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Is untreated HCV a death sentence?
I have read many posts from people that say if untreated you wll die of complicatons of HCV.  That is not true.  Only 5% get liver cancer and it's hard to tell the progression of cirrohsis especially if your lifestyle is healthy.   I've had HCV for 40 yrs and only stopped etoh 2009.  Stage 0-1.  People are different.  I work in a hosptal ICU, 8 years and have seen 1 liver cancer from HCV and the patient was a heavy drinker.   All the HCV patients I see in the ICU with GI bleeds, cirr. are actively drinking heavily.  I am not saying this virus is a good thing to have, I am treating currently.  I just want people who want to wait for less toxic drugs not to bee so fearful if their liver can wait.
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Luv is a 4 letter wrd.
Can't we all just get along?


Hi Guys @ Gals,

Merry Christmas

Griz
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complications related to obesity, DM, smoking.  These complications include multi system organs failure, sepsis, wounds, CHF,CAD.  I see many people in the ICU with hep c and all of them are drinking alcohol, that's why they are so very sick.  I have seen one person dying from complications from HCV.  This is not a scientific study, just my own small experience with very ill people.
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Are you treating?  Do you have HCV?  Do you live the life of a person sick all the time from Treatmemt?  You totally miss my posts meaning.  I struggled with the idea of treatment or not as many do.  I think I was pretty courageous to do this horrible task.  Not treating for many is not a death sentence, and if I'm not SVR after this I will be one of those people and I hope it's not a death sentence.
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419309 tn?1326506891
No, I do not have hcv, I have never treated, and I am not sick.  Does that make what I have to say any less valid?

My husband struggled with the idea of doing treatment too, and I think he was pretty courageous to do 137 weeks of treatment.

He ended up in ICU a few times during treatment too, but that was far from what I call horrible, I've seen much much worse.  But of course, he wasn't in your ICU, because he doesn't drink, and you only see drinkers in your ICU.

I do not live the life of a person sick all the time from treatment, but my husband is living the life of a person dying from hcv.

As far as the post's meaning, I don't think I missed it, I think I was rather struck by it and it's rather obvious I wasn't the only one.  All the same, I hope that your treatment is able to get you to SVR so that you won't have to endure what folks like my husband and Hector and OH have had to live through -- folks who really understand what courageous means.
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148588 tn?1465782409
Give it the barest possibility that the patients that you see in ICU your particular hospital, in your particular area of your state may not be representative of cirrhotic HCV patients in general and are certainly not an accurate cross section of people posting to this board. There is certainly no 'justice' to this disease. There are some who didn't always lead a clean an sober lifestyle after infection, suffered minimal progression, had  easy tx and are SVR. There are others who did everything right, txd multiple times, and are still infected. Where is the justice in that?
I can somewhat understand the courage it took to re-tx after having such a hard time on your first attempt.
As for eureka, don't even try to compare the pain of watching a loved one suffer to the pain of tx.
I hope your tx is successful and things get better. Take care.
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979080 tn?1323437239
"Is untreated HCV a death sentence?"

Who wants to find out ?
Not me I can tell you that.

b
SVR
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1253246 tn?1332076910
When I was first diagnosed 2 years ago ,did I think it was a death sentence-YES!!!It was then that I found this forum and got educated about my disease and the proper steps to take.
  After being told that I was a stage 0,I knew that I had time to wait for the newer drugs to come out.I think that Judy is just trying to say(especially to the newbies) is that if you dont have considerable damage that you could possibly wait for even newer drugs with little or no sides.
  I also learned that it you have better odds of clearing the virus if certain factors play in-one being little or no liver damage.And age.And I also think her decision to tx was "To get rid of the virus living inside her" I live with that thought every day too.
  Now  after hearing how some are having such a horrible time with the new drugs,I think I will wait some more,basing that on my stage.If it was 3-4 now that would be different.Just my personal opinion     cindy
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1652596 tn?1342015226
"can't we all just get along?"  try to have a great day today, i know i will.  love to all of you.  belle
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979080 tn?1323437239
There is another aspect to postponing tx not just amount of liver damage.
As time goes by one can develope other health conditions that can
make HCV tx much more complicated and/or difficult or even impossible.
There is no better time to fight the "dragon" than when you are strong and
healthy.
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190885 tn?1333029491
one thing for sure...the info and excitement of the up and coming tx without interferon is much greater then 6 months ago or even 8 months ago when many of us set up our lives to tx with triple...that being said ..myself as well as many started triple tx with very little info on the non interferon tx...things are changing so fast...a few months ago i would say to folks tx now if you can with triple...now i would say wait a while if your hep c isn't too bad...i recall so many folks a few years ago and especially last year recommending to wait for the triple tx...now its the new tx without interferon...if judy didn't care about people she wouldn't be spending her time trying to get this point across ...and for the folks with advanced hcv i think we all here feel so sorry for what they go through and wish we could do something to help...i know no matter how much i may have a different point of view then others here i would still hope the best for everyone ..good luck to everyone..billy
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419309 tn?1326506891
"and for the folks with advanced hcv i think we all here feel so sorry for what they go through and wish we could do something to help"
--------------
Thank you working dog, I feel the same way too, but there comes a point in this disease where there is nothing any of us can do to help.  

Though if you read the original post, the rationalization put forth seems to be that you only get advanced hcv if you drink, and that hcv only puts you in ICU if you are a heavy drinker, and that it's not a death sentence otherwise -- both an incorrect and offensive presumption.  

We already have enough false prejudices attached to hcv and ESLD, we certainly don't need someone in the healthcare field further perpetuating false myths about hcv.  And to be perfectly honest, I think those who have hcv and are alcoholics deserve as much caring and sympathy and compassion if they wind up in ICU as those who don't drink, but that's my personal bias.  

I do think discussion about our different points of view can be healthy if we don't accuse others of being nasty; as I said, though I don't agree in the slightest with pcds and her point of view, I do still wish her SVR.  No one should have to die because of this awful disease, whatever might be contributing to the  hastening of liver failure.
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419309 tn?1326506891
" I see many people in the ICU with hep c and all of them are drinking alcohol, that's why they are so very sick."
-----------
I don't find that accurate, caring, or sensitive.  Even after 50 comments, she doesn't see that there's anything wrong with that point of view, so I'll just leave those who agree with her to defend her stance.  God bless all HCVers.
~eureka
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"so I'll just leave those who agree with her to defend her stance."

Thats just it. Her defenders keep trying to put words in her mouth, yet shes made it quite clear what she means........
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What i find odd, right now theres a thread about people joking about those with HCV, people with HCV get outraged over the stigma being attached. Yet when one attaches the stigma that people with cirrhosis or HCC are alcoholics, ones try and defend it...........

Since the ones defending it are lucky and are not dealing with cirrhosis or HCC, just like the ones putting down people with HCV are lucky and don't have HCV.

So i guess if the stigma don't involve you, then its fine???
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I think  that with something so random as the progression of this disease is; one would want to pin it on something controllable like drinking, or lifestyle choice or whatever.  Surely, it is a good idea to quite drinking and drugging if that is what you are doing.  But often if you are so unfortunate as to be selected by the fickle finger of fate, you're hit.  Fate and genes are unfair and unjust.  It just is.  

It is a natural human tendency I think for many to want to blame others for being sick no matter what the sickness; just like blaming the victim of a crime (if they dressed differently, if they had deadbolted the door, etc.).   It is a defense against the hard reality that  we really have little control in the long run, over fate, randomness and life's fortunes.  I just lost an old friend to ESLD from Hepc.  Because we used to hang in the same circles back in the seventies, I figure we probably got the infection from the same source.  I don't think our lifestyles have been that much different over the years since but God/fate/Great Kahuna/Karma took her and left me with f=0.

I don't understand why we try to kill the messenger on these issues?  The fact is that many people really CAN wait.  The problem is that nobody really knows for sure who those people are.   Therein lies the dilemna.  We can play the averages and doctors can make an educated guess and keep checking the bod but that is about it.  Perhaps some of us would like to think we will dodge the bullet if we don't drink a drop, or keep weight under control etc. or maybe even that we won't relapse if we take the pill every day but the plain fact of the matter is these are likely necessary but not sufficient measures.
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I have been waiting 41 years to treat
Found out in 1997 biopsy
Felt my odds as 1b on int/ribo at stage 1 too low
Back to biopsy in 2008 ,stage 2, still low but was waiting for new 3x tx

Now 2011/ still stage 2 but progressing to stage 3
Am ready to commit to 3x tx in January

For "me" the death sentence would be to wait any longer
Am 58, and worry about it daily

Do not want to develop heart disease or cancer or other conditions that would interfere with treatment

Now is my time
And I hope everyone's to be successful and finish 2012 free and clear of hepatitis c

Not sure if this was the thread that my post was deleted from,but hopefully this one will stay up
Wishing all you wonderful brave people
A very very Happy Holidays and Happy and Healthy New Year!
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87972 tn?1322664839
   Last year a 2 to 3 yr old baby boy gave up the fight to (Liver Cancer). He tried different tx and experiments @ a childrens hospitol. His parents have divorced. How sad. Anyone can get L Cancer I guess? He did not drink, drug, smoke nor was he obese.
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Seeing by the amount of posts I imagine  there are many opionions.(I haven"t read the thread yet)

Just to the OP who says "
have read many posts from people that say if untreated you wll die of complicatons of HCV".
-------------------------------------------------------------------
I honesty can not remember ever reading this here.

Will
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446474 tn?1446351282
Since you put this question to Eureka I would like to put in my own two cents also.

"Are you treating?"
I have treated and failed treatment.
"Do you have HCV?"  
Yes, for 40 years.
"Do you live the life of a person sick all the time from Treatmemt?"
No I am living with ESLD and liver cancer. Twp potentially fatal diseases. If I don't get a new liver in the next year or two the odds of me surviving are minimal.

"You totally miss my posts meaning.  I struggled with the idea of treatment or not as many do. I think I was pretty courageous to do this horrible task.  Not treating for many is not a death sentence, and if I'm not SVR after this I will be one of those people and I hope it's not a death sentence."

We understand your meaning perfectly. We that are facing death ourselves or of a loved one are to be discounted and not to be used as a warning to others to take advantage of the best odds ever for curing this disease. Although people may feel fine now that is no indication of the state of a persons liver disease. I had cirrhosis and felt fine. I was diagnosed by accident as I needed a complete blood workup for surgery on a neck cyst. Unfortunately while waiting to try the new DAAs I developed HCC which any person with hepatitis C and cirrhosis has an increased risk. That is why cirrhotics should be imaged every 6 month. Chronic hepatitis B doesn't even require the development of cirrhosis to develop liver cancer. I guess they are all alcoholics too?

"I see many people in the ICU with hep c and all of them are drinking alcohol, that's why they are so very sick."  I have seen one person dying from complications from HCV."

All people with hep C drink alcohol? And that is why they are sick? Then why are you treating if you don't drink?
Fact is myself and many others that are waiting for transplants don't or never have drunken alcohol. We are not obese. We don't have multi system organs failure at least not yet. If we were drinkers or had multiple medical issues we would be listed for transplant.

Your disdain for us with advanced deadly liver disease caused by hep C and the patients are your hospital is blatant. I feel sorry for anyone there that is suffering as you don't seem to have any empathy for others. Perhaps you are burned out. But that is reason your should be allowed to have anything to do with the care of ill and vulnerable patients.

In the future if you plan on dissing people that have to suffer real life and death situations you might want to think first before dumping your ignorant comments with the shield of "I work in an ICU" on a website devoted to the support for persons with all stages of hepatitis C. That contain members would do know something about this disease  and its prognosis unlike yourself.

Hector
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419309 tn?1326506891
"It is a natural human tendency I think for many to want to blame others for being sick no matter what the sickness; just like blaming the victim of a crime"
----------
Just because something is a human tendency, whether natural or unnatural, does not make it defensible, acceptable, nor excusable.
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1747881 tn?1511918860
                                   "judgemental"

"I work in a hosptal ICU, 8 years and have seen 1 liver cancer from HCV and the patient was a heavy drinker.   All the HCV patients I see in the ICU with GI bleeds, cirr. are actively drinking heavily."

                            "a few nasty people ruin this site"

HectorSF  
Oct 08, 2011 .To: pcds.The lowering of platelets is normal during treatment. It is a side effect of interferon. If they didn't drop that would be odd. You have plenty of platelets. There is no reason to be concerned. Platelets help the blood to clot. When you get a cut and stop bleeding it is because platelets gather are the cut and stop the bleeding. Nothing to do with the flu. As I said this is normal. If this is your only issue with treatment then you are doing very well.

Although this isn't an issue for you. I would like to point out that
Ibuprofen like other NSAIDs, reduce the ability of blood to clot and therefore increase bleeding after an injury. It also causes kidney problems and fluid retention. These are all issues for cirrhotic patients. That is why people with very advanced liver disease i.e. decompensated cirrhosis/ESLD should not take Ibuprofen or any NSAID. People with cirrhosis should only take Tylenol for mild pain relief.

Best of luck with your treatment!

Hector .
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1747881 tn?1511918860
By pcds | Sep 24, 2011
12 Comments  .Deciding whether to treat? Geno 1.For those of you out there wondering whether to treat now or wait, I went through this debate myself, so some thoughts that may help you decide.
Age.  I just turned 59, this is hard on me, so the younger you are the better you may cope with treatment.  I'm in good shape, but the years make it more difficult I'm sure

Health.  If you have no current issues besides the HCV, then it might be a good time to treat.  You never know what might be coming up especially if you're over 50, that's when the machine starts to breakdown.  The doc had found a nodule on my thyroid before I started treatment, it turned out to be nothing, but it could have stalled my treatment for HCV.

Medical coverage.  I see the future only getting more difficult for us to get good coverage.  If nothing else it will cost you more in the future most likely.  So if you have good coverage through work it may be a deciding factor.  As far as medicaid the future is truely grim.

Current treatment vs upcoming tx.  It took 15 yrs for Telaprevir to hit the market.  There is new stuff on the horizon with less side effects, very very tempting especially if your liver is in good shape.  But there are no guarentees when it will be available.  The new meds now are powerful, but it's really been tough for me but I'm glad I just jumped in, took the plunge and feel my future will be bright.
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Just because something is a human tendency, whether natural or unnatural, does not make it defensible, acceptable, nor excusable.

*****

It makes it forgiveable because it is something that everyone has a tendency to do and often does do.  If not regarding HepC, then with regard to a host of other occurrences.  It might be helpful to remember the saying "To err is human.  To forgive, divine".  
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1669790 tn?1333666195
"It is a natural human tendency I think for many to want to blame others for being sick no matter what the sickness"
-------------------------------------------------------------------------------------------------
I'm not sure why you would feel compleled to blame others for your sickness, but I've never blamed anyone else for my HCV.  I take full responsibility for my actions and try to take very careful consideration for all when posting on this forum.  I've learned many things on this forum, but probably the most important is to consider the full audience when posting and be willing to stand behind what i say.  
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419309 tn?1326506891
"something that everyone has a tendency to do"
---------------
And that makes it beyond reproach? Maybe I'm associating with the wrong people... I don't see everyone around me laying blame on others for being sick, or blaming victims for the crime.  Is it acceptable to you that folks working in our medical or legal system have and practice such tendencies?

Because someone is forgivable does not mean they are above being pointed out the error of their ways.  I err often, and try to forgive, but will never claim to be divine.
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1931045 tn?1323229142
What comes to my mind - is not the why or how of the HepC - or the who.

It's the same old question of whether the suffering of the treatment will be worth it.  When you and your loved ones and physicians decide the time is right for treatment - then the hard part starts.

I'm now watching my loved one suffer in treatment - the 3rd week of 48 weeks.  No eating, can barely stand up, too weak to move hardly - when before that, he was working 12 hour days - at age 58.  He NEVER drank, but many, many years ago he used IV drugs.

He was walking his dog 4 miles a day, and now he can barely walk to the bathroom.

And we still have to wonder - would he have EVER gotten sick with liver disease?  Apparently his doctors believe the chances are he would have.
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The question that bugs me the most from healthcare workers that are not my treating physician, "How did you get HCV?" you can tell it's out of a judgmental curiosity that they are asking. The truth is I'm one of the 30% that is unsure how I contracted the disease, but just once I'd like to respond with "Does it matter? If I said IV drug user would that make me any less of a human being? That somehow is less deserving of compassion?" The stigma this disease carries with it is awfully hard to take sometimes. Being judged when your down and out already is so cruel. If ur a healthcare worker that's lost ur compassi
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I'd say it's time to change careers
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568322 tn?1370169040
There's a study that was presented at AASLD done on 1832 veterans that showed that 20 years after diagnosis 70% of patients who treated and obtained SVR were still alive vs 35% of people who were not treated or who failed treatment.

http://hepatitisdoctor.com/!drcecil%20copy-1.pdf

Co
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I commend the brave souls whoare able to share their DX-I just don't have the strength/resolve to take o dealing directly w/the ignorance and stigma associated w/HCV. I have kept my DX limited to only immediate family and 1 couple who we are very close to.
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An older ,however very large study (2235 patients), on the likelihood of progression and some factors that are involved. Just one study ,certainly many people would fall outside these parameters.

Will

http://www.mendeley.com/research/natural-history-liver-fibrosis-progression-patients-chronic-hepatitis-c-obsvirc-metavir-clinivir-dosvirc-groups/


Our aim was to assess the natural history of liver fibrosis progression in hepatitis C and the factors associated with this progression. METHODS: We recruited 2235 patients .

We assessed the effect of nine factors on fibrosis progression: age at biopsy; estimated duration of infection; sex; age at infection; alcohol consumption; hepatitis C virus C (HCV) genotype; HCV viraemia; cause of infection; and histological activity grade. We defined fibrosis progression per year as the ratio between fibrosis stage in METAVIR units and the duration of infection (1 unit = one stage, 4 units = cirrhosis).

FINDINGS: The median rate of fibrosis progression per year was 0.133 fibrosis unit (95% CI 0.125-0.143), which was similar to the estimates from previous studies (0.146 to 0.154). Three independent factors were associated with an increased rate of fibrosis progression: age at infection older than 40 years, daily alcohol consumption of 50 g or more, and male sex. There was no association between fibrosis progression and HCV genotype. The median estimated duration of infection for progression to cirrhosis was 30 years (28-32), ranging from 13 years in men infected after the age of 40 to 42 years in women who did not drink alcohol and were infected before the age of 40. Without treatment, 377 (33%) patients had an expected median time to cirrhosis of less than 20 years, and 356 (31%) will never progress to cirrhosis or will not progress for at least 50 years.

INTERPRETATION: The host factors of ageing, alcohol consumption, and male sex have a stronger association with fibrosis progression than virological factors in HCV infection.


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179856 tn?1333550962
Do you have the ability to say I am completely and unirrevocably WRONG and what I said is pure BS? I've been wrong on here before and have always had the guts to say so.  

Remind me if I get ill to stay the heck out of your ICU, I mean If I have a heart attack and they find out I have the HCV antibodies I'm sure my care will be less than stellar as they'll just lump me in with the other dirtbag alcoholics right?

Jez this thread made my heart hurt.
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This thread has become a lynch mob more then a discussion. It's very sad in my opinion. We give people who are very sick or have very sick relatives support and love here, we also do it for people who are treating.

Personally I disagree with some of what judy said (basically the comments about lifestyle and alcohol) I don't think she was saying that the 5% who got really sick were unimportant.

If I had HCC or ESLD or my husband was dying from it I would feel even more emotional about her comments then I already do, and I definitely have very strong feelings, sadness and compassion for those in this situation especially those I am close to here. It could be anyone one of us and we should all remember that. We can be in the 5% (or whatever the heck the real number is) regardless of how well or poorly we have treated our body and liver.

I think Judy's post was not thought out well and emotionally driven from being on treatment and feeling fearful and anxious. Even if her pain can not be compared to the suffering of our dear friends Hector and Eureka she is obviously having a rough time.  I hope she will see that at some point and apologize as Deb wisely suggested. At the same time I believe that returning to the lynch mob is scary. Why don't people just leave it alone at this point.


Prior to this post I don't believe anyone thought of her as an inconsiderate human being or without compassion, hopefully many still don't. I do however believe that many of us have experienced her fear and anxiety of tx and hcv, not uncommon qualities in this group.

-Dave

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Well said Dave, its time to move on.
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I earlier mentioned that I did not think that those older statistics are correct and that when one looks at infection over the course of 30 or 40 years the numbers look quite a bit more bleak.
There are other factors such as co-morbidities and extra-hepatic conditions which are being found either caused or exacerbated by chronic Hep C.
...and then there is the quality of life issue......

BUT.....

When I read the first post, impression was that the OP, whom I barely know was making a statement which I inferred was something along the lines of;
---------------------------------
.....if this is the mortality percentage of the rough aggregate of Hep C infected......does that mean that we all regardless of how we care for ourselves end up with the same outcome; the 5% mortality rate?  
If one takes better care of oneself, perhaps we have better odds, a better outcome; a different outcome than the aggregate of HCV infected, some of which obviously includes people who drink and end up affecting the oft quoted statistics.
------------------------------------------

Given that in the past year..... the cure rate will probably have gone from 45% to 75%.......and given that new, safer easier therapies are within 5 years of us, is it reasonable to wait?  

That latest Abbott trial netted a 90% SVR rate treating geno 1's for 12 weeks without interferon.  This is not isolated; Vertex netted a 90% SVR rate with 12 weeks w/ 2 PI's &SOC.  Pharmasett is working on something that looks easier as well and attainable.  Looks like 90% SVR rate is quite attainable.

I think that the OP was just undercutting the notion that one must treat now or die.  They NEVER said for everyone to wait or that anyone deserved to die, or that 5% was acceptable or that we were all "dirtbag alcoholics:
That was my takeaway.....

willy



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1815939 tn?1377995399
Very well said, Dave.


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446474 tn?1446351282
Thanks all. But these is no need for interruption or translation. The posts are here and anybody can read them for themselves.

The statistics are flat out wrong, the understand of liver disease and its development is pure hookum, and comparing diseases she knows nothing about with "I...didn't know how I would lose more then 6 months of my life.  I don't think it was worth it." Is pathetic at best.  And she has the gall to question Eureka like her 6 months of treatment suffering is the be all and end all of suffering. How embarrassingly rude and callous. And this is someone who works in the care giving/medical field and you would think might know better.

She shows no understanding of true suffering, no empathy toward others, no respect for anyone's elses suffering other then hers own. The amount of self absorption would make Narcissus jealous. Well at sometime it is time to say enough is enough and we are tired of it especially when it comes to someone judging and illness that I have to live with that is beyond her comprehension. If you don't understand something ask about it, before posting your ignorant prejudicial views out as though you have some knowledge of what you speak of.

All of this nonsense would be funny, but I and some of my friends have to live with ESLD and/or liver cancer every day and I find it offensive to go on a medical forum for the discussion hepatitis C amongst fellow sufferers and people who have been affected by this disease and see someone dumping their ignorant nonsense about why people develop advanced liver disease as if it had any basis in reality.

Such statements as "I see many people in the ICU with hep c and all of them are drinking alcohol, that's why they are so very sick." Shows the level of ignorance posted here. Most people are know who have advanced liver disease and so are unable to treat are doing there best to stay alive another day. We live in pain everyday so give us a break. Her words are a hurtful to me and my friends who never know how many tomorrows we might have.

Hector
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There's no pain like my pain....or your pain.....or...oh never-mind.

Mike
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I made the choice to do the Tx because I think there are other effects of Hep c other than death.  I have had friends die and I have watch friends, although still alive, suffer every day. I would like to minimize my possible the suffering. JMHO.
Paul
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419309 tn?1326506891
No one need be sorry, and I know I don't expect apologies. This thread should NOT be about who's in what pain and how much... it should be about differing opinions (is hcv a death sentence and why...), how we arrived at them, and how they compare with each others' views versus the hard reality of accurate medical information.

You are right that we are all here to try and be supportive, but more important than that, at least to me, is that we learn from each other, and try to be as honest and truthful about hcv as possible.  Personally, I have never have been challenged for commenting on this forum because of my own lack of experience with hcv, but there's always a first time :). I stand cautioned that some treaters don't find me qualified to comment.

I think one of the distinctions of this forum is that we try to better each other through self-moderation and education; when one of us, any of us, arrives with wrong or erroneous information, things are usually set right.  Obviously, that isn't always the case, but we try.  Or, at least, I tried.

My comments throughout were driven as much philosophically as emotionally, Dave... I thought it especially pertinent to try to disabuse the OP of her views on how an hcv patient might wind up in ICU -- or worse -- especially BECAUSE she works in the medical field.  Perhaps I should have accorded more tolerance and understanding, particularly since she is in the only state in this country that won't pay for liver transplants, so her exposure and environment probably aren't conducive to a wider perspective.
~eureka
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163305 tn?1333672171
Dave,
A lynch mob? That's seems a bit over dramatic.

It's apparent from Judy's later posting that her intent was to tell others not to act out of fear, that she regrets having done so.
However, she never recants the original erroneous statement.

Personally, I'm fed up with whining.
But, no hard feelings towards anyone.
Treatment is tough. We all deserve a pass :)

Merry jingle bells and a happy SVR to us, one and all.
OH

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Cirrhosis is the primary cause of death related to Hepatitis C. I lived through my livers death, with a transplant in 2001. My doctor wanted me to wait to treat the Hep C, now they want me to treat, because my donor liver has been under attack from Hep C for 10 years and I have Cirrhosis again. Have not had any cancer or any events. I have yet to meet anyone that has had a transplant due to liver cancer, but have met many that had Hep C and Cirrhosis, that lead to transplant.
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1931045 tn?1323229142
I also came on last nite - in a moment of just being angry at seeing my friend's suffering at the moment, and landed on this thread.

I'm not anti-treatment - which, it doesnt really matter if i was or not! - since i was not the one deciding whether to take the treatment.

It was hard for me to come online and search and search when i first heard about this treatment, and to find so much negativity as to "is it worth it?" (not on this site - all over the internet, before i came here) ... as far as "will it even CURE?" and "will this person even ever DIE of the HepC?"  All i could do was talk to my loved one about it and make sure he felt that his doctor was making this decision at the right time.

He's going tomorrow to get medicines to help with all his side effects - so thanks for being here to let me vent.
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1118724 tn?1357014191
Whew, well .. 99 comments! How can I hold back and not be number 100? That's my comment and I'm sticking to it.
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148588 tn?1465782409
All excellent points and very well stated.
Isn't this the type of treatment we normally reserve for salesmen of colloidial silver and discussions about alternative medicine - not one of our own?

http://www.youtube.com/watch?v=zrzMhU_4m-g
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148588 tn?1465782409
BTW, this doesn't mean I agree with much, if anything the OP has stated other than if you can wait, you might want to consider it. - but it's been obvious since even before she started this last tx, that she is 'IFN sensitive'. Maybe I just have a soft spot for people who are able to drag their sorry, IFN soaked @$$es to work inspite of the mental sides.
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419309 tn?1326506891
Funny you should say that... I was getting ready to write a big check for colloidal silver and all kinds of alternative meds years ago, but I wound up here.  If it weren't for the folks on this forum, my husband might have been dragging a blue-tinted a$$ instead of an INF-soaked a$$ to work the last few years :).

I'll go with that as the bottom line:  as long as folks understand abstaining from alcohol is no safety net, on that point I agree: if you can wait, you might want to consider it.  
~eureka
(one more likely to grow a bald spot than a soft spot)
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499388 tn?1209992826
I am not a Dr. I am a CMA but only so a year then left the field. I know nothing, even though trying to look up and understand Hep C. Both of my daughters have Hep C due to drug use unfortunately. They have quit the drugs thank God in past 2 years, seperately. My oldest daughter went to a Dr. and said he said her Hep C was to far gone to treat and gave her two years. I don't know much but I know she is not jaundous and I have read that a percentage don't get Jaundous. She has however developed severe bowel problems, has crazy moods, hurts constantly, tired a lot, the saddest part is that she has given both of her babies, my grand babies to their fathers. I don't know what to think. I don't know if she is being truthful, if she needs a second opinion or if she's just crazy from the Hep C. I do know both of my daughters have it. My other daughter has had it a far less time than my older daughter but has cancelled her appointment and has never rescheduled. I am scared. so scared honestly that I have gotten life insurance on them. Does anyone know if there is a point that Hep C is no longer treatable? My daughter's usually don't tell me if they are sick or what is going on with their bodies because of my chronic severe depression and my health. I need to know something because all I can do right now is think the worst.
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683231 tn?1467326617
Hi and welcome

So sorry to hear of your daughters problems

This is an old post fro  2011. The best way to get your question noticed is to go to the top right of the page select the post a question link you could just copy what you have written that way more people will see your question and you will get more answers.

What kind of do get are your daughters seeing? It sounds like they need to bee seen by a hepatologist associated with a liver transplant center for the newest treatment information.

The doctors are treating people on the liver transplant list so that when they do recieved a transplant they will not infect their new liver. So it is never too late.

It is absolutely imperative they stop using some doctors won't treat and some insurance won't cover the new meds that have been approved in the last year.
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683231 tn?1467326617
Accidentally posted too soon

Just wanted to add I have had hep c for 37 years and cirrhosis for 7 years. I am treating for hep c.

If your daughter has advanced cirrhosis there is still no way she could be told she has 2 years to live. If she is that sick she needs to be evaluated for a transplant not sent off by her doctor with that news that is a poorly informed doctor telling a patient something like that.

Please get them to a hepatogist or at a minimum a gastroenterologist to be properly evaluated. The new treatments can be just 8 or 12 weeks and with limited side effects and most can be cured of hep c

Good luck to you and your family
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