Neurological Symptoms with No Diagnosis

[csb65]

I have had neuro symptoms as far back as 10 years that were mostly limited to my left side including muscle weakness, tremors, tingling, numbness and even in my tongue (like when you eat a popsicle).  It really never got any worse and came and went so I mostly ignored it.  In the last 3 years I am horribly fatigued, have tremors, slight double vision when I try to look to the right or left, flu like symptoms, eye balls hurt, numbness and sleep problems.  I also have weird tendon pains that come like attacks for several days at a time affecting my Achilles tendon, knees and elbows. Also have nerve pain in teeth and under finger nails (like bamboo being shoved in there).  All of these symptoms just seem to migrate around, one coming up for a couple of days and then replaced by one of the others.  The only constant it seems is the fatigue.  Neurologist did non contrast MRI.  Report says as follows, "Axial T2 FLAIR imaging demonstrates multiple patchy areas of increased signal throughout both cerebral hemispheres.  Subcortical increased signal in the posterior left parietal lobe.  Nodular subcortical increased signal in the mid right parietal lobe.  These are nonspecific findings."  Neurologist just said it's not MS.  I don't know what to think or what to do.  I can't get a referral without the original neurologist's help.  Any thoughts?

[csb65]

Ok I am about 2 months into my antibiotics for chronic Lyme. I noticed one of the tests the LLMD did was for TGF-b which I tested at 16,000, where the upper normal is 2300.  PA just said it's an inflammation marker and to detox. I'm having horrible episodes of nerve pain in my teeth as well as all the other fun stuff and I feel like dealing with that inflammatory cytokine would be helpful all around. I can't find much on how to bring it down. Anyone have any thoughts or experience?  I've looked at mold sites but that seems like another whole issue I don't understand.   Any help would be appreciated.

[csb65]

Is there a difference between a ms MRI and a Lyme MRI?  My neuro said my MRI white spots were not consistent with MS. I am seeing a LLMD but I forgot to ask him if an MRI looks different in Lyme. I've currently just begun my abx regime.

[csb65]

I did test positive for lyme by Igenex in 08.  Other doctors just pooh-poohed it and thus I didn't pursue treatment at the time because my symptoms weren't that bad.  Don't ever remember having a rash.  I am now experiencing a lot of muscle weakness and tremors and it is really affecting my day to day activities.  I have an appointment with a LLMD but it seems like half of the literature says these guys are quacks out to get your money and half say they are on the up and up.  It's very expensive to treat and its a clinical diagnosis.  However, I have been checked for almost everything else and my GP really feels this guy can determine if I have it.

[dhicks19]

Hi - having going through multiple symptoms for the last 3 months and getting no diagnosis through the NHS  , I know how it feels.

Seriously - get yourself tested for lymes disease and other tickbourne infections. I sent my blood to a lab called Armin Labs in germany and they tested.

Mine is mycoplasma pneumonia and possibly lymes - read my post ive just put up.

Lymes is known to cause every symptom possible and it can cause lesions on the brain. It could well possibly be that.

Have you had a bullseye rash or been bitten by a tick that you can remember?