infant failure to thrive

i have an 8 1/2 month old baby  daughter.  she has a chromosonal translocation, and was diagnosed with  severe acid reflux and failure to thrive by both her gi doc, and her peditircian. she is currently on a 22 calorie die per bottle  of neocate infant powder, and beech nut babyfoods.( i was told specifically no gerber). we have done nuclear medicine to confirm her  stomach is not emptying properly. she takes regailn 4 x aday 20 min before a feeding, and also takes prevacid and milk of magnesia.  everyone is stumped as to why she is not gaining weight, but is grownig lengthwise. she was 6 lbs 13 oz at birth, and is currently 12,9 lbs and gets weight checked every 2 weeks.  i was told we are going to have to use either a ng tube, or a stomach feeding tube if she does not gain weight soon. any suggestions of how to get calories into her?

[patient915]

Welcome to the gastroenterology community!  I think getting a NJ tube or a GJ tube would be the right option for her.  Both an NG tube and a stomach feeding tube (G tube) feed the stomach and you said that her stomach is not emptying properly (called gastroparesis).  With a NJ tube, the tube goes past her stomach and into her small intestine.  With a GJ tube, there are 2 ports, one leading to the small intestine and one leading to the stomach.  I think she needs some sort of feeding tube, but I think that she really needs the food to not go into the stomach, but to go into her small intestine.