Aa
Week 1 done, 11 to go on triple Tx
So far so good on Sovaldi, Pegusus and Copegus. Get my first cbc in another week, and a viral load count at 1 month. Are there any obvious signs of anemia?
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That is a wonderful gift and i pray you will clear the virus. In Canada, they don't give you Procrit or anything for low hgb. They told me to eat greens, red meat etc. I had 4 transfusions in 6 months and i believe i will have one more and then hopefully with the riba finished, my levels will rise on their own. They did reduce my riba dose in half and was only taking 600 ( 3 pills ) a day. I am still undetected so that didn't affect the outcome. I also take Fera Max iron daily. I questioned the doctor on this as i thought it was bad for liver, but he assured me i needed to take it. Hasnt worked. HGB was 14.5 when i started tx and i get transfusions below 8. It was down to 6.3 at one time. The transfusions only bring it up to 9 each time and then its transfusion time after about 5 weeks. But now that i am so close to finishing, i guess it will all be worth it. The cure is worse than the disease but the new drugs will hopefully be better on the body for the next group of folks trying to kill this virus.
Hi Sandy. Thinking about you and knowing you will get relief soon. My husband is done with treatment, last pill was on Friday. He has a cough and still very fatigued. His Bloodwork numbers need to get better for the anemia symptoms to subside. He goes in today for EOT RNA PCR and another Chem Screen....hang in...we are in it together. Keep drinking that water to help flush the meds out!!
Thanks Kim. It is hard when I thought that it was 12 weeks, and I really did know it was going to go beyond. I can't imagine this for 48 weeks. I just am impatient to feel better. But really did set aside this year for this whole thing. So just still engaged in the process. Thanks for your support. Sandi
Hi Sandy. Happy that you hopefully will get some relief. Your immune system is trying to find its way back, but the little things keep knocking it down. You've def seen the worst of it so far, I hope. Still feeling stronger everyday and you will too once your body is no longer having to be in the attack mode. Your still going strong........Bravo. Kim
Finally broke down and went to dermatology and got a medium strength steroid cream to help with the rash on my chest, it is so red and itchy. My immune system seems to have taken a dive, have a cough too, going in to see my PCM tomorrow for that. Wish these minor issues would go away so I can feel better.
Hi Kim!
I did see your comment—congratulations on still being UND!
I am 7 days post EOT. Just got back from my EOT meeting with my doctor today—and I am also UND!
The HCV RNA QN test using COBAS® TagMan® HCV, v.2.0 (limit of detection (LOD) and LLOQ is 15 IU/mL) HCV Not Detected.
ALT is 41, AST is 50.
HGB 10.3 / Platelets 139 / WBC 2.4
I went walking at the zoo for the first time in 12 weeks today, and wasn't exhausted at the end. My mental energy is improving all the time, physical energy is improving slowly, really just the last 2 days. Appetite is returning too.
My skin is really giving me a lot of problems this week it seems hyper sensitive. Like it really hasn't healed at all in 3 months. But that should subside as the drugs exit my body, and my blood levels even out. Will go to dermatology if it drives me crazy. Have a follow-up with opthamology later this month too. Will have a 1, 3 and 6 month follow up blood and viral load tests. My doctor will be retiring in 2 months, but will turn me over to a new doc, whom I will meet, next month for follow-up consults, and for yearly monitoring.
You and I and our fellow slayers out there need to now help out livers recover and repair themselves.
Yes hopefully our med days will be over soon, too easy to get obsessive on this website. But I do want to let people know that the treatment really wasn't that bad, (though it was interesting that my doctor was surprised when my husband and I were telling him that each and every time I got the Interferon shot, it would just knock me out for a day or two, not just the first time or two, but every shot).
He said that the Navy was now starting off-label with Sovaldi and Simeprevir for the more seriously ill patients. I thanked both him and his nurse for believing in me that I could do this.
Thank you Kim and all the other dragon slayers on this we bite for you support.
I did see your comment—congratulations on still being UND!
I am 7 days post EOT. Just got back from my EOT meeting with my doctor today—and I am also UND!
The HCV RNA QN test using COBAS® TagMan® HCV, v.2.0 (limit of detection (LOD) and LLOQ is 15 IU/mL) HCV Not Detected.
ALT is 41, AST is 50.
HGB 10.3 / Platelets 139 / WBC 2.4
I went walking at the zoo for the first time in 12 weeks today, and wasn't exhausted at the end. My mental energy is improving all the time, physical energy is improving slowly, really just the last 2 days. Appetite is returning too.
My skin is really giving me a lot of problems this week it seems hyper sensitive. Like it really hasn't healed at all in 3 months. But that should subside as the drugs exit my body, and my blood levels even out. Will go to dermatology if it drives me crazy. Have a follow-up with opthamology later this month too. Will have a 1, 3 and 6 month follow up blood and viral load tests. My doctor will be retiring in 2 months, but will turn me over to a new doc, whom I will meet, next month for follow-up consults, and for yearly monitoring.
You and I and our fellow slayers out there need to now help out livers recover and repair themselves.
Yes hopefully our med days will be over soon, too easy to get obsessive on this website. But I do want to let people know that the treatment really wasn't that bad, (though it was interesting that my doctor was surprised when my husband and I were telling him that each and every time I got the Interferon shot, it would just knock me out for a day or two, not just the first time or two, but every shot).
He said that the Navy was now starting off-label with Sovaldi and Simeprevir for the more seriously ill patients. I thanked both him and his nurse for believing in me that I could do this.
Thank you Kim and all the other dragon slayers on this we bite for you support.
Hi there fellow trooper. Don't know if you read my other post but 4 weeks since treatment and still UND! Hope your energy is getting better as we get further away. Feels soooooo good not to be sick and tired all the time. Still have the dreaded early cirrhosis but my liver has hope. You are a survivor and if we're lucky, may our med days be over. Kim
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