After 10+ years of suffering from what I was told were just "migraines" I was diagnosed with a Chiari Malformation. I under went a decompression surgery in Boston a year ago in hopes of getting some relief from the severe and chronic headaches I was having. At first the surgery apeared to be successful then I started having more headaches and was diagnosed with occipital neuralsia. My question is: has anybody else experienced this after a decompression surgery? If so has anyone found anything that relieves the unbearable pain? I am seeing a pain specialist and have tried several medictions. however nothing has helped not even narcotic pain meds. When the pain gets too bad I have to go to the ER for morphine to help lessen the pain. I have also had several nerve block injections which help for just a few weeks at a time. I would be interested to hear if anyone else has had a similiar experience.
This discussion is related to chiari malformation.