If you go to the rheumatologist, I recommend mentioning where you grew up (near a chemical plant)!
I know how it can be frustrating with taking pills. It used to be gyn docs would try to push birth control pills for female hormone issues but I didn't want to take them because it gave me more migraines, fear of side effects and that sort of thing.
But it sounds like you need someone who is willing to work with you about your situation- if you don't have an endocrinologist close by willing to work with you on the steroid thing so you don't have untolerable side effects, have you tried holistic, nutritional or prescribed herbal supplements or acupuncture- is there anything else you can try since you simply cannot seem to tolerate the steroids?
And you said blood taste has slowed- so that means not stopped I take it? This is very serious and you need to get treatment ASAP!
Thank you both for the information, I will talk to my doctor about the adrenal problem, never thought to mention it to him. I am supposted to take corticosteroids everyday which I can not do. Asked if there was a different med or supplement and was told no. Have been on and off steriods all my life they totally mess me up. I do have headaches, treat with topamax, and maxalt when needed. Even small doses of steriods cause, facial hair growth, vaginal bleeding, weight gain, and I get depressed on them. Last time I took them I thought I was going out of my mind, so I stopped taking them and the specialist I was seeing will not see me anymore. I have 6 sisters all but 1 have autoammune disorders, weird, we grew up near a chemical plant, I blame it on that. My joints thankfully have gone down now, until the next time. Have been able to eat a bit more as long as I am careful. Lost 9 pounds in the last few weeks which I didn't need to do will work on putting some weight back on. Thanks for the insight. Hope you both had a lovely Holiday, have a safe and happy New Year,
If you do not have functioning adrenal glands, your symptoms can vary, but nausea and vomiting are pretty standard. Some do get the runs, others headaches. Fatigue is very common. Being nauseous all the time points to that you need the replacements that you are not taking.
The steroids you would be taking would be corticosteroids and if your doctor managed it correctly, it should be hydrocortisone which should have little if no impact on your stomach (you can always eat with it) and it is a replacement to what your body does not make, not a dose like people with asthma take that is large - so it should be small, taken several times a day (bulk in morning) and should help you to feel better.
Swelling joints sound like something else - like an auto-immune disease. Have you seen a rheumy?
I think a lot can depend on what doctor you get at the ER as to what kind of experience you have.
I went to a PCP and got referred to a surgeon. I saw two different ones. The first one ordered a HIDA scan with ejection fraction to look for gallbladder and bile duct issues. I also have gotten MRIs of my liver after an abdominal ultrasound revealed lesions on my liver. One of them is a hemiangioma and the other one we're not sure yet what it is because it is small.
Yes, if you had recently drank, a test for blood alcohol would have revealed it. I have never drank any alcohol, so drinking doesn't have to be the only criteria to have something going on with a person's liver!
Re: your adrenal question- adrenal insufficiency can cause diarrhea and nausea.
I am clear of all STD's, do not know about H pylori yet. Doc did give me Nexium, which seems to be helping me eat a bit better. Can still eat only tiny bits of food. The pain and pressure is still a constant under my right rib but the pain is under control as long as I do not eat anything large, like a whole sandwitch, Their office did call but I didn't get the call due to my job and received the voice mail after hours. I will follow up on Monday. Blood taste has slowed ~ Thank Goodness, didn't go to our ER because I went when this was accute and the DR. asked if I was a drinker, I am not. He was convinced I was, I was dehydrated and in so much pain that night or I never would of gone. He gave me an IV and I left feeling just as bad and when I went in after 8 hours there. Won't make that mistake again. In the past 6 months I have had a glass of wine at Thanksgiving, and an Irish coffee when I went out dinner. He had my blood and urine so couldn't he tell from that ~ not a drinker? Praying follow up with the Gastro will give plan of action. Losing weight, Diarrhea but not as bad, Nausous all the time. Also, weird as this sounds, for months the joints in my hands, wrists, and other small joints swell and become red and really painful. Have had a doc in the past tell me my Adrenial glad is not working properly, I can't take the steriod he want me on for the rest of my life so I don't. Can this play a roll in what is going on now? If it is then I am in trouble because Steriods make me ill and would rather suffer as I am now.
Hi
Welcome to the MedHelp forum!
Since you have diarrhea, you could be suffering from an inflammatory bowel condition such as Celiac Disease/Ulcerative Colitis/Irritable Bowel Syndrome/ Crohn’s disease. Parasites in the gut like threadworm, tape worm, giardiasis etc can behave this way. Hence a stool test is a must. Problems of gall bladder and liver or that of pancreas too cannot be ignored. Possibility of H pylori infection should be looked into by carbon urea breath test.
Malabsorption syndromes as seen in intestinal tuberculosis, HIV, tropical sprue, parasites in stool and Whipple’s Disease or diabetes too can be the cause.
Since I cannot examine you and know other related conditions you may be having, nor is a detailed history possible on net, I have listed the various possibilities that should be looked into. Please consult your PCP for primary examination followed by proper referral. Take care!
You can type of a list of your symptoms and a list of questions, most important ones to you at the top of the list. You can see if the doctor will read it but often they want to listen and not bother to look. So, you can use your own list to try to be sure you don't leave out anything important that you'll wish later you remembered to mention. Bring someone with you (your daughter would be a great choice since she is having some of the same problems) to be a second pair of ears to listen to what the doctor has to say and to take notes.
It's good to prepare for your appointment- do some research so you can have some idea of what tests you want to request with the reasons why you are requesting them. A good doctor will hopefully order at least some of the tests you mention and maybe some you didn't know about as well.
You may want to research the doctor first, find out when and where they graduated and if they are board certified (if the office doesn't give out that info when you call for some reason & you want to know where you can find out this info, feel free to private message me). And you might even take a look at nurse practicioners who are experienced, because sometimes they seem to be more thorough and give you more time than a doctor in the same office would.