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Post stroke syndrome and fibromyalgia
I m dignosed with post stroke syndrome/central pain syndrome recently. Suffering both post stroke pain and chronic fibromyalgia at the same time that has made my life miserable. I get daily migraine tension type headaches, burning pricking numbness pain, stiffness and bad muscle spasms. Amitriptyline, cymbalta, baclofen gave me bad side effects. I m hoping someone can share their success with other drugs. I m willing to give it a try.
Thks in advance!
Thks in advance!
Get rid of that neurologist! That's outrageous and yes you do hear about doctors like your neurologist. Definitely get an appointment with another neurologist ASAP. In the meantime, perhaps you can get some relief from a regular doctor. If the next neurologist is also a jerk, get another one. Just be very clear about how bad your pain is. Don't mince your words in describing it. Let me know if you get more help.
Sure Sara. I will keep you posted if I manage to get help or treatment for the pain from new neurologist.
Hi Sara,
Have you ever experienced swelling in feet and abdomen with pain? I just found my foot and abdomen are swelling today. I m wondering if lyrica is the culprit or it's either a new fibromyalgia symptom.
Have you ever experienced swelling in feet and abdomen with pain? I just found my foot and abdomen are swelling today. I m wondering if lyrica is the culprit or it's either a new fibromyalgia symptom.
Fibromyalgia does not cause swelling. I would call your doctor's office about the problem. A nurse can take your call and check with the doctor. Also you could look up the side effects of Lyrica.
I don't think that my experience will have anything to do with your side effect since you have swelling in both your feet and your abdomen. Last year, I had swelling and pain in my abdomen which I saw a pancreatic specialist about possible surgery needed from that symptom plus some other symptoms. He said, no, and told me to take my Miralax and Benefiber with a LOT of water. Then I never had the problem again.
Make sure you call your doctor's office about it or if you have a regular doctor, you could try their office since your current neurologist is such a do-nothing.
I don't think that my experience will have anything to do with your side effect since you have swelling in both your feet and your abdomen. Last year, I had swelling and pain in my abdomen which I saw a pancreatic specialist about possible surgery needed from that symptom plus some other symptoms. He said, no, and told me to take my Miralax and Benefiber with a LOT of water. Then I never had the problem again.
Make sure you call your doctor's office about it or if you have a regular doctor, you could try their office since your current neurologist is such a do-nothing.
Hi sara,
Fyi, I was told by another new pain specialist recently that my pain is a complex regional pain and injection is not recommended. The only option for pain management is physiotherapy and visit to a psychologist which I totally disagree with.
Fyi, I was told by another new pain specialist recently that my pain is a complex regional pain and injection is not recommended. The only option for pain management is physiotherapy and visit to a psychologist which I totally disagree with.
Danly, How terrible that you got another bad doctor. Physical therapy should help you quite a bit with your body pain. That did help my body pain a lot.
Sorry my postings have mostly been about your migraines which the physical therapy only helps some. I do it almost daily on my neck and shoulder areas, but I also need all of those injections and now 4 different meds. If your migraine pain is more excessive, the PT may not be enough. If you've tried a number of daily meds for your migraines, which it sounds like you may have, and if you have at least 15 migraines a month, you would qualify for Botox injections to help your migraines. It usually does give relief when the meds have not been helpful. And I still question that the nerve block and trigger point injections wouldn't help you. Also there are other medications that could help your pain. I now wear Butrans patches which give a very low level of opiates which have kept me out of the ER. Also I recently was prescribed an off-label medication called Namenda (usually given to Alzheimers patients which I DON'T have), that has given me significant relief. Plus my anti-depressant does give me a little relief. Plus I take an herbal medication called Petadolex which the studies have shown cause a 72% decrease in migraines, but it costs about $55.00 a month. None of the daily migraine meds worked for me at all, or gave me bad side effects (except for my anti-depressant).
So in essence, your doctors are not truly competent with any answers for your headache pain compared with my 3 neurologists and a headache specialist all at the same university. Can you find a university medical system which may have better informed doctors? I hate to say it, but you need to try still another doctor. And be sure you emphasize the amount of pain that you are suffering from.
But in the meantime, try the physical therapy which should give you some significant relief from your body pain. But it takes a lot of work and the progress is slow, at least it was with me. When I questioned the physical therapist about my slow progress, in spite of doing the exercises every day at home, she said, that's the way it is after a stroke. If the exercises give you more pain, then it's the wrong exercise. My physical therapist could always find a more simple exercise that would not hurt me, but give me some progress. So find a different physical therapist if they are not giving you exercises that don't make the pain worse.
So sorry about your inept doctors when you are in pain. Wish you the best with finding more relief which you certainly deserve. It's a matter of having more of a life. Sara
Sorry my postings have mostly been about your migraines which the physical therapy only helps some. I do it almost daily on my neck and shoulder areas, but I also need all of those injections and now 4 different meds. If your migraine pain is more excessive, the PT may not be enough. If you've tried a number of daily meds for your migraines, which it sounds like you may have, and if you have at least 15 migraines a month, you would qualify for Botox injections to help your migraines. It usually does give relief when the meds have not been helpful. And I still question that the nerve block and trigger point injections wouldn't help you. Also there are other medications that could help your pain. I now wear Butrans patches which give a very low level of opiates which have kept me out of the ER. Also I recently was prescribed an off-label medication called Namenda (usually given to Alzheimers patients which I DON'T have), that has given me significant relief. Plus my anti-depressant does give me a little relief. Plus I take an herbal medication called Petadolex which the studies have shown cause a 72% decrease in migraines, but it costs about $55.00 a month. None of the daily migraine meds worked for me at all, or gave me bad side effects (except for my anti-depressant).
So in essence, your doctors are not truly competent with any answers for your headache pain compared with my 3 neurologists and a headache specialist all at the same university. Can you find a university medical system which may have better informed doctors? I hate to say it, but you need to try still another doctor. And be sure you emphasize the amount of pain that you are suffering from.
But in the meantime, try the physical therapy which should give you some significant relief from your body pain. But it takes a lot of work and the progress is slow, at least it was with me. When I questioned the physical therapist about my slow progress, in spite of doing the exercises every day at home, she said, that's the way it is after a stroke. If the exercises give you more pain, then it's the wrong exercise. My physical therapist could always find a more simple exercise that would not hurt me, but give me some progress. So find a different physical therapist if they are not giving you exercises that don't make the pain worse.
So sorry about your inept doctors when you are in pain. Wish you the best with finding more relief which you certainly deserve. It's a matter of having more of a life. Sara
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