Bipolar Disorder is also known as "Manic Depressive Disorder". This forum is for questions and support for people with, or for loved ones of people with Bipolar Disorder. The forum covers topics ranging from Aggressive Behavior, Affect on friends and Family,
Alcohol and
Drug Abuse, Appetite Changes, Chronic Pain, Denial,
Depression, Difficulty Concentrating, Euphoria, Guilt, Manic Depression, Medications, Mood Swings, Poor Judgment, and
Sleep Disorders
What scares me is getting older and older, being a single Mom, no real family support, etc., what will become of me and is it going to lead to dementia or something like my Grandmother? If I can get stable (which I am more now than EVER!), I will be able to make it, but I don't want to end up in an institution.
I bottomed out at the end of 38, so I can relate. I have a low stress job now, and I don't know how I managed to stay in banking / real estate for 20 years with BP.
Thats cool you were in real estate/banking for 20 years. We seems to have alot in common.
Thats cool you were in real estate/banking for 20 years. We seem to have alot in common.
Anyone with some information?
That's an experiment I wouldn't want to be involved in! Talk to your pdoc....
Bless your heart!
There are links to early dementia with Bi Polar that has been untreated but the good news is that with proper medication - we don't have to go through it.
Blessings
Tink
I currently take Lamactil and it works well - I feel better than I have in my while life. I miss my mania (energy ONLY) parts at time, but overall, I feel better than I could have imagined.
Rach
The reality is that it has not been proven conclusively yet but it does look interesting. Bipolar is a progressive illness - the symptoms and episodes grow with age and this is one of the major reasons why early diagnosis and treatment is important - Untreated bipolar's have a hugely increased risk of early onset dementia for one.
Treatment and management are vital. I do worry seriously about someone doing a trial with abilify and prozac - neither of these drugs is new and their affect are know - SSRI drugs are the new big thing in Bipolar treatment and thats alarming considering they can send a significant portion of patients into dysphoric mania (also know as mixed episodes) which is the most dangerous state for bipolars - most suicide attempts for bipolar's come during mixed episodes.
If you are taking any anti depressant and are a bipolar you should be carfully monitored and those around you aware of the symptoms of a mixed epsiode - MOAI and Tricyclic AD's can also cause mixed states which is why there is a lot of debate among doctor about using AD drugs in the maintenance phase.
It's a little scary to me since I was diagnosed at 40 - just got treatment - and my Dad got worse when he was at 45. With dementia running in my family - as well as, the BP, it makes me think I am in for a rough row to hoe.
The message blanked out the web address - can you send me a direct message with the web address?
As always - you are the best -
Rach
My dad suffered with manic depression his whole life with only Li as treatment for a long time. As he got older his episodes became less severe and then less frequent. He took Paxil for many years alone - luckily with only good effects.
Later a VA doc put him on Seroquel and Depakote.
He suffered episodes of depression sometimes, but never had another manic episode after about 60 years of age (he lived to be 78).
Dysphoric mania is the single most dangerous phase for anyone to be in because you just do not realise you are there and if you do not have people around you who know its an incredibly dangerous place to be. Ironically I am reading an article from the Australian Prescriber which is a mag for pharmacists (my pharmacist prints out interesting articles for me from it) about acute treatment of bipolars that has some interesting stats : quoting
" Patients with bipolar disorders face significant risks of morbidity and mortality and present medical practitioners with considerable diagnostic and management challenges. The lifetime prevalence of bipolar disorders is estimated at 1-4% of the general population.1 Suicide is attempted by 25-50% of sufferers2, and overall 15% of people with bipolar disorders die by suicide.3
Accurate diagnosis depends on recognising often under-reported symptoms of elevated mood. Mixed states (combined depressive and elevated symptoms) and comorbid substance misuse frequently cloud the initial diagnosis. These diagnostic complexities along with often impaired patient insight lead to a third of Australian patients suffering illness for more than ten years before accurate diagnosis is made and appropriate treatment given."
The suicide attempt figure is alarming and when you add to it that men are many times more likely to successfully commit suicide the risk factors grow more.
Interestingly the article also has this to say :
"Bipolar I involves manic symptoms which last for at least a week and are severe enough to markedly impair functioning or require hospitalisation. In contrast, bipolar II involves hypomania in which elevated symptoms are less severe but still clearly different from usual mood and last for at least four days. In both forms of the illness, depressive episodes tend to be more frequent and disabling than mania. Sufferers spend 32-50% of follow-up in depressive episodes and only 1-9% in elevated states.5 Most patients have inter-episode periods of recovery, but over 90% relapse without medications.6 "
Which goes to another thread on here where someone doubted they were BP because they were not needing meds. Its a fools game in the end.
Article is here (add http in front) www.australianprescriber.com/magazine/31/3/73/6/
I think one of the main reasons men are more "successful" in the suicide attempt is the method. I have seen that most women (like me) attempt overdose, however, men, are more likely to self-inflict like gunshot. It's scary - truly.
The website you gave us on the black dog was interesting. If you would send me the kindling website, I would appreciate it.
I have some personal "man's perspective" questions that I am going to message you later.
Thanks, John.
Rach
This has presented major problems for groups ike Black Dog and Beyond Blue here for reaching men - one of the big successes they have had believe it or not as signs on toilet doors and above urinals - men read them because well you dont look anywhere but in front of you at the urinal.. It works, it reaches men. Reaching them is the hard part.
Ive lost 2 people i know to suicide - 1 of them a guy I worked with but wasnt close to who went through a messy divorce and custody battle and one day went home from work and shot himself and another an ex flatmate who tried 4 times and on the 5th try succeeded.
Asking for help is hard, Im lucky in that my suicide attempt was caused by mania and though I get suicidal thoughts now and then I truly do not think I would do it again - but that does not mean you dont take the thoughts seriously.
Kindling is here (put http:// in front) bipolar.about.com/cs/brainchemistry/a/0102_kindling2.htm
Your family has a lot to look forward to, you will not pass this on through genetics, just your beliefs.You will have a strong happy healthy life ahead of you. Keep on your medication, and start looking inside yourself. You will find more than u thought.
Regardless of meds you cannot control BP completely, the meds act as control factors but sometimes and often over time your body adapts and meds need to be tailored.
Bipolar is not triggered by trauma and it is not trigged by psychological injury - those are both outdated theories discredited years ago - the most likely cuplrit for bipolar is a genetic abnormality if you follow current thinking and its not something you can get, you are not sucspetible to bipolar if you are born with it you will develop it - they do not talk about it in terms of catching its talked about in terms of onset because it lies dormant until early teens and adulthood and no its not just 18-30 year olds its now being seen in full cases in pre adolescents - again the 18-30 is old data now proven to be changed.
The reason for its onset is likely linked to hormonal and life changes as we grow - this is one of the theories presented for why we see it younger and younger now; doctors are seeing menstruation in girls as young as 8 these days and it may very well have something to do with all of the hormones pumped into our food these days (one of the theories I have read) but no one knows as we have not studied BP anything like some of the other mental illnesses.
No one is saying all children of bipolars will have BP nor are all BP's the children of BP's - the way it is put is there is significant evidence that in a large percentage of cases there is a familial link - that does not mean that all BPs come from a family of them but more and more seem to do so.
As for dementia - there are factual linkages out there that show that untreated BP patients are far more likely to suffer early onset dementia regardless of family history - again this does not mean all will and it does not mean treatment prevents it.
I think people miss the point - youre not treating the disease with the drugs that are used you are treating the symptoms - you cannot treat the disease at this point.
Positive attitude, healthy lifestyle and education are important parts of being bipolar but that also has to include a sober and intelligent understanding of the realities of the problem, sugar coating it its pointless because the monster is your head no matter what - the best way to fight it is to know how it thinks and works but you are never going to beat it.
I suspect that like many people and me most of the time you have a mild and controllable case of BP - we sometimes forget we are the lucky ones - there are people I know and others who post here who fight every day for control of their lives against the disease - positive thinking and drugs doesnt always work. At best many of the modern drug theories work in ways not really understood and the proper dosages and mix is a cocktail of experimentation and side effect hell.
For example, my cousin was hospitalized at 18 with severe mania to the point of being delusional (the FBI was out to get her, etc.) She spent several months in the hospital, and has been on lithium since and has since gone to college and adopted two children. That was about 18 years ago. She had one adjustment in her lithium a few years ago, and I think stress may have had something to do with it, because becoming a parent, even by adoption, is a big stress. She is one of the success stories of overcoming bipolar.
I've been under the radar for bipolar most of my life. It became blatantly obvious three years ago with a severe mania with so much anxiety I hospitalized myself. Probably a good thing I got so scared, since I literally stopped sleeping and was going to have to wait several more weeks to see a psychiatrist and could have died from exhaustion of become delusion myself.
Perhaps stress doesn't "cause" bipolar, but it sure can trigger episodes, which is why I got so manic when I did. Ten years before, I could have handled the same stress without a hitch. I think prevention is worth a pound of cure in latent cases like mine. One of my best friend from grade school grew up with mental illness in her immediate family and goes to great lengths to take care of her own health so that she doesn't have a mental breakdown--so far it's worked for her.
But if you are like my cousin and have major episodes early on from out of nowhere, then there isn't really a way to prevent that. Lithium works great for her as a restorative. It doesn't work for me (right now I'm trying Tegretol.) We seem to have different flavors of the illness, so it's no wonder we require different treatments.
Since the medicines were so bad, ECT was used more. But if you were on the dole, they let docs train on you. You are only supposed to lose the memory of the events around the time you receive the treatments. However, I lost large amounts of long term memory as well. Like music scores and math-skills learned long before. I can not learn in the same fashion as before. My friends have told me of trips we took together which I have forgotten about! Very strange but even more than that, very disturbing.
My current doc thinks that the best treatment for somebody just starting out is to find the most effective stabilizer with the least amount of side effects AND if possible, to avoid taking any antidepressants.
Socially, there are more resources, support groups, and club houses today. I am figuring out computers, and now look, there's this support group online!
Although the hospitals often let patients out too soon now due to insurance problems, the opposite was true for many years. We were left staring at the cracks in the walls for weeks. I spent most of the '90's in hospitals taking whatever great new "wonder" (experimental) drug they decided to test on us. A bunch of us got diabetes on Xyprexa.
You name the drug, they guinea pigged it on us. When I moved in '02 to see my ailing brother it was the first time I ever saw a computer with a mouse (and actually the first time I had used the internet too!)
My family has all died. My brother died at 45 due to emphysema but he had bipolar 1 also and got very ill and was homeless for 3 yrs. Despite taking my medicines, his death was too great a stressor, and I became psychotic and became homeless for 6 months. I don't smoke, drink alcohol, or do street drugs, but still I got so ill and a lot of bad stuff happened out there. I'm just lucky to be alive. Our parents were dead. I live by myself but have wonderful pets. I am too old to have children but decided years ago that it wouldn't be wise given my diagnosis and that of my brother's too. My father believed that he was probably BP2. They didn't know much about all of this around WWII but he believed it helped him for the most part, yet he did suffer with depression and he was very moody. Now, in his cas, he did get better with age. Maybe this was because he didn't self medicate or take medicine. I've noticed a tendency towards mood disorders-like cyclothymia and BP1-on his side of the family; with his brother and sister; none have been medicated, and they have mellowed with age. Unfortunately, in older times, a relative or two may have been institutionalized when that was the standard practice. One, I believe, was put into a sanitarium for post-partum depression before they knew what that was.
I hope this wasn't too negative an answer. Lots of people get better as they age. I think that once they find the medicines that work for them and get support they do can get back to doing more as time goes by.
My family (immediate family) isn't supportive because they have to deal with the issues that have surrounded many in my family and the guilt for not suggesting I get help (very much a hush - don't discuss it family). I do have 2 wonderful children (all be it a challenging 19 year old at times), and a ex-family that's very supportive of me and my issues. My friends are wonderful and I can't imagine life without them. SO, I understand the lonliness of not having immediate family, but family is what you make it.
I am cautiously optimistic that since I am the first in my family to be diagnosed with my BP1 - I will escape the family legacy of dementia. Who knows - I hope to be a healthy old broad that bugs my kids and spoils grandchildren. My fear is that I will be the old woman in the nursing home that doesn't remember anyone and no one comes to visit anyway.
Thanks for your comments! You will love this community - I am glad you found us.
Racheal
I was given Lithium and a tryicyclic. But really struggled for many years. With psychotic manias, and depressions that destroyed relationships and jobs and my first shot at college. Been homeless brieflly.
And I'm also without family and I'm single. I'm just sharing all this to hopefully make you feel a little less alone.
Now for the positives: I've been able to work at a good job in my profession for 10 years. I've been hospitalized twice in that time for manias, but was not fired from my job (partly because I had a good record due to my stability). I've been on a lot of medications and what I've been taking the past ten years has really been a godsend.
My meds were not that great for the first 7 years I was able to work again, but after a hopitalization 3 years ago, my meds have been been awesome. I'm one of the lucky ones that does not have a lot of bad side effects. I pretty much have none at this point. I did suffer a long depression after my dad died a year ago, but a new psychiatrist finally tried me on Prozac this summer. I am on two mood stabilizers, whic is critical if you're BP and taking anti-depressents.
The Prozac helped eliminate my near-constant suicidal feelings and plans. My main problem now is some residual depression. I like my job but when I'm home alone I'm not very motivated to take care of things. But I'm used to this.
So, my point is that meds are clinically proven to help and they've helped a lot of people on this forum. I'm not a big fan of Pharma, but these newer meds have helped me in a way the older drugs couldn't. I'm sorry you're afraid. Remember you can try and if you don't like it you don't have to take them. But there are a lot more options now that in the 70's and 80's.
Like you, I hid my real symptoms from everyone - I was so afraid to actually be bipolar (even though I was anyway and most of my family and friends already suspected it). I would completely isolate myself and I know now that isn't healthy - and it really hurt my boys. My 9 year old tells me now that he is glad that I feel better - I know he was worried a lot. My 19 year old struggles with the realization that he actually was my caretaker throughout his whole childhood - and I struggle with that too. He told me yesterday when I was helping him with a grown-up problem that it was a different role for me to be there offering good advice. I took it as a compliment.
My biggest fear is that I am going to get stable and then in a few years have dementia since I have discovered that untreated bipolar can lead to severe damage - and sometimes dementia. Hopefully, getting treatment now will keep me from deteriorating further - I have seen good reports on that issue.
Since I have been diagnosed - those close to me that I have trusted with my diagnosis - are watching for signs and that helps me to not feel all alone with this Hellish disorder. I told a friend of mine it's like looking at me (from my perspective) being the white picket fence Mommy and wife, and then getting up to it and seeing that there's barbed wire around the fence.
My fear is that after being diagnosed and being on meds, my family history of dementia and Alzheimer's will kick in and have another issue. I know that my paternal Grandmother was BP - they just didn't know what it was - I know that my father was BP. My Grandmother suffered with Alzheimer until her death and didn't know anyone. Actually she remembered me - but as a 12 year old girl (my kids were a HUGE mystery to her!).
I don't want to EVER go to that place again.
Mental illness is not a constant. It waxes, wanes, or may even disappear completely.
BP is a medical condition that requires medication and doctors care - just like diabetes.
Mental Illness is definitely not a constant and fluctuates, but it doesn't disappear.
Bipolar does not cure itself
Bipolar cannot be cured.
Ask any psychiatrist if it can and you will get those answers. Psychiatrists being medical doctors with additonal study (10 years total study here in Australia to hang out your shingle as a Psychiatrist) as opposed to therapists who have variable at best qualifications depending on the state or country (hell in some states down under you can do a 3year degree in psychology and hang out a shingle as a therapist with no experience at all and start playing in peoples heads...)
Mental illness does NOT dissapear and there are people on this forum who are seriouslly ill and coming here for advice and support, there are members here who have attempted suicide and watched others here go through hell and frankly telling people mental illness does not need treatment and can go away is like a ticking time bomb to some people - its attitudes like these that result in patients stopping taking drugs because they feel fine only to rebound and hurt themselves or others.
Part of the problem is that there are many doctors out there who read a few journals or do a few psychology courses and think this means they can make a diagnosis - Ive seen plenty of bipolars who were not anything of the sort.
Oh, and cowgirlnerd, keep on thinking up these interesting questions!
LetaB, Girl, you know we are from the same skin. Same history - ADD, Severe Depression, and then FINALLY BP. My suicide attempt happened after taking a Cymbalta / Adderall (adderrall) cocktail for a year. It cycled out and hit me like a ton of bricks.
I think mine has worsened with age and that was leading up to taking the correct drug cocktail. I seem to be leveling out - but still have episodes - we never stop having those! I can just see them coming now and that is at least a little comforting. The episodes still hurt - but you can brace yourself, if you are treated with your pdoc's advice.
Love you guys!
The only thing that I wish I didn't have at times was a greater sense of my illness - I know that's weird. At times, I miss the not knowing and even though I don't miss the aftermath of the tornado - I almost feel like there's one of me that muddles along while watching the behavior of the BP part. It's hard to explain.
I can't take antidepressants - according to my pdoc. I was on Cymbalta and it didn't work well....made my mania worse. I couldn't come down from the mania. I talk Lamictal 200mg now. I do feel a lot better - had a manic and a depressive episode recently, but it didn't last as long.
Corlenspar- I feel for you so much. I feel like I have always been bipolar. I didn't get diagnosed until 40 but struggled for YEARS! I did well until I got to be about your age and then it progressivley got worse. I think a lot of it was because of stress, and a lot was because I was taking the wrong meds and it spiraled from there. Just hang in there. Getting stable could make the difference in you haveing a productive / stable life.