I am a kidney transplant recipient (over 10 years ago) who is relatively healthy. Started having nausea & diarrhea over the summer 2007, was hospitalized for dehydration and had many, many tests for all sorts of exotic causes, all tests, came back normal. Have had 3 colonoscopies 1 endoscopy, 1 small bowel xray, no resolution. Only found at one point elevated parathyroid
, which has since gone to normal after short couse of Calcitriol. Dr. thought CellCept was causing diarrhea so they switched me to Myfortic (entereic coated version) I also take Prograf & Prednisone for immunosuppression. Post diarrhea, I get swollen
. This has been going on for months and I am at wits end. Anyone else experience anything similiar? I realize the transplant is a little challenging here but anyone who has experienced chronic diarrhea with or without the joint pain, your experience might be helpful. Thanks
I have this exact same problem! I haven't had an organ transplant. However, I've had the cronic (chronic) diarrhea, nausea, and joint pain (bad in both knees) on and off for about a year now. I've had both a colonoscopy and endoscopy and my small bowel xray is scheduled for a few weeks from now. June 5 I ended up in the hospital after my fever got up to 104 degrees F and the stomach pain and nausea got too bad. I had elevated CRP levels (some protein in the blood which indicates infection) normal is 4.9-6.0, mine was over 110. They chalked it up to a colon infection caused by maybe stress or something. After a bout of antibiotics I was better. It came back exactly a month later and gave me the same antibiotics. The small bowl xray is scheduled for a few weeks from now...I don't think they will find anything again.. I don't know what I'm going to do if they can't figure this out. I can't keep living like this. Hope they figure yours out too. Best of luck.