Aa
what is post interferon syndrome
just saw otto post on the other thread.. was your treatment harder for you than other people.?
I have managed to order some Del Immune V which is great and seeing GP
next week. Trying to remain optimistic but feel if I have lost myself and
doing even ordinary things is hard. You think the LDN is helping you ?
Onwards and upwards.....Bruin
next week. Trying to remain optimistic but feel if I have lost myself and
doing even ordinary things is hard. You think the LDN is helping you ?
Onwards and upwards.....Bruin
Bruin, I am glad that you found my post useful.
If you are not able to find Del Immune V in the UK and unable to afford it from the states...
#1 please contact CoWriter and see if she can suggest another brand of the probiotic in the UK/Europe (the probiotic is "lactobacillus rhamnosus").
Concerning LDN... in some ways I am a bit happier that I could not find a doc to write me up for it. Now I can make my own dose and change it when I need to.
Like I mentioned above I am also lucky that my GP is with me on all this so he can keep tabs and check it all. The best of both worlds.
p.s. Someone must have heard your words about my stressful times... maybe my basement furnace/water heater hell on earth has been resolved! I am always an optimistic realist but this Hell On Earth has been going on since mid-March with a lot of lies so I am NOT holding my breath but am still being optimistic that it will all work out for the best.
good luck in the never ending goal and fight for a better life! frank
If you are not able to find Del Immune V in the UK and unable to afford it from the states...
#1 please contact CoWriter and see if she can suggest another brand of the probiotic in the UK/Europe (the probiotic is "lactobacillus rhamnosus").
Concerning LDN... in some ways I am a bit happier that I could not find a doc to write me up for it. Now I can make my own dose and change it when I need to.
Like I mentioned above I am also lucky that my GP is with me on all this so he can keep tabs and check it all. The best of both worlds.
p.s. Someone must have heard your words about my stressful times... maybe my basement furnace/water heater hell on earth has been resolved! I am always an optimistic realist but this Hell On Earth has been going on since mid-March with a lot of lies so I am NOT holding my breath but am still being optimistic that it will all work out for the best.
good luck in the never ending goal and fight for a better life! frank
Frank, thank you for long and very helpful answer. I have looked up
where to buy Dellimune V and can only find it in America.I am in UK.
I definitely feel as though my brain and body is inflamed and have chronic
fatigue syndrome. Like you I felt strong before treatment and disabled
now, altered in energy and personality. I will see my GP regarding LDN
and get some Dellimune V. Do hope your stressful period is concluding and very much appreciate your input.
best wishes... Bruin.
where to buy Dellimune V and can only find it in America.I am in UK.
I definitely feel as though my brain and body is inflamed and have chronic
fatigue syndrome. Like you I felt strong before treatment and disabled
now, altered in energy and personality. I will see my GP regarding LDN
and get some Dellimune V. Do hope your stressful period is concluding and very much appreciate your input.
best wishes... Bruin.
Hi Bruin, I know it may sound crazy but I use wikipedia.org as one of my main sources. When I looked up NADH it said that it looked promising as a binder or delivery system for other medications at this was being researched right now... well that is how I remembered it all... the article was very scientific and I couldn't really understand it all.
I don't think there was much evidence for NADH for it as a simple supplement.
I was waiting on Dee to get her opinion on a probiotic that I had started about two months ago. Dee just started it and, though we are both under stressful conditions we are feeling some good effects of this probiotic.
We have on this MedHelp.org a very important researcher! Cowriter. She suggested that I may want to try Dellimmune V as it should help with my chronic fatigue syndrome.
I was totally shocked by even the first capsule. I didn't know what to do with the extra energy. This happened the next day and every day that I took a cap. I was totally shocked.
I have had to nap after my 72 weeks of INF/Riba about a decade ago. I am still napping but much less and this may be out of habit. Also, I have been under an extremely stressful situation for over half a year and it may be just coming to an end but not sure...
Also, as the Mayo Clinic is what has brought us the world standard definition of Post-Interferon Syndrome they have also brought us the only treatment that we know of... and that is Low Dose Naltrexone or better known as LDN. I am so lucky to have a GP who finished his training at a Mayo Clinic and he was able to verify that LDN is the treatment for PIS. There is so much mis-information about LDN all over the place and it is very difficult to get a script for... my doc, by law, cannot not write one, and the pain doc who said she would broke that promise so I had to order it overseas by a trusted source...
I have been on 2.5mg since Dec 2014 and am sure it has helped me but this is a long term treatment to reduce the inflammation throughout the body including the brain - btw - for those who suffer chromic fatigue syndrome the Japanese have found that inflammation in the brain is probably the area that causes CFS! and LDN crosses the brain barrie
Cowriter recommends LDN, Dellimmune V - which so far I am just amazed with - and we should be very lucky to have her and her partner writing their help.
p.s. Cowriter has a journal talking about some of her research http://www.medhelp.org/personal_pages/user/568322
I don't think there was much evidence for NADH for it as a simple supplement.
I was waiting on Dee to get her opinion on a probiotic that I had started about two months ago. Dee just started it and, though we are both under stressful conditions we are feeling some good effects of this probiotic.
We have on this MedHelp.org a very important researcher! Cowriter. She suggested that I may want to try Dellimmune V as it should help with my chronic fatigue syndrome.
I was totally shocked by even the first capsule. I didn't know what to do with the extra energy. This happened the next day and every day that I took a cap. I was totally shocked.
I have had to nap after my 72 weeks of INF/Riba about a decade ago. I am still napping but much less and this may be out of habit. Also, I have been under an extremely stressful situation for over half a year and it may be just coming to an end but not sure...
Also, as the Mayo Clinic is what has brought us the world standard definition of Post-Interferon Syndrome they have also brought us the only treatment that we know of... and that is Low Dose Naltrexone or better known as LDN. I am so lucky to have a GP who finished his training at a Mayo Clinic and he was able to verify that LDN is the treatment for PIS. There is so much mis-information about LDN all over the place and it is very difficult to get a script for... my doc, by law, cannot not write one, and the pain doc who said she would broke that promise so I had to order it overseas by a trusted source...
I have been on 2.5mg since Dec 2014 and am sure it has helped me but this is a long term treatment to reduce the inflammation throughout the body including the brain - btw - for those who suffer chromic fatigue syndrome the Japanese have found that inflammation in the brain is probably the area that causes CFS! and LDN crosses the brain barrie
Cowriter recommends LDN, Dellimmune V - which so far I am just amazed with - and we should be very lucky to have her and her partner writing their help.
p.s. Cowriter has a journal talking about some of her research http://www.medhelp.org/personal_pages/user/568322
Glad that you managed to get Cerefolin and it is working for you Frank....is NADH a blind alley as far as supplements go ?
am waiting on Dee about some data...
I just started my 2nd month of Cerefolin NAC and am slowly starting to see results of improvements of "cognitive impairment" for which it is made. PIS has given me a decade of brain fog such as forgetting why I sat up! Just horrible. Now I even remember where I put that little thumb drive - where before I would have been searching all day!
It use to be OTC but for whatever reason is not only by script and without coverage is VERY EXPENSIVE! I really fought medicaid to get coverage and was surprised to win after many months!
I have read of and am starting to feel one side and that is a very itchy scalp. I am using Aveeno Anti-Itch which helps and am also lucky that I can keep my hair short...
btw, it is made by Nestle. Oh and it is mostly B12 and another B plus an Amino Acid... I think - but it passes thru the brain barrier...
OK, have to try to get some sleep... Oh, I do think I read that in Europe it is available OTC. f
I just started my 2nd month of Cerefolin NAC and am slowly starting to see results of improvements of "cognitive impairment" for which it is made. PIS has given me a decade of brain fog such as forgetting why I sat up! Just horrible. Now I even remember where I put that little thumb drive - where before I would have been searching all day!
It use to be OTC but for whatever reason is not only by script and without coverage is VERY EXPENSIVE! I really fought medicaid to get coverage and was surprised to win after many months!
I have read of and am starting to feel one side and that is a very itchy scalp. I am using Aveeno Anti-Itch which helps and am also lucky that I can keep my hair short...
btw, it is made by Nestle. Oh and it is mostly B12 and another B plus an Amino Acid... I think - but it passes thru the brain barrier...
OK, have to try to get some sleep... Oh, I do think I read that in Europe it is available OTC. f
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