MONDAY'S RANT

[selmaS]

Rainy days and Mondays always get me down".....so lets rant all day Monday- each Monday a different topic-we will poll for next weeks.....so this week lets do a favorite of mine.....doctors!!


post ur rant and get it out of ur system and enjoy the rest of the week!! and look for a different thread for everyday of the week!!

[shanmomof3]

Good one Selma! The last NL I went to was a complete idiot! He never looked at my list of symptoms until after I got upset and then he just glanced at it! When I asked him about the herniation, he admitted he saw the "ectopia" but he "didn't think I had Chiari"!!!! (Please keep in mind that I was dx with Chiari 11 years ago, so I know what I have!) I also asked him why then was my cerebellum pushed up against my brain stem .... His response, "  It's suppose to be like that!" UUUGGGGHHHHHH!!!!!!!!!! He just wanted to treat me for miagraines!

I really don't think some doctors should be allowed to practice medicine!!! If I had a wand they would have to live with this "mess" for one week and then I bet we would see a difference in the way we were treated!

For all

[shanmomof3]

Sorry hit the wrong button! LOL

For all those of you who don't have a dx yet, I know it frustrating but hang in there! Please, Please, Please listen to selma and keep ALL your records and copies of MRIs! I did not know to do this 11 years ago so all of my records are GONE!!! Even though I had the dx there is no record of it so I'm going through the same thing the rest of you are! I have come to realize and agree with selma that you must go to a Chiari specialist and not even waste your time with all the other docs!

[selmaS]

Thanks Shannon......

But, I did learn from experience and words of wisdom from other chiarians.

I went to one NL that said U do not hvae chiari...the next one said U do have it, but it is beyond me.....so I went to TCI where I knew the drs treated this condition ......

But it is always best to ask for copies of all tests including ur labwork.....

Also, Shane99 suggested taking a notepad with u for questions prepared prior to going and to jot down notes from the visit...but have someone along to to the note taking....we get caught up in what the dr says we tend to forget to write...another idea was to ask to record the visit.

"selma"

[rod44]

“By medicine life may be prolonged, yet death will seize the doctor too.” Shakespeare

[selmaS]

lol....great quote ROD....lol.....

[rod44]

I cant rant because the doc I was with today was very kind to me….o ok just a small one…. lol!!
Doctors please treat the patent not just the illness.
They need to spend more time practicing there bedside manners, well some do anyway
ROD

[Zenji]

I totally can't stand doctors never really liked them much anyway. My grandma worked at Hopkins when I was little so I grew up around "wannabe doctors" Even as med students most of them were jerks. That thought they were so special. I actually wanted to be one of them when I was little. Most of the doctors I have met have this god complex **** going on. I think some of them let the power they have over people's lives get to there head.  I went to several Hopkins graduations and they have this tradition of every year telling all the new docs at grad that MD stand for My Decision. I almost thought that doctors would be more understanding that I am in college and I have stuff that I need to do but unfortunately they don't. I love the doctor I see now. Since she works at a teaching hospital she totally understands that I have a strict class schedule. She did all my paper work for student with disabilities even though at that point in time she wasn't actually my doctor. Even the doctors that are my friends can be huge jerks. I can get myself into way too much trouble with doctors because they get me so angry sometimes and I make sure I tell them when they are being jerks the nurses at least find it hilarious. I actually like this rant stuff I feel better already

[selmaS]

Glad the rant thread helped : )

[selmaS]

here we go another Monday......

[rod44]

God I haaaaate Mondays

[shanmomof3]

Are we gonna stick with docs? I thought you were gonna pick a different one?

[selmaS]

we will add to the thread, since u r the first on ...pick one....what do u want to rant about this week??

[shanmomof3]

Actually soccero brought this up last week ........ so this is for her!

People who dx themselves with chiari after they hear one of us REAL chiarians say we have headaches or forget things or any one of our symptoms! Also people who "down play" our symptoms like they are no big deal!!!

[rod44]

Thanks to soccero and Shannon for raising this…

Anyone self diagnoses of any illness is at best silly at worst Dangerous, CM is an illness shrouded in confusion and frustration not just for us as patents but for the medical community as well, getting information about symptoms that correspond with symptoms you maybe be experiencing is one thing… but to assume because you have symptoms witch are similar to CM  atomically qualifies as a dx is madness, MRI is the  safest way to DX Chiari, yes errors are made and we may rant on about doctors (I know I do :)  but they have the knowledge and support and are at the end of the day like it or not the only ones able to make a proper DX. Having knowledge is important for us as patents so as we can ask the right questions and make an informed decision about our treatment, if you are not happy with your dx because the NS or NL say it is not the root cause of your symptoms then a second third and forth opinion may be required but we need also to be open minded and at least you have proof by way of your MRI scans. Most here in this community are here to get educated about there illness and share there experiences good and bad… so if you are here to self DX then you are being rather foolish.


For those who “down play” our illness shame on you…there but for the grace of god go I.

[shanmomof3]

I totally agree rod! 100%

But this is more what I was talking about...........
Somebody asks you whats wrong or hears that you have Chiari and you explain what it is and then tell them some of the symptoms and they say something like.............
"Oh, I get headaches all the time, maybe I should get checked for that!"

That's the ones that drive me crazy!!!!

[rod44]

Ya it is very annoying and so belittling  of us and our suffering

[selmaS]

good rant topic Shannon.....I also got from my former boss, I know someone else that had that surgery and was better by now.....

He was referring to a knee surgery I had, but my EDS which is chiari related causes me to heal at a slower rate.

That said, who can tell or compare neone's recovery with someone else'e??

Always it is someone on the outside looking in and has no idea.

[Devin215]

Forgive me but I would like to rant (just 1 more) about a doctor.....The first NL I saw who diagnosed my Chiari...The first visit he was good....Not great but said this is what you have (chiari) and this is who you have to see.....Ok well I go to the NS he reccomneds surgery ( taken care of scheduled for October 29) So I go back to the NL after the NS and asked him advice on the headaches....He says " You seem anxious, Lets try something that will calm you down and prevent headaches" I said No been there done that tried keppra, maxalt, and all sorts of other preventatives nothing works....so I asked him for other recommendations not to treat me for  "Anxiety " ( which I dont have) something to help with headaches....he gets ticked off and says lol " Well if you don't want to take more pills then I don't know what to tell you, any further questions should be taken up with your neurosurgeon" What a pig!! I said ok you are helpfull thanks for your time and walked out.

[selmaS]

lol...rant all u need to the thread is going away....lol....

I understand ur problem...meds usually do not have an effect on chiari HA's...so the best thing u can do, is be mindful of what u r doing...listen to ur body and rest when needed....avoid foods that will exacerbate inflamation (inflammation)...see Health Page on Anti- inflamitory foods.....

Be alert to what causes a severe onset of HA and try to avoid.....I know this is nothing new, but it can help, and like I said most meds don't.

Other methods are meditation, resting in a darkened room with candles and music ( or bath w/same).....improve posture.....

"selma"

[rod44]

“Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less, in human beings of whom they know nothing”

[Zenji]

I was told all kinds of things from doctors that i was depressed still do part of me just wants to yell

"hell yeah i am depressed wouldn't you if your ha were basically never ending and you barely get to anything with anyone because you always feel like **** you can't go anywhere because you just get so dizzy that even when you lie down you still feel like you are going to fall down. how would you feel if you were told your whole life your crazy and there is nothing medically wrong with you and then when you finally find out you were right and there is something medically wrong you are still told your crazy."

but that probably wouldn't help much and the doctors would think i am even more crazy. ugh sometimes doctors just get  on my last nerve

[selmaS]

Ok...what do we want to rant about this week...how about meds and how they do not work??

[n40066]

or drs that won't give you meds unless it's an antidepressant because they think it's all in your head!!!

[selmaS]

lol.....BTDT....lol....yup.....

I learned with my first ankel surgery  that the pain meds for that didn't touch my HA's so I knew not to bother with them...

[n40066]

BTDT?  HUH?

[selmaS]

Been There Done That....lol...

[n40066]

duh....must be a blonde thing that i couldn't figure that one out!  lol!

[selmaS]

Nah...it is chiari bcuz u asked me b4....lol......lol.....

[tysgmother]

New here Hi all.  I have met a few of you.  I think I am going to like this part.  ranting.  Pretty good at that when I have worked up a good head of steam and I'm all most full so here goes.  Meds today ha.  First of all if the Dr. happens to give you one that might work the, big question with me is for how long and what will it do to me.  Will my mind stay here on earth.  Well the spiders and kitty cat come back.  (didn't mind the Kitty cat to much) Just don't have a black and white cat that sits on my radio. Will It me knocked out in the middle of the day.  will my heart rate and body go into hyper-drive.  Will I see and hear people who are not there?  And who know what they are doing to the inside of me. And will they work tomorrow or the next day probable not.   I just want something that will take the pain away and not my mind or hurt me some other way.  So most of the time I settle for nothing and I'm turning in to a major Bi**h and I hate it.  I am a nice person.  or should say I was.    Have a Good day all

[rod44]

Pain changes us, we become grumpy,  irritable and hard to live with (I do anyway) we take meds to try and get some relief from the pain and other things that we endure each day…and ya it helps but at what cost to the good health we do have. Its not a good sign when you have to take one drug to counteract the side effects of another or go for LFT’S every month to be certain the said meds are not damaging our livers…..as if we don’t have enough to worry about…..

[jorlex137]

"Here take this topamax", which I call stupamx, and "yes I understand it makes you feel like your in a fog and forgetful but it will help with your headaches"

BUT Doc.....I still have the headaches and now I have a stomach......

"Here is some nexium for the stomach........"

Uhh...still have the headache here.....Hello....anyone listening to me????  Were you not just here for this conversation??
~~~~~~~~~~~~~~~~~~
That's about how my conversation goes about my meds!  I'm still on the stupamax!  I've been given nothing for pain!  

[selmaS]

I was ay a sleep clinic and the dr there wanted to give me meds to help me sleep...neurontin...or the generic gabapentin...I said, well I have IBS and just got it regulated and I am concerened....what side effects does this have.....oh, I saw u r taking Miralax, u'll be fine...................not.......and it didn't help me sleep or with pain....so I had to start all over to regulate the IBS and then I went in the hosp....which is another story...........ugggghhhhh meds

[shanmomof3]

I have one med to help me sleep and another to help me stay awake during the day.... then anti-inflamitory and anti-depressant (my DH calls this my "No kill pill" lol) its low dose so its ok, then a couple of pain meds that I alternate and only take if absolutely necessary, oh and muscle relaxers too!  I'm only 34 this is just too many meds!!!!!

My favorite though is the last NL I saw told to quit takin advil and tylenol because he thought I was taking too much but didn't give me anything for pain!!!! So .... ummm.... doc what exactly is it you want me to do when I'm in pain?????

Thank God for my PCP! Without him I would have gone crazy a long time ago! He does not understand Chiari but he is trying to learn!  Had a different dr. prescribe something for sleep and when I asked my PCP he said, "I don't think you need to take that because it interacts directly with the brain and until we figure your chiari out we don't won't anything interfereing with that!" I just wish he was a Chiari doc!!!!

[selmaS]

Looking for this Monday's topic....what will we rant about this week?

[rod44]

I would like to rant about feeling like I could sleep for a month but cant get even an hour, how I hate not being able to sleep…..

[SaratogaNurse]

How about waking up on the deck of a boat - rocking around the ocean.  It's kinda nice at first...  then it dawns on you that you're actually in your bed, in your room and the only thing actually moving is in your brain.   The vertigo continues and the nausea starts, the nausea continues and the vomiting starts.  The vomiting continues until the Gods finally decide to have mercy.  Then you tell the NL and he says "I don't think this is related to Chiari, you must have the flu."   Well listen up people...  I've had my damn flu shot and I've had the "FLU" about 5 times in the past 2 weeks!  

(No, I'm not pregnant either!  They checked for THAT too!)

Ranting feels REALLY good  :-)

[rod44]

In the past two years I’ve had many diagnoses put forward as the cause of my vertigo and the Nystagmus they include an ear infection, laberintitis, benign positional vertigo and Menears Disease, the Chiari and Syrinx were a secondary finding on an MRI scan and now they THINK this may be the reason, ya I know that feeling of the world spinning, don’t get the vomiting now as much as in the beginning but the spinning is bad at times especially when I cant sleep with is nearly all the time. it’s a viscous circle…..round and round we go…..weee

[selmaS]

Ray, I know what u mean...I had insomnia too...and right now, I am soooooooo tired...and I can sleep now, but I just could sleep all day.....it's too little or too much....can't get it just right : O

[rod44]

Ya I know what you mean, it just screws up your sleep routine if you don’t sleep….says he looking at the clock….03:19am …..yawn…..stretch…..AAAAAAAA…..now where was I? lol!!!  

[selmaS]

u were heading to bed........

[rod44]

ya ok right bossy boots I'm going.....zzzzzzz lol!!! night

[selmaS]

I am not a bossy boots !!  : P

[selmaS]

This week I want to rant about the cold weather...the colder it gets the more I hurt...ne one else?

I was actually wearing gloves inside inorder to type on my computer....and my hands were still cold......ugh

[lu7997]

yes I have noticed that the colder it gets the worse I feel.  I was lucky with a warmer weekend, but frost and cold this morning made me jump up out of bed from pain.   well I have also found that the cold in my hands and feet are not going away with blankets or anything else.  I sweat out my family and yet my hands still feel cold (at least to me)  I am claiming we all move to a tropical island and claim it is a medical necessity  what do you thin k?  

[selmaS]

I am with u...I want the warmth....even with think socks and the gloves my feet and my hands were still cold and hurt......

hmmmmmmmm where do u want to go?.....I was in Guatemala, loved it, but they have volcanoes......and they r active...and earth quakes.....

[SaratogaNurse]

I have one last winter in upstate NY then I'm heading back to Santa Barbara, CA.   Brush fires, mud slides, earthquakes, floods....  :-)   it's home and my family is there and I can't wait to live there again.   As an added bonus, I hear UCLA has great Chiari specialists and it's only about two hours away.  :-)

Still have to survive one last Northeast winter!  UGH!

[lu7997]

i am thinking maybe a private island in the Caribbean and we steal our own specialist    and bring them with us.   Then he can prescribe plenty of rest and relaxation and drinks on the beach.

Since this is a dream, let's add the drinks relieve all chiari symptoms and we can actually enjoy the beach : )

[selmaS]

Lu I like the way u think...I have not been on the beach in yrs bcuz I found it very diff to walk on the sand....not sure if I am up to it...but since this is a dream...I will have someone drive me to where I want to sit and relax....lol....

[lu7997]

Selma we will just make sure you get your drink before hand and it is a dream which means we have an ocean from place and no need to walk far : )

[selmaS]

Awwwwwww thanks for thinking about me like that....cool...and on our next trip we can go to the mts in Austria......very nice : )

[lu7997]

Austria   that would be nice.......i have never been there, that is where my great grandma came over here from.   I guess it is beautiful.     maybe once a week we need to all take imaginary journeys..........sometimes dreams with friends can be good therapy even if they remain dreams it takes the focus off of other things and everyone has differnet experiences to add.  : )   just a thought this little fake island was the best thought I have focused on in a long time  LOL  : )

[selmaS]

Sounds like a great idea Lu.....it will be our weekend thread.....lol....

[n40066]

for the next time...bora bora anyone?  and i'll bring the virgin pina coladas for ray!  we CAN'T  forget him and anne!!!

[selmaS]

lol....sounds good : )

[lu7997]

bora bora works for me  lol


i have a great virgin drink I make my girls with sprite and tropical juice mixes........we can make them a special boat drink : )    

[rod44]

bora bora sounds like a surgical procedure lol

[rod44]

A bloody Coke will do fine thanks....on the rocks with an umbrella yum

[lu7997]

that doesn't even sound good Ray..................but what ever floats your boat   LOL

btw  are you feeling better?

[selmaS]

ok...here is the rant thread for this week........I want to rant about the way drs describe "the symptoms".....like tininitus....sounds like when u have an hearing test....um no...it's been a long time, but I do not think what I am hearing is nething like a hearing test....it is constant buzzing that can get louder....and sometimes more like a high pitched ringing......but deff not like a hearing test......y do they use this way to describe it...and how many actually have it, but say no, bcuz the description is not right?

[lu7997]

Docs describe things text book style, they have neither experienced it nor paid attention to their patients enough to better understand things.
  this isnt just for chiari and liek symptoms.   Before I worked for Hospice I worked for a jack Arse of a oncologist who lied to his patients and told them what they wanted to hear to get them on studies so he could make more money.   He never listened to them although they thought he was amazing.   He was amazing cause we the nurses did listen to them and got them the medication they needed.    Every doc needs a good nurse.   They should stop tryign to be god and try being human  maybe they would be better : )

[n40066]

how about when you finally get an appt. to see a real dr....a chiari dr......you go to make your plane reservation because you just saw a really amazing fare....and you can't remember what date your appt. is!  i know i see the dr. on the 4th.......but now i think maybe my tests are to be on the 3rd.   chiari memory stinks!!!!!!  and that's one symptom i REALLY  hope gets better!!!

[ChiariWolf]

Oh don't get me started on this one selma! Rant I may... Below is part of a discussion that happened between me and my 'doctor' about 2 weeks before my eventual dx with Chiari. Later in this conversation I mentioned the word Chiari to him as I'd already posted my MRI results onto this site. You, selma, had responded and asked about any dx with Chiari. The quack, who still to this date has not seen my MRI, blew his top and swore I did not have Chiari. more to that part of the story but I'm tryinnnnggggg to get to sleeep again....

"Really, ok well I'll write you a prescription for ...."  patient says "What exactly is wrong doctor?" Quack replies "Well this prescription should have you up and going in no time" Patient "Well thank you doctor but what is wrong exactly. You see I don't want a pill until you first tell me what is wrong. Let's dx and then I'll take what you say." Quack replies rather irritated "But don't you see that's what we do here." Patient replies "What is what you do, experiement until you find the right medicine and then determine by the medicine what is wrong?" Quack replies "Well yes, that is how doctors help, that's what we do when we don't know what is wrong."

This conversation was one of many... but this one only took place a few short mos ago... Yeah, you sure this thread is such a good idea. For some reason ranting about ignorant cracker jack eating Quacks boils my blood instead of my funny bone.

Wolf

[ChiariWolf]

Ok, one more and I'll shut up.... well maybe.... You see Chiarians are not the only ones with memory issues! Back in 04 at an OR in toledo ohio....

Patient is laying on the OR table, doctor is cutting away. didn't really sound to focused on the job at hand. And the patient knew this because he was not knocked out as they thought. He woke up, and was watching the cell savage machine as well he likes mechanical things and was facinated. Then when he looked down as the doctor was cutting a tumor out of his leg one of the nurses responds "oh, doctor I think the patient is awake!" Doctor [quack in gagb] responds "Mr xxx are you awake? do you feel this?"
What a dweep!

[n40066]

cw~  you're on a roll tonight!  lol!  i love it!!!

[Devin215]

ok maybe that wasnt such a good story to read for someone who is about to have surgery on thursday!!!` ahhh!!! lol OMG

[SaratogaNurse]

WORK - UGH!  

[selmaS]

LMAO....it might not have made u laugh to recall and vent, but it sure made me laugh...lol.....and it is good to get rid of bad vibes.....lol.....thanks : )

[selmaS]

...here is this weeks rant thread...first one can pick the rant topic.....get it all out : )

[selmaS]

Just developing allergies to meds...ugh.....last yr it was oxycotin and now penicillin type antibiotics.....no fun .....I hate all the itching......thought it was better last night...but it all came back this AM.....so back to taking benedryl.....

neone else developing allergies to things u were never were allergic to b4?

[rod44]

Hi Selma,
I have developed a rash on the palms of my hands over the past few months that my NL feels could be due to the Syrinx or some other CM related complication, it is not painful but as I have very little feeling here anyway this dose not surprise me lol. I am due to see the NS tomorrow week so I will say it to him.

this is a first….you complaining…..shocked lol

I hope you feel better soon my friend, keeping you in my thoughts and prayers.

Ray

[selmaS]

Hey Ray I can complain with the best of them,....lol.....I started this thread for  a reason..so I can rant every once ina while : )

[rod44]

Good on ya…..don’t make a habit of it though LAMO

[Prism272]

Hi Selma. It ***** when that happens. Horrible to be that miserable! I hope you get some relief SOON!
I had taken medrol dose packs and vicodin for years when all of a sudden I was ending up in the ER with reactions.
Can't tolerate any of the steroids anymore or anything related to opiates.
With one shot of solu medrol, I itched like crazy from my scalp to the bottoms of my feet for 24 straight awful hours on IV and PO Bennie. Then 2 weeks later I was given my regular pre med of Decadron before a typical 5 hour IVIG infusion and my face blew up with my throat closing and an ambulance was called and I had to be admitted. Scary!
Prednisone broke me out with a red dot rash after that. I looked so funny. But the breathing thing was the scariest.

No, I won't let any doc ever give me any of these drugs again...but I had taken them for years w/o problem. My Immunologist told us he thought it was an immune response to what was happening with me at the time, but who knows?

I wish you an itch free day!
Hugs,
Donna

[lu7997]

just thinking about it makes me itch...........that is no fun when you have to add meds to be able to take other meds.     I really hope you can get some relief.   try cortisone cream too topical   it doesnt have the sleepy side effects that benedryl has

[ChiariWolf]

Well, I'm not normally a complainer but....

I'm developing allergies to the cold. It effects/affects me in very negative ways anymore. The neck cramps are really getting bad so IT must be an allergy to the cooler temps.

I've also determined that I'm extremely allergic to Chiari and it must be annihilated. We must develop a mutant virus what will cause the empathy defunct percentage of the 'medical community' to have our chiari symptoms transferred into their heads for one year. Then the virus will mutate and self destruct once these people learn empathy from the things they have suffered. Yeah... now where are them there test tubes must get to work on this virus immediately!

Wolf

[lu7997]

wolf  that is too great.......there is one way  get them to take topamax and induce migraines in them.     and while were at it  stuff a sock in their foreman magnum and pump there head with extra csf.    

my husband got his first migraine the other day and I think he suddenly got a new appreciation for how I feel.   empathy over sympathy  alwayas better


and I think I have developed an alergy (allergy) to house work.   Yesterday I cleaned the entire downstairs and today I am bad bad bad.........dizzy, pain, pressure, weakness, blury vision with no focus.  (good thing I can type without loooking  lol)

so  I would have to say no more house work.....

[ChiariWolf]

Hummm..... wonder what a little cayenne pepper in an LP would do for the sensations in their head... Also we must find a substance that will show on their MRI as an incidental finding..... That way when we transport this substance into their noggin it won't show on an MRI...

Actually I"m allergic to most antibiotics and some opiads. But perhaps my biggest allergy these days is Chiari and the stupid Be still take it easy thing we're supposed to do post op. Don't worry Selma I'm being good, just don't feel like it today. I've run a woodworking shop on the side with my boys for a couple years. The last few days my mind has been screaming to go do something creative. My wife is saying "we'll I'll help you" she means it but .... some of these dense exotic hardwoods that I use are quite heavy. She can't lift em and right now I know I shouldn't. Thus we'll just work on a way to make this virus a reality! Well actually no guess it's time to pick up my son, maybe I'll ride along and get this dastardly deed out of my head. :-)

[selmaS]

LMAO...CW u always can make me laugh and I am going to hold u to it to be good.

Wow...I didn't know u did woodworking...my Uncle was a wood carver..did beautiful work...was going to carve something for me and he got sick and has since past away.....but he made so many things...I love the smell of wood...do u have a lathe? They fasinate me...but please wait till u r better to get into working....I know how hard it is to not be creative when u r a creative person.....

I hope the ride got all that out...keep the window open...lol

"selma"

[ChiariWolf]

Oh Yes, Selma I've done many things over the years to put food on the table. Some which hopefully will happen again soon. Some of my favorites are custom wrapped fishing rods not just a rod but wrapped artistically, woodworking hey we love making all sorts of things but my personal love is using different contrasting woods to make a few pieces of wood into an artistic useful thing. Most people don't even know that there are over 300,000 know species of wood in the world. Or for that matter how many species of each different sort of tree there are, like one of my many favorites is Purpleheart. Down in the southern states, in the UV, this wood turns a vibrant deep purple. Yet even combining different pieces of purpleheart can give the eyes a treat because there are 27 different known varieties of just this tree and they are each different shades of purple! Before loosening my legs I um well played with electronics for folks and worked on clocks for fun. Worked as an electrician.... miss that more than anything even more than my legs. Racing, 4 wheeling well they used to be fun now that sounds like work. :-) Fishing now that's still fun.......... hummmm must have chiari as I totally forgot where this was going. Oh well, I’ll post it for your laugh until we figure out how and which Dr gets to have the first capisian lp injection.

BTW- Lathe, yes, that is one of the most relaxing things. Looking at an old stump or tree and picturing what's inside and then when you see the grain pop... wow! Now selma you said you where going to hold me to being good! This is not going to do it! Must not remind me of the two lathes and all the exotic wood setting out in the shop. Many bd ft of hardwood just waiting.... :-)
Wolf

[selmaS]

I am still holding u to being good....but, I can't wait to see pics of some of the things u made.....I want to learn how to work on a lathe.... : )

I am sure there is some small project u can do...do u whittle?


"selma"

PS- I am watching  8 )

[selmaS]

Ok posting early so I don't forget...first one can pick the rant for this week

[sheila53213]

My Monday rant today is how inconsiderate and rude NS can be. I feel that they need to be put in our shoes just for one day and see how much pain and discomfort and modifications of our own lifes that we go through on a daily basis. Maybe that would make them think twice before uttering the words...."it's all in your head"...."your symptoms can't possibly be that bad"...."you don't have chiari, you have migraines"....."all your tests came back normal so there is nothing wrong with you"....and my favorite one....."go on an anti-depressant because that will make your symptoms go away".....UUUUGGGGHHHH!
Just once can they maybe take our feelings into consideration before talking and blurting out such nonsense?

Ok I feel better!

Sheila

[selmaS]

Hi Sheila....I think u will get only support of ur statements here...I think we all wish that the drs were a tad bit more understanding....and that they understood chiari more.....but until then it is up to us to educate them in this area.....

There r some really good ones out there....I am sure u will find the NS right for u!!

[selmaS]

ok...posting early so I don't forget.....first one on after me...pick this weeks rant topic : )

[selmaS]

see I forgot this week,.....sorry

[selmaS]

Ok...I am sure someone has something to get off their chest.....come on .....lol....