It happens, I can relate to you not being able to just sit around. It is really hard to not do things, because sometimes you may feel alright enough too which makes it even harder. But every time like clockwork we are down for days after because we do. Its a vicious cycle. I hope you feel better soon. Don't beat yourself up for wanting to accomplish things. But try to tell yourself next time in a positive way why you can not do these things. It is NO FUN being literally sick after even light activity. I hate it too, I am not diagnosed yet, but even if chiari isn't the case for me, my symptoms sure seem to be the exact same. So I empathize with you for sure. ;-) Take care of yourself linnielou, and that goes for everyone else too.
i know for myself i can't accept the fact i'm not me any more. the whole of me pushes myself knowing i will pay for it latter. i don't think anyone knows what we feel
So like us to want to have the independence again of doing what we want, when we want. I understand that! I'm always trying to push it to the point right before it triggers something. I also understand the DH response as well, as that happens around my house too. My DH is always asking me why I just didnt wait for help...in my case its because I'm impatient, or wanting to see if I can still do said task. The beautiful thing about these wonderful spouses is they have our best interst at heart, and are the only ones that truly care when we are feeling bad. With mine, thats also a fault because he feels frustrated when he cant "fix me" and make the hurt go away.
Take it as another lesson learned. I'm sure the emotions will calm down shortly. Praying for the symptoms to calm down as well, and quickly. Hang in there.
Jiggle
Sorry linda i mean...my chiari brain stored u as lisa...
I know how u feel and its definetly not nice.good old friend vertigo just never stops for me and the pain neither.i too feel i cannot be the woman i would like to be.my bf told me yesterday he is taking me to india when i will be good again...i just said then this will never happen :(( dont feel guilty about it.we didnt go voluntary on this journey...and dont move heavy stuff around...u just cant and u shouldnt.cheer up lisa
Sorry Linda hugs and prayers:) I had a more physical 1/2 day at work today and I am feeling it to. I had to move a lot of clothes and put together a new rack and move racks of clothing around the store. My NS told me I will have ups and downs and today I thought man when I have a full day of this I am going to struggle.
Linnie...I know how hard it is not to push thru and do these things....and it does affect our DH's how they show it will be an individual thing for them, but they all do suffer along with us...in a diff way..but they do.
I would never even think to move my living room around, but I have carpet, and large heavy furniture....but, I do have these disks called moving men, that I give my DD to use when I want the room moved...even that may have helped u....
But, u should never do this by urself.....
It comes down to acceptance of what we can and can not do,......