Hi, I'm new to this forum and looking for help. 3 weeks ago, I had an arterial blood gas from my wrist--first time, very painful. A few minutes later, after the tech pressed down on the bandage to help stop the bleeding, I became lightheaded and passed out. A trip to the ER and some heart tests later, I was sent home.
The next day I woke up feeling the way I do now--extraordinary fatigue, uncontrollable muscle twitches and tremors over my entire body and now face, dizzy/light headed/ vertigo, muscle pain, some nausea, and a constant ringing in my ears. Every so often, my entire body begins to get tingly and numb, I get little pin pricks of pain over my whole body, and my chest gets tight. This can happen once a day, or ten times a day, or not at all. Afterward. I always feel worse.
I wake up every morning feeling like utter crap, and slowly feel better through the day, until I feel almost normal at night. Then I sleep, and begin the cycle all over again the next day.
I have seen my primary care doctor, who tested for Lyme (negative), thyroid (normal), and a complete bloodwork (slightly elevated white blood cells). I saw a cardiologist (all tests normal), an ear nose throat (no ear infection), and a rheumatologist and a neurologist. The neurologist was awful and said it was "all my in head" and that "I wasn't really sick." He did order some MRIs which all came back negative, but I didn't know I shouldn't use the open MRI to test for MS, so I'm not 100% certain in the accuracy. He tested my sedimentation level, which was slightly elevated. Finally, the rheumatologist noted my Vitamin D deficiency and prescribed a high weekly dose, and that I might have fibromyalgia, but did not diagnose me (yet).
All of the doctors claim I am having "panic attacks," which I've never experienced. None of them have given even a stab at a diagnosis. They are all baffled why I wake up so sick and feel so much better by the end of the day. I think this is an important clue, but they all shrug and say, "I don't know, that doesn't fit anything I've ever heard of."
I don't know what to do at this point. I've been unable to work because I can't drive a car and I get lightheaded and dizzy with any exertion. I am the sole source of income in my family and this has been devastating to us. All I do is sit home every day and hope to feel better....but wake up feeling the same. None of the doctors seem interested in getting to the bottom of this, they all say 'it's coincidence" that it happened after my blood draw, or that "it's all in my head."
Help, please, someone. I don't know where else to turn. Could all of this be caused by Fibromyalgia and a Vitamin D deficiency?! Who else can I see to help figure out what is wrong with me? - Autumn