what is post interferon syndrome

[gibsongal]

just saw otto post on the other thread.. was your treatment harder  for you than other people.?

[Bruin1903]

Thanks once again Frank........will check  Jaynes's sites out.
Clearly the thing to do is to reduce inflammation by whatever method possible
Currently for me that means cutting out all inflammatory foods , dairy, gluten, ,
eating a lot of raw food, juicing and so forth.
I am bored with being semi disabled...it is very isolating and my business
needs attention I am unable to give it.....Getting well is all that matters !

Bruin

[Frank J. Perrotta]

Here is the update I wanted to give you on the LDN site...

There isn't much specific discussion on HepC and LDN. There is a lot of bickering over what is the correct this or that but do pay more attention to one poster, a UK poster by the name of Jayne. She has her own site which I also recommend - http://www.ldnnow.co.uk/1410.html

Her knowledge is really amazing and very up to date while many other posters are posting info that is very dated and will not change! Jayne is a real fighter for the truth.

frank

[Frank J. Perrotta]

I think I forgot the site! I am really fatigued to day!!!

http://www.lowdosenaltrexone.org

nite all. f

[Frank J. Perrotta]

Bruin, I am so happy to help out.

MedHelp has been here for me with so many members helping me so I am just passing it on.

Here is the site and if you go down a bit you can see the box where you can put in your email to join the Yahoo Group for ldn.

I was going to write a bit more but really have to get a bit of sleep right now…

Sounds like you have some exciting experiments ahead. I will post a bit more about the ldn site soon, frank

Oh, nearly forgot! I can't believe you actually got a positive on the CPR test! My GP said that test is nearly impossible to get a positive YOU MUST BE ONE INFLAMED blankety blank, lol.

[Bruin1903]

Cannot overstate how valuable your injunction to be aggressive for
yourself is. It is inspirational to connect with people on here who
are bravely doing it and being generous with what they have gleaned on their journeys. I would love to get good info on LDN and will be talking to my
GP when I see her next week about getting a prescription. I
When I did not get any better after finishing the treatment I thought I must
have something awful wrong with me and got a battery of tests...the only
one that was elevated was CPR...think have the initials right ? Which measures inflammation in the body....this explains a lot. Will keep
fighting the good fight....Thanks Frank

[Frank J. Perrotta]

I know how you feel.

I guess I am lucky because I had a great psychiatrist who got me on a stimulant that, for me, has zero side effects and has been a miracle for me... it has changed me from a zombie to at least getting six or more active life a day.

Vyvanse (Elvanse in the UK) is for people/kids with ADHD but if you dont have ADHD it is a stimulant. Wikipedia has an excellent article on it. A lot of the article is only on stimulants not on this specific medication so make sure, if you are interested, read thru to the specifics of this med. I am on the lower dose of only 30mg.

All that being said if I had any kind of stressful trigger it would knock me out!

That is where I found that LDN has helped immensely! I can have a horrible stress trigger and continue on! This started within the first week of using LDN. I wont go into the details, I have posted it else where on here, but my mother was left to die by a rogue nurse at her nursing home! That was at the same time that I started LDN and I am very thankful that I was able to carry on with it all...

If you do attempt to start LDN the MAX is 4.5mg but you may not even need that dose. I think I started at 2mg and am now at 2.5mg and I am not sure if I will increase to 3 or not.

The one big side effect is very crazy dreams. Many say that you MUST take LDN at bedtime but this is bull. I started taking it at bedtime but had crazy dreams and couldnt sleep. Kept waking up. People posted that it was fine to take upon waking up and eventually the crazy dreams ended and I am still getting the benefits.

Of course, after being on INF/Riba for 72 weeks and suffering for a decade I don't expect LDN at 2.5mg to clear my body of the inflammation for a LONG TIME! Maybe years!

Let me know if you are interested in the largest Yahoo forum for LDN. It is very informative but again, there is a lot of crazy info going around.

Let me know if I can be of any other help. frank

btw, many may find all this rather aggressive and it is. Living a decade with Post-Interferon Syndrome has taught me to be very aggressive! If anyone with PIS is waiting for Big Pharma to come up with a pill to cure PIS don't! A "Syndrome" cant be cured with a single pill by definition! I am not saying do exactly as I do… every person has a different chemistry. I am saying be aggressive for yourself because no one else will.