Aa
Week 1 done, 11 to go on triple Tx
So far so good on Sovaldi, Pegusus and Copegus. Get my first cbc in another week, and a viral load count at 1 month. Are there any obvious signs of anemia?
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That is a wonderful gift and i pray you will clear the virus. In Canada, they don't give you Procrit or anything for low hgb. They told me to eat greens, red meat etc. I had 4 transfusions in 6 months and i believe i will have one more and then hopefully with the riba finished, my levels will rise on their own. They did reduce my riba dose in half and was only taking 600 ( 3 pills ) a day. I am still undetected so that didn't affect the outcome. I also take Fera Max iron daily. I questioned the doctor on this as i thought it was bad for liver, but he assured me i needed to take it. Hasnt worked. HGB was 14.5 when i started tx and i get transfusions below 8. It was down to 6.3 at one time. The transfusions only bring it up to 9 each time and then its transfusion time after about 5 weeks. But now that i am so close to finishing, i guess it will all be worth it. The cure is worse than the disease but the new drugs will hopefully be better on the body for the next group of folks trying to kill this virus.
Hi Nan!!! Yes, the last 2 weeks flew bye while the weeks prior seemed to drag. No, the cough is nonproductive and it does not sound like a normal cough. It happens in the morning after he eats and is about to get in shower. Very strange. I too feel it is the Sovaldi. He was taking the Sovaldi at 6 pm. I am so glad it is over. I was getting up at 4:30 am to make sure he had breakfast with his 6 am pills and would prepare lunch for him to take to work!
He had and still has a low HMG but this weeks bloodwork, showed a 1 Point jump up. He started at 17, so to go all they way down to 10, was steep. He is now at 12. One thing is that his ALT went up the last week of treatment and this week is still at 54. I know that is not high for most, but I am wondering why and when he will get to the normal range. Will keep watching that along with his HMG and platelets.
I am so glad to hear your husband is no longer experiencing the HE and that was due to your detective work!!! We can provide this information directly to the FDA, did you know that?? These, if enough are recorded, will have to be added to the Sovaldi labeling as post-marketing adverse events. Here is the URL: https://www.accessdata.fda.gov/scripts/medwatch/
Sending you and your husband well wishes...until we all meet at SVR!!!
Faith
He had and still has a low HMG but this weeks bloodwork, showed a 1 Point jump up. He started at 17, so to go all they way down to 10, was steep. He is now at 12. One thing is that his ALT went up the last week of treatment and this week is still at 54. I know that is not high for most, but I am wondering why and when he will get to the normal range. Will keep watching that along with his HMG and platelets.
I am so glad to hear your husband is no longer experiencing the HE and that was due to your detective work!!! We can provide this information directly to the FDA, did you know that?? These, if enough are recorded, will have to be added to the Sovaldi labeling as post-marketing adverse events. Here is the URL: https://www.accessdata.fda.gov/scripts/medwatch/
Sending you and your husband well wishes...until we all meet at SVR!!!
Faith
Hi Faithdove
Congratulations to your husband on completing treatment. How fast did that go! Hopefully soon he will hear he has reached SVR and this will be a bad memory...
"That cough has to be associated with the Sovaldi, in my opinion, while the fatigue is a Ribavirin adverse reaction."
My husband has been coughing up phelgm since starting treatment. When he was on procrit and xifaxin the phlegm was much worse and he was getting HE continually. Now that he is off the procrit and Xifaxin, the cough persists with much less of the phlegm. It seems to accumulate over days.
Is your husband's cough associated with a clear phlegm that he coughs up?
Nan
Congratulations to your husband on completing treatment. How fast did that go! Hopefully soon he will hear he has reached SVR and this will be a bad memory...
"That cough has to be associated with the Sovaldi, in my opinion, while the fatigue is a Ribavirin adverse reaction."
My husband has been coughing up phelgm since starting treatment. When he was on procrit and xifaxin the phlegm was much worse and he was getting HE continually. Now that he is off the procrit and Xifaxin, the cough persists with much less of the phlegm. It seems to accumulate over days.
Is your husband's cough associated with a clear phlegm that he coughs up?
Nan
Hi! Glad you finally got that rash under control and that the retinal scan was ok!! I kept checking my husband for any signs of rash and would not let him get any sun exposure. It is now one week post EOT, he is still feeling fatigue and that pesky cough. His doc wants me to monitor so he can keep track of when the adverse reactions are gone. His doc has been great and since this is all new to him with the new treatment added for Sovaldi, he is really interested in seeing how things go, plus my husband was his first patient to get this treatment. That cough has to be associated with the Sovaldi, in my opinion, while the fatigue is a Ribavirin adverse reaction. Onward we proceed...hugs....keep in touch!!
Dear Kim,
Glad you are feeling better, it gives me hope.
Dear Kim,
Glad you are feeling better, it gives me hope.
Knew you would get there Sandi, just takes some time. Glad it's over for you, and know you couldn't celebrate EOT. Yahoo and time to start. Now waiting patiently for us all to join the "Winners Circle". SVR12. ..Kim
Just had a post EOT Ophthamology appointment, and all seemed ok. They did a retinal scan before allowing me to do the Tx with Sovladi. He wants to see me 6 month post EOT also. I had no eye issues during Tx, though I know it is a concern. Feeling blessed.
Rash has totally gone away after only 2 days with new ointment. Skin finally seems to be healing. It was amazing how it just didn't want to heal the whole time on Tx.Feeling better with cough going away too.
Rash has totally gone away after only 2 days with new ointment. Skin finally seems to be healing. It was amazing how it just didn't want to heal the whole time on Tx.Feeling better with cough going away too.
I am so happy for you and your hubby, he has had a really tough time with the Tx. You have been a great advocate for him. Yes have to keep drinking the water. You'll be happy to know the appetite returns fairly quickly. The cream I got worked wonders, rash is really subsiding quickly. PCM thought I probably have a virus, but with my compromised immune system they put me on antibiotics so I don't get a bacterial infection. Probably from the crazy weather and fires, smoke in San Diego. Carrying around printouts of EOT CBC and PCR tests to show these docs, as it is all new to them. Make sure you gwt printouts of EOT tests. Have to tell them the whole tale. Everyone is so happy for me though.
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