I was in the hospital for a very low phosporus (1.0) and low potassium (3.0). My doctor took a celiac panel blood test and I had an anti-tissue transglutaminase of 107. A small bowel biopsy was normal. Two months later, my anti-tissue transglutaminase level shot up to >300. Does anyone have any idea what this could mean? My PMD and GI MD are at a loss. The GI doc said he's baffled as there is such a high correlation between anti-ttg and celiac. I don't know what to do next.....
Biopsies, although they're considered to be the gold standard when it comes to diagnosing celiac, are not always correct. Consider doing a fecal antibody test and couple it with the genetic test (allele) to look for the presence of celiac disease. You can read about these at enterolab.com.
With that high a level of transglutaminase, I'd suggest you go gluten-free - biopsy or no biopsy. You can do the fecal antibody test while being off of gluten and the results will still be valid.
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