Aa
A
A
Close
Avatar universal
Essenthial Thrombocythemia, sudden chills, cold hands and feet and brain pressure related? Urgent
Hello,

I am 21 years old and diagnosed in 2010 with E.T. with platelet count around 1.9 milion.
In 2011 there was a time where I stoped taking hydrea because it made me feel very tired and I got bruised all over my legs with large black spots (hematoma).
A few months later while not takings meds I started having sudden "attacks" that would last 2-5 hours during the night, I started feeling strange, agressive chills that started in my head and went down the body, my body would shake terribly, very cold hands and feet that did not warm up even if I was covered in my bed, very high pulse (170 beats per minute that lasted for several hours), numbness of the whole body from the feet untill half of my face (the nose). I imediately called an ambulance where they told me to relax and try to lose my hands, but i was not possible for me. The entire body was under such a "pressure" and vibration that I could not controll.
I went to the hematologist the next day with platelet counts almost at 3 milion.
The I started doing interferon so the platelets would sink quicker, I kept having these attacks at night during 5 months.
Interferon gave me incredible side effects, I thought I was chased by cars....I know it might sound funny but this drug caused me severe neurological symptoms that even lasted for a few months after I stoped taking it.
Nowadays I am on hydrea, my platelet counts are very good (200.000 last time and máx 450.000) I take 2 hydrea pills on one day and 3 on the next though I only have 56kg.
The symptoms have gotten better, slowly but I still have (once a weak or 2 times) suddenly very cold feet and hands, chills and brain pressure, they last for 1 hour now or for half an hour.
I keep asking myself if the platelets are normal now why do I keep having such symptoms?
Are they E.T. related or not?
I was tested on autoimune diseases and everything is okay.
I have been researching a lot and no condition I know so far causes the exact symptoms.
If anyone can provide an answer I would be terribly gratefull.
Cancel
0 Answers
0 Answers
Page 1 of 1
Your Answer
Avatar universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Submit Answer
A
A
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Blood Disorders Community Resources
RSS Expert Activity
233488 tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488 tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543 tn?1443740527
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Blood & Vascular Answerers