I hope the consultation goes well and you get more information regarding the surgery for your daughter,let us all know how it goes.
thanks a lot for your concern and help
today i consult one neuro physician-(ped) he also suggested for a surgery
i will be getting info from the above mentioned site
thanks a lot again
I have just googled and there is a lot of information you may want to read that seems helpful and http://www.asap.org is a site to go to. So put distematomyleia in and take a look, let us know if you get some help and good luck to you.
I am so sorry for all the pain you are feeling, I can imagine how hard this is for you,I cannot answer your questions there may be someone here who can ,I also suggest you put this in to the Doctor Forum , click onto forums and it is the column on the right scroll down there is Pediatric endocrinology or Family Medicine , someone will advise you . You can also put into your search engine' Diasematomyleia' and it will give you information and you may be able to get help that way. I will also go there and see what I can find out,