Aa
Womens input, help
Hi all. After 7 days with no DSL in Ocala, Fl. and now it's ship horse's week, I've really missed this site! Have NO time and want to respond to so many. Hope all are well, especially merlino and Child24angel.
I need some women's input here (and the mens views wouldn't hurt, thank you).
I am 3rd shot in, 3rd week. So far, just can't whine much at all. Quite fatigued, but was from hep also, a few headaches from h*ll, few night sweats and, already, a bit brain foggy. Feel like I am ALWAYS stoned, but not the good stoned :) Just NEVER feel normal, good. (as you all know and as even before tx).
While I have EXCEPTIONAL support from my 3 sons, sister, friends, man of 8 years........ I can't seem to make him understand the HARM of me keeping up my normal pace (we are VERY active, social, business busy people) and while he always says "if your not up to it, don't do it"... He KNOWS if I KNOW it needs done, I GOTTA get it done! Tuesday was a 12 hour, non stop day, no nap, no break. Wed., with the 'social' dinner out, a 14 hour day. Sat. (shipping horse's on plane) will be a 20-24 hr. non-stop day! I am also getting very emotional, teary a lot, not Riba ragey (but also 49 probably starting menopause). I need to make him understand that even before this (stage 3 fibrosis) the fatigue was kicking my butt, and now it's worse and that I HAVE to take breaks, naps or it's going to hurt me, my tx, everything! (in a trial, NO 'rescue' drugs). If all goes to the curb, anemia, etc. I am taken off the drugs! He tries to understand and is a very good man, but as we know, if your not going thru it, you just DON'T really get it. ALSO...... sex..... love sex, need sex......just don't seem to want much right now and mainly from being so tired and every muscle in my body aching (as before tx)! And yep, getting that irritating skin , dry feeling there :{ Being a man..... ( no offense guys, love ya' :} he takes it as "I don't WANT him"....and that is NOT it! I wouldn't do Richard Gere (my man :} if he walked in some days, and that is BAD! A few mths. ago you ladies, men, posted to a similar post and it was great replies, so can you do it again? Please, for me :}
P.S. I 'only' have 24 weeks to do, type 2b. So not nearly as much a long haul as some of you (God Bless ya')
P.S.S. I keep getting 'friends invitation' from some on here, I always 'accept' and than it goes nowhere? What does that mean?
Thanks so much and sorry I haven't been here much to boost some of you up, onward.
Your ALL so great.
Love ya' all, Lauri
I need some women's input here (and the mens views wouldn't hurt, thank you).
I am 3rd shot in, 3rd week. So far, just can't whine much at all. Quite fatigued, but was from hep also, a few headaches from h*ll, few night sweats and, already, a bit brain foggy. Feel like I am ALWAYS stoned, but not the good stoned :) Just NEVER feel normal, good. (as you all know and as even before tx).
While I have EXCEPTIONAL support from my 3 sons, sister, friends, man of 8 years........ I can't seem to make him understand the HARM of me keeping up my normal pace (we are VERY active, social, business busy people) and while he always says "if your not up to it, don't do it"... He KNOWS if I KNOW it needs done, I GOTTA get it done! Tuesday was a 12 hour, non stop day, no nap, no break. Wed., with the 'social' dinner out, a 14 hour day. Sat. (shipping horse's on plane) will be a 20-24 hr. non-stop day! I am also getting very emotional, teary a lot, not Riba ragey (but also 49 probably starting menopause). I need to make him understand that even before this (stage 3 fibrosis) the fatigue was kicking my butt, and now it's worse and that I HAVE to take breaks, naps or it's going to hurt me, my tx, everything! (in a trial, NO 'rescue' drugs). If all goes to the curb, anemia, etc. I am taken off the drugs! He tries to understand and is a very good man, but as we know, if your not going thru it, you just DON'T really get it. ALSO...... sex..... love sex, need sex......just don't seem to want much right now and mainly from being so tired and every muscle in my body aching (as before tx)! And yep, getting that irritating skin , dry feeling there :{ Being a man..... ( no offense guys, love ya' :} he takes it as "I don't WANT him"....and that is NOT it! I wouldn't do Richard Gere (my man :} if he walked in some days, and that is BAD! A few mths. ago you ladies, men, posted to a similar post and it was great replies, so can you do it again? Please, for me :}
P.S. I 'only' have 24 weeks to do, type 2b. So not nearly as much a long haul as some of you (God Bless ya')
P.S.S. I keep getting 'friends invitation' from some on here, I always 'accept' and than it goes nowhere? What does that mean?
Thanks so much and sorry I haven't been here much to boost some of you up, onward.
Your ALL so great.
Love ya' all, Lauri
Call me a cynic, but . . . . . .
I think it's too darn much work while on TX.
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And that would be a part of the problem :}
I am sorry you are feeling so rough. I just can't imagine doing so many weeks of this as I am fighting myself on 'can I do this' at ONLY week 4! And with only 24 to do! Thats why I hate to 'whine' on here
:{ You are some &%$#@# STRONG people and I know why you fight so hard, but KNOW how very strong you are to do this, even when you feel so not strong. MANY of you amaze me here. You'll join civilization again, and be single out there :} okay, that could be good or bad, trying to cheer you up here! If you start the Bar-B-Que, and head towards your 'flocks'....think about Ladywhy's paxil suggestion :}
lady why......49 and would not mind the cycle stopping! Do miss the libido tho my energy level stops even missing it much!
thanks all, feel good, better......................LL
I think it's too darn much work while on TX.
--------------------------------------------------------------
And that would be a part of the problem :}
I am sorry you are feeling so rough. I just can't imagine doing so many weeks of this as I am fighting myself on 'can I do this' at ONLY week 4! And with only 24 to do! Thats why I hate to 'whine' on here
:{ You are some &%$#@# STRONG people and I know why you fight so hard, but KNOW how very strong you are to do this, even when you feel so not strong. MANY of you amaze me here. You'll join civilization again, and be single out there :} okay, that could be good or bad, trying to cheer you up here! If you start the Bar-B-Que, and head towards your 'flocks'....think about Ladywhy's paxil suggestion :}
lady why......49 and would not mind the cycle stopping! Do miss the libido tho my energy level stops even missing it much!
thanks all, feel good, better......................LL
Meki! have not seen you on much. Of course I had no DSL a week and haven't been on a lot either to even keep up on post. thank you for the words. I am trying , more honestly instead of the fake "I'm okay" to let them know I FEEL AWFUL! It is slamming me already and only 4 weeks in AND only 800Riba, 180mg pegasys, but I did well until this past week and D*M.....the semi hit me and ran. I'm about to post on that (why all -so much- all of a sudden?) THO, with all some you go thru and me 'only' 24 weeks, 2b, I really hate 'whining' on it. I had thought "how can I slow down, not get things done?" well, my body is making that decision for me! Good to see you on more. Enjoy your post.
Willy.....ohhhh to funny on your post! I LOVED and LMAO on the "In computerese" and I have been supplying a bit of 'basic maintenance" :} And I just have to add....as you opened that file:}......he actually had 'a sore mouse" (or rather, two sore 'mice'!? not the main 'mouse':} of which I resumed 'basic maintenance". (Still LMAO and needed that as shot night & in bed.) He had blamed it on riding the motorcycles with tight pants and I knew that was a 'trying to be nice' excuse and figured out his temporary files needed deleted! (and after only 3-4 days of ‘back up files’??}
That has got to be one of the funniest post I have read and thank you very much for a mans view.
----------------------------------------------------------
On a serious note, you said:
I sometimes worry that children may end up interpreting a parents behavior during treatment as how the person on treatment really feels. It might be easy to interpret riba rage with honest anger at a person.... or to confuse fatigue with disinterest. For women to feel a certain way during treatment is predictable and understandable. I just think that some level of communication is required so that the issue is very clear to the man. They need to understand it in their heart as well as in their mind.
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I agree and we are VERY open with each other. I think I had just not gotten thru just how bad I feel and needed to. My 3 sons are all grown, tho here every day for me and so very understanding. There is rarely even cross words between us and I have totally prepared them to NOT take me personal in any bad moods/comments the next few mths. Good points to bring up.
And thanks for the friends thing tip. just nothing ever happened when I'd click 'accept'. Guess I was waiting for fireworks:}
Thanks for the LMAO while feeling like dog doo :}
LL
Willy.....ohhhh to funny on your post! I LOVED and LMAO on the "In computerese" and I have been supplying a bit of 'basic maintenance" :} And I just have to add....as you opened that file:}......he actually had 'a sore mouse" (or rather, two sore 'mice'!? not the main 'mouse':} of which I resumed 'basic maintenance". (Still LMAO and needed that as shot night & in bed.) He had blamed it on riding the motorcycles with tight pants and I knew that was a 'trying to be nice' excuse and figured out his temporary files needed deleted! (and after only 3-4 days of ‘back up files’??}
That has got to be one of the funniest post I have read and thank you very much for a mans view.
----------------------------------------------------------
On a serious note, you said:
I sometimes worry that children may end up interpreting a parents behavior during treatment as how the person on treatment really feels. It might be easy to interpret riba rage with honest anger at a person.... or to confuse fatigue with disinterest. For women to feel a certain way during treatment is predictable and understandable. I just think that some level of communication is required so that the issue is very clear to the man. They need to understand it in their heart as well as in their mind.
------------------------------------------------------------
I agree and we are VERY open with each other. I think I had just not gotten thru just how bad I feel and needed to. My 3 sons are all grown, tho here every day for me and so very understanding. There is rarely even cross words between us and I have totally prepared them to NOT take me personal in any bad moods/comments the next few mths. Good points to bring up.
And thanks for the friends thing tip. just nothing ever happened when I'd click 'accept'. Guess I was waiting for fireworks:}
Thanks for the LMAO while feeling like dog doo :}
LL
Call me a cynic, but . . . . . .
I think it's too darn much work while on TX. (or while NOT, for that matter) *LOL*
wyn
PS - You put up with a friend crashing at your place for a month!
What a saint!
I think it's too darn much work while on TX. (or while NOT, for that matter) *LOL*
wyn
PS - You put up with a friend crashing at your place for a month!
What a saint!
I started on Paxil at my 6th wk of tx. I too understand the hermitess mentality. An acqauintance needed a place to crash for the past mo. Thank God that person left this am. I pretty much locked myself in my bedroom...now I feel I can breathe easier. I don't feel like a zombie..but the low dose of this a/d has helped take some of the edge off...jus' thought it may help you....
About 3 mos. into tx, my cycle just stopped. Libido feels like a thing of the past...ah well. Before tx due to fibroids, my period was SUPER heavy and prolonged...i'm glad i don't have to deal with that as well. Though at 44, I due have concerns about early menopause....
I too am single and grateful for it, though sometimes I hear lovely stories about supportive husbands...and then i wanna throw a pity party!
About 3 mos. into tx, my cycle just stopped. Libido feels like a thing of the past...ah well. Before tx due to fibroids, my period was SUPER heavy and prolonged...i'm glad i don't have to deal with that as well. Though at 44, I due have concerns about early menopause....
I too am single and grateful for it, though sometimes I hear lovely stories about supportive husbands...and then i wanna throw a pity party!
#$$##$$#@%&!!!!!!!
Don't know WHY that posted 3 times.
Can ya tell by my response just how short my fuse is!!!!
Week 44 and it's getting worse. Can't even stand the flock anymore. If I have to have more than a 2 minute conversation with anyone I get anxiety attacks. I went off prozac 2 or 3months ago coz it was turning me into a zombie but, i dunno . . .
No, I do know - i ain't going back on that.
7 more months of seclusion. Sometimes I wonder if I'll ever WANT to rejoin 'civilization'.
TG I'm not married or involved as I'm sure divorce or separation would be in the cards.
wyntre
Don't know WHY that posted 3 times.
Can ya tell by my response just how short my fuse is!!!!
Week 44 and it's getting worse. Can't even stand the flock anymore. If I have to have more than a 2 minute conversation with anyone I get anxiety attacks. I went off prozac 2 or 3months ago coz it was turning me into a zombie but, i dunno . . .
No, I do know - i ain't going back on that.
7 more months of seclusion. Sometimes I wonder if I'll ever WANT to rejoin 'civilization'.
TG I'm not married or involved as I'm sure divorce or separation would be in the cards.
wyntre
I haven't done TX. I have experienced sexual abstinence at other times in my 18 year marriage due to childbirth, the wife being in school, or during a period at the end of that marriage. There's kind of a joke, probably no laughing matter for women, about a medical phenomena often simply refered to as "SRD" (which stands for Semen Retention Dementia) : ). I'm making a small joke here but in practice I think men may go a little wonky (yeah, there's another medical term ; )) during periods of abstinence particularly if it is a loved one right in front of them on a daily basis.
I sometimes worry that children may end up interpreting a parents behavior during treatment as how the person on treatment really feels. It might be easy to interpret riba rage with honest anger at a person.... or to confuse fatigue with disinterest. For women to feel a certain way during treatment is predictable and understandable. I just think that some level of communication is required so that the issue is very clear to the man. They need to understand it in their heart as well as in their mind.
My final bit as a man would be to promote the idea that if ya can throw the dog a bone every now and then you may end up dealing with the MAN more frequently and not his "inner child" needing to be held. : )
In computerese...... you may not feel like your platform is capable of running at top speed a full graphics package and high bit sound card. However......many hubbies may be content with basic "maintenence mode" capabilities or help in deleting their unneeded temporary files. Periodic maintenence may be a chore but in the big picture it may keep things running smoother than deferred maintence.
Men and women understand things in different ways. A man may feel like; "Oops; I forgot to take out the trash". That same inaction may be understood to the woman as; "if he cared at all about me he would take out the trash without being asked". On some level men connect womens caring with some personal (and yes, sexual) contact. We know it aint true intellectually but we don't always "understand" things on a purely intellectual basis. (and how well you probably already understand that. ; ))
If it's any comfort I hear many dudes on TX also feel as you do too......
best,
Willy
By the way....I clicked on that friend thing just to see what it was and "boom"; it got sent off. I think the reason for it is so if you wish to PM a person you have them stored in your '"friend folder" instead of going and finding a thread with a profile to click on. I agree it seems to have some sort of onus other than as a clerical function.
I sometimes worry that children may end up interpreting a parents behavior during treatment as how the person on treatment really feels. It might be easy to interpret riba rage with honest anger at a person.... or to confuse fatigue with disinterest. For women to feel a certain way during treatment is predictable and understandable. I just think that some level of communication is required so that the issue is very clear to the man. They need to understand it in their heart as well as in their mind.
My final bit as a man would be to promote the idea that if ya can throw the dog a bone every now and then you may end up dealing with the MAN more frequently and not his "inner child" needing to be held. : )
In computerese...... you may not feel like your platform is capable of running at top speed a full graphics package and high bit sound card. However......many hubbies may be content with basic "maintenence mode" capabilities or help in deleting their unneeded temporary files. Periodic maintenence may be a chore but in the big picture it may keep things running smoother than deferred maintence.
Men and women understand things in different ways. A man may feel like; "Oops; I forgot to take out the trash". That same inaction may be understood to the woman as; "if he cared at all about me he would take out the trash without being asked". On some level men connect womens caring with some personal (and yes, sexual) contact. We know it aint true intellectually but we don't always "understand" things on a purely intellectual basis. (and how well you probably already understand that. ; ))
If it's any comfort I hear many dudes on TX also feel as you do too......
best,
Willy
By the way....I clicked on that friend thing just to see what it was and "boom"; it got sent off. I think the reason for it is so if you wish to PM a person you have them stored in your '"friend folder" instead of going and finding a thread with a profile to click on. I agree it seems to have some sort of onus other than as a clerical function.
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