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occipital neuralsia post chiari decompression surgery

After 10+ years of suffering from what I was told were just "migraines" I was diagnosed with a Chiari Malformation.  I under went a decompression surgery in Boston a year ago in hopes of getting some relief from the severe and chronic headaches I was having.  At first the surgery apeared to be successful then I started having more headaches and was diagnosed with occipital neuralsia.  My question is: has anybody else experienced this after a decompression surgery?  If so has anyone found anything that relieves the unbearable pain?  I am seeing a pain specialist and have tried several medictions. however nothing has helped not even narcotic pain meds.  When the pain gets too bad I have to go to the ER for morphine to help lessen the pain.  I have also had several nerve block injections which help for just a few weeks at a time.  I would be interested to hear if anyone else has had a similiar experience.




This discussion is related to chiari malformation.
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