Aa
Admitted to hospital
Got admitted Wednesday night, waiting to see if they up my surgery date.
Really wanted to make it to 04/06, but my legs stopped working for me.
I can feel them just can't get them to move. And still trying to get the headaches under control.
Dawn :'(
Really wanted to make it to 04/06, but my legs stopped working for me.
I can feel them just can't get them to move. And still trying to get the headaches under control.
Dawn :'(
Praying all will go well with your surgery and God will keep you in His constant care. My niece will be going through this surgery on Fri. of this week. She is 36.
I'm so happy to hear you now have a date. We will be with you as you make that big step into surgery. Every thing will go fine. I have you on my heart and prayer's. Best of luck.
Linda :)
Linda :)
Glad that things are coming together for you & that they can do your surgery tomorrow. So sorry that all of this had to happen first, but sometimes it works out for a reason.
I will be praying for you, too. I hope that the surgery gives you relief. It is a long road, so hang in there. We each have different results...be patient and hopeful.
I'm sure you'll have a lot of different feelings & emotions churning in you head today...but just find comfort & peace in knowing that we will be praying for you & routing for you during your recovery. And the people here understand what you're going through. We're now going to tell you that it is just stress :)
I will be praying for you, too. I hope that the surgery gives you relief. It is a long road, so hang in there. We each have different results...be patient and hopeful.
I'm sure you'll have a lot of different feelings & emotions churning in you head today...but just find comfort & peace in knowing that we will be praying for you & routing for you during your recovery. And the people here understand what you're going through. We're now going to tell you that it is just stress :)
Hi everyone,
Looks like everything is a go. Surgery is scheduled for, tomorrow, Tuesday, 03/13 @ 1pm. If they have any morning cancels, I'll get bumped up.
Pretty sure we asked every question possible this morning.
Now just updating everyone, while my husband drives all over downtown Orlando, to get all if my paperwork updated for work, change the date need to do it all over. His employer was much easier and just made the date changes themselves.
This forum has been such a blessing in preparing me. Being able to learn, vent, and everything has really helped to put my mind at ease. Thank you so much!!
Dawn :)
Looks like everything is a go. Surgery is scheduled for, tomorrow, Tuesday, 03/13 @ 1pm. If they have any morning cancels, I'll get bumped up.
Pretty sure we asked every question possible this morning.
Now just updating everyone, while my husband drives all over downtown Orlando, to get all if my paperwork updated for work, change the date need to do it all over. His employer was much easier and just made the date changes themselves.
This forum has been such a blessing in preparing me. Being able to learn, vent, and everything has really helped to put my mind at ease. Thank you so much!!
Dawn :)
COMMUNITY LEADER
Hi Dawn...thanks for the update...glad u r working with PT b4 surgery as well as after .....
I will be posting ur prayer thread...but have u in my prayers already : )
<3
"selma"
Following every step of u on this thread!!! I am happy to see u didnt lose ur humor! Talk to the ns and let no one tell u u are crazy!!! Wishing you the very best from the bottom of my heart!!!!
Well they have cleared me for surgery Tuesday, now I just need to talk to the Neurosurgeon office.
The neurologist that has only known me 3 days now, is trying to talk me out if surgery, he doesn't think Chiari is the cause and went so far as to say, " not saying these symptoms are not real, 'all in your head', but have you thought about seeing a psychologist, you may have some underlining stress that could be causing your headaches.
As for my legs, he doesn't know either, well I guess that is 1 NL I won't be setting up any follow-up consults with.
I do have a degenerated disc at L5-S1, that I have been dealing with it for 10 years now, but the hospital NL, doesn't seem to think that is causing any of my problems either.
Gotta wonder what he does know?
I have been improving with the PT, and made it out of my room and a few doors down. They know about Tuesday's surgery and said they will be working with me each day it is funny that I am actually happier to see them, then the NL.
My nurses get a laugh each time the techs panick about the heart monitor, I have learned not to put my tens unit next to it, apparently it really messes up the signal. Thought my heart rate was 140. Just now the nurse came to check on me, the techs were not getting any signal, in no my heart stopped and I am just laying in bed typing an update. Oops I killed another battery, they just changed it yesterday, that was quick.
Thanks for all the thoughts and prayers.
Dawn :)
The neurologist that has only known me 3 days now, is trying to talk me out if surgery, he doesn't think Chiari is the cause and went so far as to say, " not saying these symptoms are not real, 'all in your head', but have you thought about seeing a psychologist, you may have some underlining stress that could be causing your headaches.
As for my legs, he doesn't know either, well I guess that is 1 NL I won't be setting up any follow-up consults with.
I do have a degenerated disc at L5-S1, that I have been dealing with it for 10 years now, but the hospital NL, doesn't seem to think that is causing any of my problems either.
Gotta wonder what he does know?
I have been improving with the PT, and made it out of my room and a few doors down. They know about Tuesday's surgery and said they will be working with me each day it is funny that I am actually happier to see them, then the NL.
My nurses get a laugh each time the techs panick about the heart monitor, I have learned not to put my tens unit next to it, apparently it really messes up the signal. Thought my heart rate was 140. Just now the nurse came to check on me, the techs were not getting any signal, in no my heart stopped and I am just laying in bed typing an update. Oops I killed another battery, they just changed it yesterday, that was quick.
Thanks for all the thoughts and prayers.
Dawn :)
I am so sorry it is taking this to get your surgery moved up. I am glad that Tuesday you will finally be getting the medical intervention you need. Lots of prayers coming your way:)
Lots and Lots of prayers for you and your family and everone handling your care. Thanks for keeping us posted, and like Selma said, imagine we are all there with you, because at heart ...we are <3
May i ask...as my legs are very affected too.did they give it a name???like ataxia??i understand if u r too exhausted and busy to answer!!! Ur story touched me and i am happy you giving us updates. Loads of love going out to u and ur family...the baby steps will get bigger for u one day...u r a real hero...keep fighting
Wishing you a fast, full and pain free recovery Dawn.
Keep those baby steps going :)
Ray
Keep those baby steps going :)
Ray
Made it through the last 2 MRIs, hate how they put me in more pain, but maybe the Neuro unit will have the answers they are looking for.
They have at least found a better pain management cycle of medicine, I keeping my food in my stomach now, that was really aggravating my headaches. And I got my 1st walker lesson got from bed to chair with assistance, talk about baby steps.
Thank you all for the continued prayers.
Yes Selma, my husband Steven should be able to post updates, if and when I am unable to.
Dawn :)
They have at least found a better pain management cycle of medicine, I keeping my food in my stomach now, that was really aggravating my headaches. And I got my 1st walker lesson got from bed to chair with assistance, talk about baby steps.
Thank you all for the continued prayers.
Yes Selma, my husband Steven should be able to post updates, if and when I am unable to.
Dawn :)
COMMUNITY LEADER
I will post a prayer thread for u, but am praying for u already.
Do u have someone to post updates on ur post op progress?
Thank you for all if your thoughts and prayers.
2 MRIs down, brain & cervical, no changes, good news since they were looking for signs of a stroke.
Tonight they will MRI the rest of my spine.
Surgery is bumped up to this Tuesday, so long as the neuro unit clears me of any surprises.
Dawn :)
2 MRIs down, brain & cervical, no changes, good news since they were looking for signs of a stroke.
Tonight they will MRI the rest of my spine.
Surgery is bumped up to this Tuesday, so long as the neuro unit clears me of any surprises.
Dawn :)
Poor thing...you are def in the right place! Just get it taken care of!
Saying a prayer for you!
Heather
Saying a prayer for you!
Heather
COMMUNITY LEADER
Dawn...sending u <3, (((hugs))) and prayers...imagine us holding ur hand...we r all with u in spirit.
"selma"
Sounds like they need to move things up quickly. Praying for you and your family. Keep us posted.
So sorry to hear where you are at right now, but I pray you will get the surgery that it sounds like you need. Your in my Chairian prayers.
Linda :)
Linda :)
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