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Terminal ileal thickening
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Terminal ileal thickening

Dear Dr. Pho:

In May 2009, I had an abdominal CT that showed a suspicious thickening of the rectosigmoid junction and left axillary chain lymp node measuring 1.3 cm in size, I had a colonoscopy that was for the most part negative, although two polyps were removed.  Since this past Saturday, I've felt nauseated and have experienced RLQ pain, went to PCP had pelvic exam performed (no pain in ovaries, UA was negative), went for STAT CT, CT was negative for appendcitis, pancreatitis, hydronephrosis, etc., showed terminal ileal thickening (nothing about rectosigmoid junction); impression states, "Terminal ileal thickening may represent Crohn's disease although it is nonspecific and needs to be followed to exclude lymphoma.  This is a new finding since 5/26/09."  When my doctor called Monday night with the results, he told me, you have either Crohn's or possibly lymphoma, I was floored and didn't sleep all night.  Went for a follow-up yesterday, PCP examined lymph nodes and said they were palpable but normal; wants to wait and see.  I'm not comfortable w/that since I have primary biliary cirrhosis, Lupus, Rheumatoid, Sjogren's, and chronic Epstein Barr virus, went to GI doc and am having capsule endoscopy on Friday and had IBD panel drawn today.  Is there a need to worry about lymphoma?  Wouldn't Crohn's have shown up on my colonoscopy (terminal ileum was fine in May)?  Thank you for your time.
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