CELIAC (SPRUE) DISEASE COMMUNITY
celiac, casin free diet

celiac, casin free diet

I know this will seem to be a whiney question but I was diagnosed with celiac disease and alot of other food allergies.  No rice, no casin, no dairy, no eggs, no tomatoes, and a few other things.  I was also in the midst of a thyroid overactive then RAI then underactive, anxiety, depression, confusion.  I did the full diet at first and took a lot of supplements.  As I started feeling better I started adding the foods I wasn't supposed to have except for the gluten and bananas.  I still have the pain in my stomach which is the only symptom that I ever had.  I don't want to stop eating the foods that I have added back to my diet. I wondered if anybody else has faced this and how did you get through it.  I am still having a battle with my emotions from the thyroid and am going to therapy.  I take papaya enzyme for the pain and it takes it away.  I just don't know if I am hurting myself by eating these things even if I can handle it with the papaya.  I am afraid that it would result in stomach cancer if I continue to eat this way.  Can anybody relate to what I am saying and how did you overcome it.  I have one more problem and that is I do assisted living in my home and I cook for them and my husband and it is very hard to do two kinds of cooking..  I can easily do the gluten free but when I add in the no rice, and all the other things it doesn't leave me much to cook or much desire to cook.  Thank you for answering.  lol linda
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605522_tn?1220135403
I have heard that some people use quinoa instead of rice.  Quinoa is supposed to be better nutrition wise also.
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Avatar_f_tn
thanks - I've haven't found quinoa yet.  I will try whole foods market.  linda
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268911_tn?1213748381
I would like to make a suggestion.  Have you taken lots of antibiotics or antacids?  I was expereincing similar symptoms as you....mostly the severe stomach cramps.  At first it started as having problems with dairy..I quit consuming dairy products and the symptoms went away...for a few months.

Second I eliminated gluten from my diet...the symptoms went away again...for a few months...then came back again.  

I have a friend that is a nutritonist and she started me on probiotics and L-glutimine and so far it seems to be working.

If you have taken lots of antibiotics they have killed the good bacteria in your gut causing you to experience your mentioned problems.  You may try introducing probiotics and a good digestive enzyme into your diet and see it they help.

Good luck.
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Avatar_f_tn
Thank you so much for you information.  I will do that.  I had been taking a lot of antiacids and I also take papaya enzyme.  I don't know it that will hurt me or not but it takes away the pain when it comes.  I also had been taking probiotic and l-glutimine but stopped taking it before I could even notice if it made a difference.  I never thought about it as I was having so many other problems.  I will try this again and see what happens.  Thanks alot.   lol linda
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541234_tn?1266678697
i don't have celiac but i have wheat allergies so i have intolernce s ,lots of food allergies en viro, rx allergies, now with my chronic fatigue fibro symptoms i'm on synthyroid and vit D 50.000 iu 1 x wk , feeling better eatting yorgurt daily activa type  , started the gf diet losing wt no dumping no abdominal pain ,however my gastroscope says i have hiatle hernia, gastritis neg h pyloric, polyp, hyperplastic benign  grew 5 polyps 2 yrs ago long term nexium, prevacid pilosec makes polyps, now you might be allergic to your medication, i was sooo sick on generic prilosec and nexium diarrhea constantly losing wt eat drink dump... so i am on gf diet ,zantac 150mg synthroid 37.5 mcg cardura 1 mg losing wt, taking vit E and 50,000 iu vitD feeling better.
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Avatar_f_tn
sorry it took me so long to answer this comment.  I would like to know when you eat the yorgurt because of taking the synthroid.   I am on the gf diet but wasn't losing weight.  I just went off the risperdol and have lost a few lbs.  I didn't know that one of the side effects of risperdol is weight gain.  I have never had a endoscopy - they want me to have one but it seem scary to me.  I know they put you to sleep but something down my throat is not to appealing.  I was in the room with one of my clients (I do assisted living) while they were doing it.  It was very interesting but it was on her and not me.  I will have one done one of these days when other things get calmed down.  
After going of of risperdol I am having depression, and anxious feelings and thoughts.  I am doing pretty good but it is an up and down thing.  I am using cognitive therapy where you write your feelings down and challenge them..  I am learning a lot about myself.  It isn't easy but God says in Ephesians The task ahead of you is never as great as the power within you.  I am encouraged by that.  I took the prilosec by prescription and it really helped me but I now don't take it and use papaya enzymes which work very well to take away the pain and indigestion.  I am also using a little bit of lorazapam when I can't stand the tension or down thoughts and it helps.  I only take 1/2 or 1/4 of 1 mg.  What is cardura?   I took 8 weeks of 50000 is Vit D. was tested and I guess I'm ok she  didn't continue it.  I am also taking 5HTP and doxipin 50 mg. for depression.  What do you take the vit. E for.  I am also tak l Glutimine 1000 mg twice a day for clear mind.  One more thing, do you have pain in your stomach from the hiatle hernia.  That is the only symptom I have from the celiac.  What does a hiatle hernia feel like.   I hope you read this post.  I guess I should have written directly to you.   Linda
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541234_tn?1266678697
hi, I don't take any medication unless i have too ,So all things work together for good who are called so My aches and pains and woes I share, God helps those who help themself , he never gives us anymore then we can handle but I was going nutso trying to figure out what was wrong with me, so I guess I stay as natural as I can with all my allergies, medication don't like me much so if you hadn't  realized your probably allergic to some of your medications , drug induced allergies, wheat ,gluten artificial coloring in the medication preservatives etc,  our yeast is probably high, so i eat the activa yogurt to balance out my dumping , the metamucilla puts bulk in my stomach so the acid I dump doesn't burn my butt literally and i was allergic to generic prilosec and nexium i dumped worse cramps , pressure heart burn etc, so my hiatle hernia i choke on food , and sometimes i get a heavy burning sensation like a pressure pocket and my shoulder hurts  so its a pinched nerve so if i go to the chiropractor alot of my heavy chest and burning leaves me, now the zantac 150 mg is working the gluten free menu BOBs redmills  GF, products go to the website i order all my stuff from there, now taking synthroid on an empty stomach like it says irritated my stomach, and of course my gastroscope said i have severe gastritis , which is usually h pyloric bacteria but i'm neg for that i have hyperplastic polyps benign and loong term use of PIP prilosec prevacid leads to polyps growth so i grow polyps without being on medication ? and now i am on it to stop the nausea and burning but if your like me you have food allergies  and alot of your bloating and pain  could be H pyloric bacteria?  you need to do the gastroscope  why take drugs if you can remove and treat the problem ? polyps  bacteria etc so the cardura is for spastic bladder , i  had a uro dynamic done i have nerve damage and an abnormally small bladder so i have to have a bathroom map whereever i go so this stops me from doing that, it also lowers my bp cause with out it i retain fluid and pp constantly so now i'm almost normal again , the vit e is a natural healer, helps the thyroid and hormones and i drink  soy milk for my  crazy sweating or anxiety since vit E and soy are the natural HRT so this therapy works for me,i only have 1 ovary so far it has a cyst and its being watched and i had a ca125 done waiting on results  so i would seriously try going natural remedy's casue all this medication wrecks havic on our body, like psuedo colitiis  we do it to ourselves, so i am on vit d OTC now as a daily therapy  so don't stop taking D , our thyroid doesn't absorb this right , so if you find your depression and fatigue and pain is in creased you can bet your D has dropped so i would tell your Dr you felt better on D 50.000 iu if you think it did, casue with out this VIT D dx i was so depressed and foggy headed and body ached terrible and taking synthroid and vit D and doing  my routine i feel almost normal  i suppose you can ask GOD , is this the answer  to your  prayer?  not sure how you know his will but i find an inner peace and i just go for it and  learn as I go, so i was taking  pancreatic enzymes  VITAMIN SHOPPE  its amelyase lipase and protease this helps your organs digest the fats and the oils  casue my gallbladder is gone and it , was full of polyps  so i am growing polyps for no reason  except my thryoid is whacky and i have newly dx SLK eye condition supreior limbic keratitis which is part of thyroid issues so  I'm learning as I go, pomegranet juice seems to help me  , i am also on yahoo answers, moped mama if you  have Q&A its free also thats my story keep in touch, we have simular careers and medical conditons  we are not ALONE we have each other for battling these   demons (smile)
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Avatar_f_tn
wow that was quite an answer.  I really didn't notice any great difference when on the vitamin D.  My count is now 33 (20-100).  I guess it is ok.  You know a lot more than I do about what is going on.  I just found out that the thyroid messess with the chemicals in the brain and that is why the doctor put me on risperidol.  It did help me feel better but the medicine was scaring me.  I am praying that the Lord will give me a peace about what to do.  At the present I am taking the synthroid, 5htp, l-glutamine(amino acid to keep mind sharp and clean) probiotic for stomach and doxepin (antidepressant).  I am taking a little lorazapam for help when I get too upset.  I have a strong faith in the Lord and am waiting for Him to show me what to do next.  I am up and down and all over the place.  Right now I am just plain confused as to what to do.  I can see what the risperadol did for me but right now I am not ready to go back on it.  I can't afford to go to another doctor - I do have a MD that is natural also but he doesn't take insurance and is very expensive.    I don't know what yahoo answers is .   Did you feel hopeless at times even though I don't dwell on it because I know God always makes a way.  I really need to know whether or not to go back on this risperadol or not because at least I didn't feel so bad as I feel now.  thanks for your wonderful response.  linda
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http://health.yahoo.com/other-other/risperidone-oral/healthwise--d03180a1.html

i would try natural search thryoid conditons and supplements  go to a local healthfood store or GNC  vit store  pomegranet juice is a powerful antioxident and green teas so make sure you drink this my thyroiditis was severe and i swear 4 oz of pomegranet was helping me and VIT E,  and drinking propel B VIt , I was so depressed and the endo said it was thyroiditis and i spent months feeling doom and gloom and I did even pray GOD TAKE ME HOME, I am not able to serve in this way, i really thought my thyroiditis went into cancer casue the lymphs in my neck and armpit were so painful i was preparing my estate for the worse senario , so yea i know crazy, but i never went on medication so i can only share what worked for me? then i switched endo' s and he started me on synthroid and VIT D and i can  tell week too week i need this D i start feeling fibro and chronic fatigue symptoms so it can't hurt to buy a 5.00 bottle  of Vit D and take it daily llike he told me?

hope something helps I'll keep trying to helpp  you and search for more answers ok
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Avatar_f_tn
I did go back on the resperidol (risperidone) yesterday.  The Lord told me to take the medicine as it would keep me safe while he was healing me.  I am not a young women and don't have all the fight that I had many years ago.  My thyroid goes back and forth from hypo and then hyper.  My endo said it was unusual.  I am going to the doctor on the 20th.  Did you have any trouble with constipation while taking the Vit D.  I did and it scared me I had to pray to be able to go and God helped me. (excuse the subject)  I don't particularly want to take that again.  I might try the propel B Vit.  I am so sensitive to everything and have to watch medicating myself at this time.  You know God leads us in our own directions.  I am drinking green tea.  I would never have believed that I would take man's medicine but that is the way the Lord led me this time.  He has never done that before.  Thank you for your help.  I love everybody on these forums.  We get so many good ideas and support.   lol linda
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541234_tn?1266678697
hi,

hmm constipation whats that ?  lol dumping syndrome  non stop , but gf diet is working
i am having eye ball pain this SLK . was in my rt eye on pred forte for 1 wk now its hitting my left eye i guess it feels like a sinus ? the eye dr put me on NEVANAC for my rt eye now sure about this new drug ? now i''m starting my left eye, taking my Vit D 50,000 iu 1 x week WED is my day and i don't feel so achy so, not sure why but i tried to reduce my 37.50mcg to 25 mcg and i feel worse so between the 2 things i'm better on the 50.000 is D 37.50 mcg synthroid.  pumping the pomegranet juice  again , suppose to be better then green tea? no caffeine?

I'm here to chit chat about whatever, now does anyone know about the ca125 test mine was normal ratio  9?  my obgyn wants to talk to me about my ovarian cyst and my ca125  so is my test normal high towards cancer or low not near cancer? i'm 43
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Avatar_f_tn
sorry about your eye problems.  Mine seem to be clearing up since my tsh seems to be normal range.  The only problems I still have is the stupid anxiety and depression.  I hate it and am taking medication for it but wonder why I still have it with my tsh normal.  I am glad you are doing well on the vit D.  I took it but at a cost to me.  I'm glad it is over with and I'm in normal range.  She keeps a check on it for me.  I didn't like the constipation.  I don't know anything about the ovarian cyst.  I am long past that state of the game.  It is nice talking to you.  I don't think you can fool around with your synthroid dose.  I am also on 37.5 mcg and that dose seems to do well for me.  Did you have your thyroid radiated.  lol Linda
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Avatar_f_tn
hello
i dont know about ur other food allergies but dont reintroduce the gluten. in the long term it can seriously affect your health and make you at risk for even more medical condtions.
some of which can be deadly.

as for the emotional. u have to have a strong will to be gf and the rest. learn to cook try new foods from different cultures and be creative when u cook make ur own recipes.
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605522_tn?1220135403
Just to mention, gluten is the first thing to eliminate for celiacs, but people sometimes have other food intolerances that show up also.  Like dairy (lactose) is a common one, and some people have corn. rice, nuts, nightshades, or other intolerances that happen.  So just something to watch out for, especially dairy, lactose or casein intolerance.  The celiacdotcorm forum has lots of celiacs with experience in these things.  Also, medicines, vitamins, pills, etc are sometimes bounds together with wheat gluten as a binder.  Kind of like using wheat pates to put up wall paper, it is sticky stuff.  Also, since celiacs are often malnourished/have malabsorption issues, it is probably a good idear to take extra vitamin A, D, E, K an dsublingual vitamin B-12.
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