I am a member of Avery’s Angels, an NPO created for Gastroschisis research, awareness and support. We came upon everyone's information and wanted to reach out to you all and let you know that we are here to help.
You are not alone. The CDC reports that one out of every 2000 babies in the US is born with gastroschisis. We have read about your stories and want to offer our support in anyway we can. We have access to medical information from various accredited hospitals such as UNC (which leads the east coast in research and repair for gastroschisis.) There are medical physicians and specialists that we can put you in contact for the best possible care practioners in your area, if you still have any unanswered questions.
Our most important and immidiate function is support. We have a list of parent-to-parent support persons whom you can contact 24-7 via email, phone or possibly even face to face to help you. There are prayer lists as well or an occasional email or phone call check in. There are families in many different parts of the journey, newly home, living with the disease and affects for the past 3-21 years. We can link you up!
We're excited to find this site and parnter with it's endevors to supply all families with comprehensive medical information and support on gastroschisis! Every effort helps! We hope to be an umbrella site to direct families to the information that they need.
There are so many ways to get involved as well, nothing is too small. Please also contact me at the email listed below if you are interested!
You can learn more about us at our Facebook page and causes Avery’s Angels NPO, follow us on Twitter at 4gastroschisis and until our websites gastroschisis.org and averysangels.org is fully up (both sites are under construction) you can read about our creation and purpose at angelaverysmommy.blogspot.com
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