
my body shakes/tremors
weakness and some pain, more weakness in arms and legs - the weakness is better but in the arm that I use (my right arm it is more persistent and intense)
upset stomach
stiff fingers that don't seem to work like they used to
sleeplessness
muscle twitches
muscle soreness
I have been to my doctor so many times and she kept telling me that I was just recovering from the pnuemonia and that I was anxious and the put me on ativan.  I am anxious but it's because of all these unexplained symptoms.  I saw a rheumatologist that said I have fibromyalgia and I'm going for aquatic physical therapy for that.  I saw a neurologist who found nothing neurologically wrong with me and said it's post viral.  All my bloodwork has been normal and every doctor does not think it's anything pathological.  The weakness in my right arm and the shaking/tremors are very unsettling to me as are the stiff fingers that don't work like they used to.  The symptoms do vary from day to day and I have good days and bad days.  When will this all go away?  Are there any treatments for post viral syndrome?
Stefanie


This discussion is related to post viral neuro syndrome.

[Padro46]

Thanks for asking--Saw a Doc Yesterday that advised he does not Think I have post viral issues ordered more blood test 3-hour GTT and others--The ride goes on.

[ChrisD07]

Hey guys just checking in.  I went to a LLMD about 2 weeks ago and he ordered a comprehensive set of lyme tests from igenex.  Waiting for results on Monday.  I haven't asked my doctor about Celiac.  I guess if my Lyme turns up negative then I will get that LP and blood test for Celiac. (I have also had a upset stomach along with gas for about 2 weeks now).  How did your MRI's turn out Steph, any new symptoms?  How is the Lyme treatment turning out for you Ginak?  I think even if lyme comes out neg I am going to get my hands on some Doxycycline and see if it helps.  How are things going for you Padro?

[Stef1971]

How's everybody doing?  Anyone feeling any better?  I went to my neuro yesterday and she finally orderd the MRI for me of my brain and spine.  She didn't seem very concerned and I think she ordered it for peace of mind for me more than anything else.  I have had an upset stomach with all of this too and she asked me if anyone had Celiac disease in my family.  It can cause a number of symptoms similar to what I have been experiencing, including numbness, stiffness...  She is having me go for more bloodwork and one of the tests she ordered is to test for celiac.  I just thought I'd throw that out there to everyone in case it's something that you may want to look at.
Stefanie

[Padro46]

Results from Endo

Testosterone, Total---291                    Scale  250-1100

%Free Testost          1.29        Low     Scale 1.5-2.2

Testos, Free                37.6                Scale 35.0-155.0

LH (luteinizing Hormone)    6.7             Scale 1.5-9.3

FSH                                 5.9              Scale 1.4-18.1

FrT4                                 1.06            Scale  0.89-1.76

TSH                                 1.10            Scale    0.35-5.50

Cortisol, Total,LC/MS/MS    15.9          Scale     4.6-20.6

Prolactin                              5.7           Scale    2.0-18.0

Comments from Endos Nurse---Everything looks Pretty Normal--See You in six months.

[Padro46]

I am not sure, Chris-I can only tell you my story, which includes all the testing you have had other than the Throrasic MRI--I have not had a LP-Not really wanting to have them punch holes in my back when everything else is clear---I still dont have a Dx other than Post Viral as well--Just trying o hang on till I cant stand it anymore for a LP

[ChrisD07]

I received my MRI results yesterday and they came out clear =). I have a MRi of the Thorasic spine with and without contrast on a 1.5T.  I am still feeling a bandlike tightness around my ribs and back along with my other symptoms, my finger stiffness seemed to have diminished.  I don' know what to do now..I've have a brain and full spine MRI,EMG, all the bloodwork, x-raps,ekgs and stress echos. still can find my problem.  My ELISA lyme tests came back normal ( but I heard these are inaccurate).  Should I push for a spinal tap just to make sure?  Or go see an MS specialist?