I went to see my PT again yesterday and she probed me pretty thoroughly. I mean it was a full bore exploration. Throughout the treatment I did not not feel any pain or tenderness. None whatsoever. She told me that she could not feel any trigger points anywhere. She checked everything externally too and although there were a couple of slightly tight places, touching them did not cause me any discomfort and she felt that they were pretty benign. If in fact I have CPPS, why don't I have trigger points anywhere or the kind of pain that I read about here on the forum? Except for a time when I felt a charlie horse like feeling in my left calf and up my leg a few times, I have never felt any pain anywhere other than the one I've always complained about; the raw, irritated, inflamed feeling between the base of my penis to my perineum, which waxes and wanes is always worse sitting down then standing up. That, and frequency with an almost constant annoying feeling of needing to go, is what I have been suffering pretty much every day since last Monday, April 15th. Before that I was at least able to sit without discomfort.
I continue to suffer with this clenching, (involuntary contraction when I try to urinate) but now I'm starting to feel like it's my anxiety that is causing me to clench. Maybe the first time it really was an involuntary reflex, but now as I sit down to void I think about not clenching and I can't relax. The new symptom I've developed is this feeling of having to have a bowel movement, this full feeling, but I can't go. I also have recently needed to strain to pass gas and have been more constipated than usual. Any thoughts?
Have you ever heard of interstitial cystitis? One of the symptoms is the urge to urinate even after relieving the bladder. There is no cure for it but it is treatable with a med called elmiron
I finally started feeling better right around the beginning of November. From that time until January 4th, 08, I was basically normal. I just had two bad days in December and to be honest, I have no idea what triggered the problem, even though I suspect it was something I ate or drank.
On December 4th, 07 I went out to eat and had some Mexican food. The food came with some green chilie, that I had a little bit of. When I went back to work, I went to the bathroom and when I sat down I realized I still felt like I had to go. I thought to myself, "Oh no, not again." From then until now I have gotten progressively worse. God how I hate this.
I have the same symptoms as before. An almost constant feeling of needing to use the restroom even after I just go. I have respite sometimes, but it's generally all the time. I just make myself hold it for at least three hours. The uncomfortable feeling does not get worse as my bladder fills up. It just stays uncomfortable. I don't have any pain. I feel way better when I'm walking than when I'm sitting down. I can sleep with no problem. I usually get a good nights sleep. Of course, sex in any form is out of the question. It makes my symptoms a 100 times worse. I haven't indulged since October of 07. Isn't that sad?
I'm seeing the last urologist in my plan on the 14th. After that my GP is thinking of sending me to a research hospital. I am so discouraged. What can't I just be normal?
And get yourself a TENS machine, if you want to know what to do with it I'll let you know.
Blimey I am surprised that anyone remembered that post. Well I am online trying to find answers again,so I will give you my story so far. I had all the urology tests etc. but noone ever got to the bottom of it. I became very down as the situation was going on for months. I would say about 10-12 months later the symptoms started to relent, over time my symptoms of frequency declined from what I would say on a scale of one to ten about 10 to maybe a 1 or 2. For the past five or so years I always knew it was there but my symptoms where very,very mimimal even where I considered myself to be back to normal and even where some of my freinds would go to the bathroom and I would think wow that hasn't been long since they last went! I had 2 more kids = 3, got a new job and did normal things. 1 month ago I had a UTI, I know this because I had a slight pain,frequency and it was hard to pee but it sounds funny but these symptoms were different from the ones before. after temethroprim it went away and I went back to normal. Now my frequency is back about every five minutes but it feels different than when I had the (proper) UTI. I have a docs apptmnt next week for a chat. It can get me down but I have consololation that it cleared up considerably last time and I hope it will again. I have been under stress lately and Ithink that has a lot to do with it. Keep your chin up it will go eventually. Please update me with your story. Best regards. Darrell
Have you gone to see a urologist yet? That's what you should do first and really advocate for your health. If you are feeling anxious and panicky about the constant need to go, I would get on some anxiety meds. That's what I had to do because I was going crazy. I know what you are going through. Keep the faith.