Aa
Womens input, help
Hi all. After 7 days with no DSL in Ocala, Fl. and now it's ship horse's week, I've really missed this site! Have NO time and want to respond to so many. Hope all are well, especially merlino and Child24angel.
I need some women's input here (and the mens views wouldn't hurt, thank you).
I am 3rd shot in, 3rd week. So far, just can't whine much at all. Quite fatigued, but was from hep also, a few headaches from h*ll, few night sweats and, already, a bit brain foggy. Feel like I am ALWAYS stoned, but not the good stoned :) Just NEVER feel normal, good. (as you all know and as even before tx).
While I have EXCEPTIONAL support from my 3 sons, sister, friends, man of 8 years........ I can't seem to make him understand the HARM of me keeping up my normal pace (we are VERY active, social, business busy people) and while he always says "if your not up to it, don't do it"... He KNOWS if I KNOW it needs done, I GOTTA get it done! Tuesday was a 12 hour, non stop day, no nap, no break. Wed., with the 'social' dinner out, a 14 hour day. Sat. (shipping horse's on plane) will be a 20-24 hr. non-stop day! I am also getting very emotional, teary a lot, not Riba ragey (but also 49 probably starting menopause). I need to make him understand that even before this (stage 3 fibrosis) the fatigue was kicking my butt, and now it's worse and that I HAVE to take breaks, naps or it's going to hurt me, my tx, everything! (in a trial, NO 'rescue' drugs). If all goes to the curb, anemia, etc. I am taken off the drugs! He tries to understand and is a very good man, but as we know, if your not going thru it, you just DON'T really get it. ALSO...... sex..... love sex, need sex......just don't seem to want much right now and mainly from being so tired and every muscle in my body aching (as before tx)! And yep, getting that irritating skin , dry feeling there :{ Being a man..... ( no offense guys, love ya' :} he takes it as "I don't WANT him"....and that is NOT it! I wouldn't do Richard Gere (my man :} if he walked in some days, and that is BAD! A few mths. ago you ladies, men, posted to a similar post and it was great replies, so can you do it again? Please, for me :}
P.S. I 'only' have 24 weeks to do, type 2b. So not nearly as much a long haul as some of you (God Bless ya')
P.S.S. I keep getting 'friends invitation' from some on here, I always 'accept' and than it goes nowhere? What does that mean?
Thanks so much and sorry I haven't been here much to boost some of you up, onward.
Your ALL so great.
Love ya' all, Lauri
I need some women's input here (and the mens views wouldn't hurt, thank you).
I am 3rd shot in, 3rd week. So far, just can't whine much at all. Quite fatigued, but was from hep also, a few headaches from h*ll, few night sweats and, already, a bit brain foggy. Feel like I am ALWAYS stoned, but not the good stoned :) Just NEVER feel normal, good. (as you all know and as even before tx).
While I have EXCEPTIONAL support from my 3 sons, sister, friends, man of 8 years........ I can't seem to make him understand the HARM of me keeping up my normal pace (we are VERY active, social, business busy people) and while he always says "if your not up to it, don't do it"... He KNOWS if I KNOW it needs done, I GOTTA get it done! Tuesday was a 12 hour, non stop day, no nap, no break. Wed., with the 'social' dinner out, a 14 hour day. Sat. (shipping horse's on plane) will be a 20-24 hr. non-stop day! I am also getting very emotional, teary a lot, not Riba ragey (but also 49 probably starting menopause). I need to make him understand that even before this (stage 3 fibrosis) the fatigue was kicking my butt, and now it's worse and that I HAVE to take breaks, naps or it's going to hurt me, my tx, everything! (in a trial, NO 'rescue' drugs). If all goes to the curb, anemia, etc. I am taken off the drugs! He tries to understand and is a very good man, but as we know, if your not going thru it, you just DON'T really get it. ALSO...... sex..... love sex, need sex......just don't seem to want much right now and mainly from being so tired and every muscle in my body aching (as before tx)! And yep, getting that irritating skin , dry feeling there :{ Being a man..... ( no offense guys, love ya' :} he takes it as "I don't WANT him"....and that is NOT it! I wouldn't do Richard Gere (my man :} if he walked in some days, and that is BAD! A few mths. ago you ladies, men, posted to a similar post and it was great replies, so can you do it again? Please, for me :}
P.S. I 'only' have 24 weeks to do, type 2b. So not nearly as much a long haul as some of you (God Bless ya')
P.S.S. I keep getting 'friends invitation' from some on here, I always 'accept' and than it goes nowhere? What does that mean?
Thanks so much and sorry I haven't been here much to boost some of you up, onward.
Your ALL so great.
Love ya' all, Lauri
Lauri - Just chill when you need to...
Your body won't let you do more than you can. Period, end of statement... And who knows --- MAYBE you will be able to keep all those appointments.
Keep up on your water - your hydration and your vitamins... Eat healthy - exercise where you can...
But --- if you CAN do it --- GO --- if you can't --- well do what you can.
Honesty is your best policy... Tell everyone that you feel comfortable tellling that --- TENATIVELY --- sure thing! You'll go... But they need to know that you might have to bag out later... or 5 minutes before... And hopefully they will understand.
Let them know you're going through chemotherapy - and tell them --- one minute, you're fine... the next, you're not.
Let them know you love them - etc. But there might *MIGHT* be days you won't be able to make it no matter how much you really want to.
Heck tho --- if you can manage it -- go for it.
Who says everyone has to feel awful?
Hmm?
Good Luck and have so very much fun while you can --- and if you do go down --- remember that there IS an up.
Hugs,
Meki
Your body won't let you do more than you can. Period, end of statement... And who knows --- MAYBE you will be able to keep all those appointments.
Keep up on your water - your hydration and your vitamins... Eat healthy - exercise where you can...
But --- if you CAN do it --- GO --- if you can't --- well do what you can.
Honesty is your best policy... Tell everyone that you feel comfortable tellling that --- TENATIVELY --- sure thing! You'll go... But they need to know that you might have to bag out later... or 5 minutes before... And hopefully they will understand.
Let them know you're going through chemotherapy - and tell them --- one minute, you're fine... the next, you're not.
Let them know you love them - etc. But there might *MIGHT* be days you won't be able to make it no matter how much you really want to.
Heck tho --- if you can manage it -- go for it.
Who says everyone has to feel awful?
Hmm?
Good Luck and have so very much fun while you can --- and if you do go down --- remember that there IS an up.
Hugs,
Meki
Thank you Wyntre, I know I do have to slow down....my superwoman days are for sure on hold! (can I be superhep GIRL?) Very much understand the going into seclusion and find myself looking at caller ID a lot more now....and putting the phone down!
Susan and wyntre..... I am also becoming a bit more of a hermitess! I was very social before even the sypmtoms of hep started 3 or so yrs. ago. Love people and all jobs are with lots of people!
Finding myself staying home, tho actually enjoying it at times, 80% of the time now and now on tx...no choice. Of course the immediate stopping of all alcohol upon dx. also changed much of the going out weekends. Find I don't have nearly as much fun dealing with drunk people when I am sober.LOL! Do NOT feel like the "oh Hi, how have you been" smiling routine! More like "ahhh shut up, don't want to hear your HEALTHY arse whine' feeling going on. LOL!
And I am normally such a compassionate woman:}
Lauri
Susan and wyntre..... I am also becoming a bit more of a hermitess! I was very social before even the sypmtoms of hep started 3 or so yrs. ago. Love people and all jobs are with lots of people!
Finding myself staying home, tho actually enjoying it at times, 80% of the time now and now on tx...no choice. Of course the immediate stopping of all alcohol upon dx. also changed much of the going out weekends. Find I don't have nearly as much fun dealing with drunk people when I am sober.LOL! Do NOT feel like the "oh Hi, how have you been" smiling routine! More like "ahhh shut up, don't want to hear your HEALTHY arse whine' feeling going on. LOL!
And I am normally such a compassionate woman:}
Lauri
These supermwoman stories really have humbled me.
i can barely function and I live with a flock of birds and when they get on my nerves I put them in their cage and throw a blanket over it.!
Seriously, when I moved in May (coz of financial toll of tx) I didn't give my new phone number or email addy to more than a couple of people.
I have the relative luxury of NOT getting over-extended coz I've become a hermitess and no one can contact me. My choice.
it's hard enough to justify going through this cr*ap and all the awful SX to myself without having to explain it to anyone else.
Heck, I can't understand it half the time and I'm the one experiencing it!
I get mad at myslef!
LL, you do have to slow down or your body is gonna take revenge on you. It's not your imagination . . . the sx are rough for most of us. I'm at week 44 of 72 and while most of last week was relatively decent. almost normal, soon as I did the peg and neup I crashed again. Haven't been out of the house in 2 days.
wyn
i can barely function and I live with a flock of birds and when they get on my nerves I put them in their cage and throw a blanket over it.!
Seriously, when I moved in May (coz of financial toll of tx) I didn't give my new phone number or email addy to more than a couple of people.
I have the relative luxury of NOT getting over-extended coz I've become a hermitess and no one can contact me. My choice.
it's hard enough to justify going through this cr*ap and all the awful SX to myself without having to explain it to anyone else.
Heck, I can't understand it half the time and I'm the one experiencing it!
I get mad at myslef!
LL, you do have to slow down or your body is gonna take revenge on you. It's not your imagination . . . the sx are rough for most of us. I'm at week 44 of 72 and while most of last week was relatively decent. almost normal, soon as I did the peg and neup I crashed again. Haven't been out of the house in 2 days.
wyn
D*m......another LONG post above up there. I really do babble!
Extra Note: I am sure you have read here about drinking LOTS of water. A must, but be sure it's distilled or purified water.
Also, I started at tx 2 things....biotin (learned here of course) and B complex. I got the sublingual ones at a health food store. Biotin supposed to help with skin/hair loss and B complex with energy, depression, several things. As a few vitamins we aren't supposed to do lot of, A, Iron.....kind of hard to go with a multi vit.
Lauri
Extra Note: I am sure you have read here about drinking LOTS of water. A must, but be sure it's distilled or purified water.
Also, I started at tx 2 things....biotin (learned here of course) and B complex. I got the sublingual ones at a health food store. Biotin supposed to help with skin/hair loss and B complex with energy, depression, several things. As a few vitamins we aren't supposed to do lot of, A, Iron.....kind of hard to go with a multi vit.
Lauri
Hi Ladies.
GrandmaA, I had slacked on the water a few days.And knowing how blessed I am in type 2 keeps me 'up', specially reading here. All my 'jobs' are very physical work, so simply have to let it go some. Will hurt my pocket some, but I am okay and in a trial so little cost there. The NO appetite for sex (or food, lol) sucks tho. On the massages and infared saunas, I also plan to do a lot of 'cleansing' my body when done, but what is infared sauna's??
Susan, I'd bought the green bottle Gold bond right away, before tx from hearing NYgirl on it. Have coated down every night and no rash. (now, in the past, him rubbing me down, that 'menthol' all over feeling WOULD have resulted in ......ya' know :} now it's "oh your so good to me" and roll over!. poor guy!} I know he will 'get it' at any chance I can muster for lacking so and not whining much. (once he's figured out I DO love him, just not 'it', right now "}
Jacksonp..........hi there. What type, tx are you doing? sounds like this is hitting you like me, okay at 1st than BAM. (read my post to tedinoregon "Oct 2007 Tx" as for what I KNOW I did 'wrong'.) Thought "oh, this isn't too bad" and just broke myself down. It was just a few days between feeling a bit rough to "OMIGOD' , this sucks! I think realizing I CAN'T keep up my pace ( that I love and HATE laying around) and I simply CAN'T do all I do is what caused my teary, crying for 2 days melt.
I hope your husband is understanding and I have had mine (man of several years, not married) read some of these post, than after my melt, talk the other night, he get's it better now. He has been wonderful already, all in our life just need to know how we REALLY feel and even the statements of others here as they say it so well, so they can better understand how to deal with and help us....as we would for them. I do have a great support system, 3 sons I can't praise enough right now, a sister, friends, people at work. One of my customers at 1 job have a girl h*ll the other day.."WHY is Lauri here? She should be home and WHY aren't YOU working for her" and so on. They love me :}
Also, I do 3 'jobs', 2 self emp. and 1 other. This week made me hand a LOT over to others. ( I can NOT get taken out of/off this trial either!) I am a bit 'anal' on doing things right, I have to let that go awhile! I also am always 'saving' an animal or person! Point is, WE also have to let some of that go for now too.As you do a lot of volunteering, can you hand that over to ANYONE? And since you do that, maybe others can volunteer for YOU right now!?
Anyhow, we'll have to keep up on each other. Do read the post to tedinoregon (long tho, I babble!) but it says a lot about what NOT to do NOW.
Have a good day. talk again, Lauri
GrandmaA, I had slacked on the water a few days.And knowing how blessed I am in type 2 keeps me 'up', specially reading here. All my 'jobs' are very physical work, so simply have to let it go some. Will hurt my pocket some, but I am okay and in a trial so little cost there. The NO appetite for sex (or food, lol) sucks tho. On the massages and infared saunas, I also plan to do a lot of 'cleansing' my body when done, but what is infared sauna's??
Susan, I'd bought the green bottle Gold bond right away, before tx from hearing NYgirl on it. Have coated down every night and no rash. (now, in the past, him rubbing me down, that 'menthol' all over feeling WOULD have resulted in ......ya' know :} now it's "oh your so good to me" and roll over!. poor guy!} I know he will 'get it' at any chance I can muster for lacking so and not whining much. (once he's figured out I DO love him, just not 'it', right now "}
Jacksonp..........hi there. What type, tx are you doing? sounds like this is hitting you like me, okay at 1st than BAM. (read my post to tedinoregon "Oct 2007 Tx" as for what I KNOW I did 'wrong'.) Thought "oh, this isn't too bad" and just broke myself down. It was just a few days between feeling a bit rough to "OMIGOD' , this sucks! I think realizing I CAN'T keep up my pace ( that I love and HATE laying around) and I simply CAN'T do all I do is what caused my teary, crying for 2 days melt.
I hope your husband is understanding and I have had mine (man of several years, not married) read some of these post, than after my melt, talk the other night, he get's it better now. He has been wonderful already, all in our life just need to know how we REALLY feel and even the statements of others here as they say it so well, so they can better understand how to deal with and help us....as we would for them. I do have a great support system, 3 sons I can't praise enough right now, a sister, friends, people at work. One of my customers at 1 job have a girl h*ll the other day.."WHY is Lauri here? She should be home and WHY aren't YOU working for her" and so on. They love me :}
Also, I do 3 'jobs', 2 self emp. and 1 other. This week made me hand a LOT over to others. ( I can NOT get taken out of/off this trial either!) I am a bit 'anal' on doing things right, I have to let that go awhile! I also am always 'saving' an animal or person! Point is, WE also have to let some of that go for now too.As you do a lot of volunteering, can you hand that over to ANYONE? And since you do that, maybe others can volunteer for YOU right now!?
Anyhow, we'll have to keep up on each other. Do read the post to tedinoregon (long tho, I babble!) but it says a lot about what NOT to do NOW.
Have a good day. talk again, Lauri
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