what is post interferon syndrome

[gibsongal]

just saw otto post on the other thread.. was your treatment harder  for you than other people.?

[scottie24]

I became incredibly sick after treatment, but did not really realize how sick i was first year or two.  Also, inflammatory component to post-INF illness can, i think, cause worsening damage to body (including brain) as time goes on.  

[otterwatcher]

maybe you could talk to his dr about your concerns? I know I wasn't very forthcoming about the problems I had during treatment and men can find it harder than us to admit something is wrong healthwise. I hope he manages to open up- he must know he's not the same as he was pre treatment too.

[marcollee]

My husband was treated for Hep C, 24 weeks interferon and ribavirin. Reached SVR. Treatment finished at end of February 2014. Went through hell with him whilst on treatment, and took a long time for things to get get back to some normality but now we seem to be going backwards. He says he is now over the treatment but I don't think so. He turns really horrible quickly, very much into himself. What he doesn't see is that these episodes are like the bad times on treatment, even his face has "that look". It may not last as long or perhaps be as severe, but not nice all the same. He was not like this before treatment. He is permanently tired, sleeps ok in bed and on the settee!!! On a purely selfish note, I am finding this harder and harder to live with and over the last year I have had many miserable days and I mean many. When asked recently by a health professional how is he now, he just says he is all over it now and if I mention the way he is, he says it is nothing to do with the treatment.

Has anyone else experienced this and any advise how to deal with it, taking into account his denial.

Thanks

[Dee1956]

Hello! You have come to a good place, lots of compassionate helpful people, if you go to the top of the page and click on post a question others will pop in.  WOW! 1999? That was when you had to inject quite a bit of interferon.  I am so sorry for the problems you are having.  If you can post a question, others can tell you what they have tried to make them feel better.  I started with NADH for fatigue brain fog, then probiotics, calcium magnesium for pain,

I recently found that my sugar was too high so I am taking Alpha Lipoic Acid to lower my sugar levels which I found out it a very good antioxidant for the liver.

[robininmd]

I was treated in 1999 with interferon and ribaviron combo and am in the same situation as you.. extremely tired all the time.. feeling like there MUST be something wrong with me... this can't possibly be normal.  But time and time again, my bloodwork comes back normal.  Please let me know if anyone has an answer to the severe fatigue problem.  It is debilitating.

[Frank J. Perrotta]

I had such a great Psychiatrist. He called my mental state "Situational Depression"! Which I thought fit it perfectly.

If I didn't have all this PIS to deal with I wouldn't be depressed... Actually I am sooooo over the depression. I am dealing very well with it now. I have PIS and keep busy, trying not to dwell on it.

It is crazy late now, we have had the worse, coldest March in history and that situation had caused SOMETHING UNMENTIONABLE! lol

another good night all...f