Aa
Womens input, help
Hi all. After 7 days with no DSL in Ocala, Fl. and now it's ship horse's week, I've really missed this site! Have NO time and want to respond to so many. Hope all are well, especially merlino and Child24angel.
I need some women's input here (and the mens views wouldn't hurt, thank you).
I am 3rd shot in, 3rd week. So far, just can't whine much at all. Quite fatigued, but was from hep also, a few headaches from h*ll, few night sweats and, already, a bit brain foggy. Feel like I am ALWAYS stoned, but not the good stoned :) Just NEVER feel normal, good. (as you all know and as even before tx).
While I have EXCEPTIONAL support from my 3 sons, sister, friends, man of 8 years........ I can't seem to make him understand the HARM of me keeping up my normal pace (we are VERY active, social, business busy people) and while he always says "if your not up to it, don't do it"... He KNOWS if I KNOW it needs done, I GOTTA get it done! Tuesday was a 12 hour, non stop day, no nap, no break. Wed., with the 'social' dinner out, a 14 hour day. Sat. (shipping horse's on plane) will be a 20-24 hr. non-stop day! I am also getting very emotional, teary a lot, not Riba ragey (but also 49 probably starting menopause). I need to make him understand that even before this (stage 3 fibrosis) the fatigue was kicking my butt, and now it's worse and that I HAVE to take breaks, naps or it's going to hurt me, my tx, everything! (in a trial, NO 'rescue' drugs). If all goes to the curb, anemia, etc. I am taken off the drugs! He tries to understand and is a very good man, but as we know, if your not going thru it, you just DON'T really get it. ALSO...... sex..... love sex, need sex......just don't seem to want much right now and mainly from being so tired and every muscle in my body aching (as before tx)! And yep, getting that irritating skin , dry feeling there :{ Being a man..... ( no offense guys, love ya' :} he takes it as "I don't WANT him"....and that is NOT it! I wouldn't do Richard Gere (my man :} if he walked in some days, and that is BAD! A few mths. ago you ladies, men, posted to a similar post and it was great replies, so can you do it again? Please, for me :}
P.S. I 'only' have 24 weeks to do, type 2b. So not nearly as much a long haul as some of you (God Bless ya')
P.S.S. I keep getting 'friends invitation' from some on here, I always 'accept' and than it goes nowhere? What does that mean?
Thanks so much and sorry I haven't been here much to boost some of you up, onward.
Your ALL so great.
Love ya' all, Lauri
I need some women's input here (and the mens views wouldn't hurt, thank you).
I am 3rd shot in, 3rd week. So far, just can't whine much at all. Quite fatigued, but was from hep also, a few headaches from h*ll, few night sweats and, already, a bit brain foggy. Feel like I am ALWAYS stoned, but not the good stoned :) Just NEVER feel normal, good. (as you all know and as even before tx).
While I have EXCEPTIONAL support from my 3 sons, sister, friends, man of 8 years........ I can't seem to make him understand the HARM of me keeping up my normal pace (we are VERY active, social, business busy people) and while he always says "if your not up to it, don't do it"... He KNOWS if I KNOW it needs done, I GOTTA get it done! Tuesday was a 12 hour, non stop day, no nap, no break. Wed., with the 'social' dinner out, a 14 hour day. Sat. (shipping horse's on plane) will be a 20-24 hr. non-stop day! I am also getting very emotional, teary a lot, not Riba ragey (but also 49 probably starting menopause). I need to make him understand that even before this (stage 3 fibrosis) the fatigue was kicking my butt, and now it's worse and that I HAVE to take breaks, naps or it's going to hurt me, my tx, everything! (in a trial, NO 'rescue' drugs). If all goes to the curb, anemia, etc. I am taken off the drugs! He tries to understand and is a very good man, but as we know, if your not going thru it, you just DON'T really get it. ALSO...... sex..... love sex, need sex......just don't seem to want much right now and mainly from being so tired and every muscle in my body aching (as before tx)! And yep, getting that irritating skin , dry feeling there :{ Being a man..... ( no offense guys, love ya' :} he takes it as "I don't WANT him"....and that is NOT it! I wouldn't do Richard Gere (my man :} if he walked in some days, and that is BAD! A few mths. ago you ladies, men, posted to a similar post and it was great replies, so can you do it again? Please, for me :}
P.S. I 'only' have 24 weeks to do, type 2b. So not nearly as much a long haul as some of you (God Bless ya')
P.S.S. I keep getting 'friends invitation' from some on here, I always 'accept' and than it goes nowhere? What does that mean?
Thanks so much and sorry I haven't been here much to boost some of you up, onward.
Your ALL so great.
Love ya' all, Lauri
Wow, you sound like my clone. Sunday will be my 3rd shot. Seems to be getting worse daily with headaches and fatigue. I have never taken time for me. I have so many commitments and I don't work full time. I do a lot of volunteer work that no one else seems to want to do. Not to mention that the house work would never get done. I don't think my husband understands just yet. I was just talking to a girlfriend today about changing my lifestyle and slowing down and start thinking about me. The symptoms you are having are identical to mine. I would love to stay in bed on Monday but I have a commitment that day. And on Tuesday. Wednesday I could rest. Ha. I look forward to more posts from you to see how you are doing. I am not taking any other drugs with this treatment and hope I don't have to. Talk again soon.
One more thought, that I thought of after the fact. If you do decide to get your hot tub fixed and do a soaking, make sure you moisturize really really well. You are on Ribavirin, too, right? Our skin has a tendency to get dry and itchy so, a long soaking-though it may feel a lot better to our muscles and bones-requires a good moisturizing. NYGirl recommends Gold Bond and some have found Eucerin cream to be most effective.
Susan
Susan
Drink more water to get rid of those headaches. Life returns sometime after tx is finished. You are so fortunate to only have to go through 24 weeks. I worked 9 hours a day for 33 weeks and I'm 65 years old. My desk job was easy. I got every other Fri. off. Then I retired. I finished tx 4 weeks ago and I can't tell you how much better I feel now. Of course the 8 massages I have had since then and 8 infared sauna baths have helped a lot too. You must put yourself and your treatment first. If you do it right you will only have to do it once. Loads of marvelous friends on this forum. I never had a sexual thought. I think the virus ate my labido, of course I've been post menopausal for quite some time and I live alone.
You know how much we save in 'Therapy' cost on this website :} ???
A ton, I am sure.
A ton, I am sure.
Thank you, Thank you and going to let him read these post. ( Jeeezzz. even having to reply in a 'hurry' these days! That STOPS tonight!)
As much as they try, they just don't get how REALLY bad you feel, and as you said... a lot as you don't 'look' sick (though I feel I look pretty bad)!
It does seem to be really hitting me this 3rd week and I have GOT to learn to say NO, to many things, even this busy week. They will ALL have to work harder, cover my a** as I would for them.
My sons are the best, they do get it. think cause they know the 'normal' me so well. They MAKE me stop and rest. The man.....he's got some learning to do!! And only 3 weeks in!
Susan, yes, I am in that trial and that's why a bit extra worried as no rescue drugs so extra need to NOT need them :} And as you always do, thanks for offering your shoulder....we have got to meet for breakfast when your passing thru.
Nygirl...ALL good post :} I removed all the "Lorena" objects out of the room, anything sharp :}
I also TRY to make day after shot my "I AM STAYING IN BED DAY", as it seems if I don't, I really crash 2 days later?? BUT, have to get thru to them that this INCLUDES....DON'T call me, bother me, tell me about ANY problems that I will feel the need to solve! Maybe if I rent a room the next shot day, he'll get it :} LOVE the mountains, I need one of those trips and I soooooo miss my 'wine, swing off the chandeliers, awesome s*x nights" TOO !!
Robin, All good advice and he's reading yours too :) I have never take aspartame (health nut that smokes:} and always thought it was bad. You said......
"Every time something comes up (work or social commitment), really consider if a) someone else can help you or handle it entirely, and b) will the world still revolve if you don't attend? It will and you will feel better for it! Believe me, it has taken me 6-7 months to figure this one out! "
Very HUGE thing I have to learn to do. I am the 'problem solver', EVERYBODYS shoulder-tho love doing it- NOT NOW I guess! May do everyone some good to REALLY see how much easier I make thier life's , LOL
AND...... I have a hot tub that's broke! Perhaps when I spread these post around...it'll get fixed now :}
Child24angel..... I do click accept and thanks for explaining and thanks for yours :) I think about you very much, your son and you have touched my heart :{
All, must say also, it is hitting me this week but I know it could be much worse and truly feel much of that is because it's such a hectic, busy week for us and all your post have made me realize..... THIER all doing it.... I'm not even going to the airport tomorrow! THEY CAN handle it. That is HUGE, HUGE, HUGE for me.
On that note..... I am dragging off to do my short 4 hour day at another job I decreased my hours from 10 to 4-5 hours!
thanks all :), I may be changing many things here and sticking with it even after :)
WISHING you a feel good day. Lauri
As much as they try, they just don't get how REALLY bad you feel, and as you said... a lot as you don't 'look' sick (though I feel I look pretty bad)!
It does seem to be really hitting me this 3rd week and I have GOT to learn to say NO, to many things, even this busy week. They will ALL have to work harder, cover my a** as I would for them.
My sons are the best, they do get it. think cause they know the 'normal' me so well. They MAKE me stop and rest. The man.....he's got some learning to do!! And only 3 weeks in!
Susan, yes, I am in that trial and that's why a bit extra worried as no rescue drugs so extra need to NOT need them :} And as you always do, thanks for offering your shoulder....we have got to meet for breakfast when your passing thru.
Nygirl...ALL good post :} I removed all the "Lorena" objects out of the room, anything sharp :}
I also TRY to make day after shot my "I AM STAYING IN BED DAY", as it seems if I don't, I really crash 2 days later?? BUT, have to get thru to them that this INCLUDES....DON'T call me, bother me, tell me about ANY problems that I will feel the need to solve! Maybe if I rent a room the next shot day, he'll get it :} LOVE the mountains, I need one of those trips and I soooooo miss my 'wine, swing off the chandeliers, awesome s*x nights" TOO !!
Robin, All good advice and he's reading yours too :) I have never take aspartame (health nut that smokes:} and always thought it was bad. You said......
"Every time something comes up (work or social commitment), really consider if a) someone else can help you or handle it entirely, and b) will the world still revolve if you don't attend? It will and you will feel better for it! Believe me, it has taken me 6-7 months to figure this one out! "
Very HUGE thing I have to learn to do. I am the 'problem solver', EVERYBODYS shoulder-tho love doing it- NOT NOW I guess! May do everyone some good to REALLY see how much easier I make thier life's , LOL
AND...... I have a hot tub that's broke! Perhaps when I spread these post around...it'll get fixed now :}
Child24angel..... I do click accept and thanks for explaining and thanks for yours :) I think about you very much, your son and you have touched my heart :{
All, must say also, it is hitting me this week but I know it could be much worse and truly feel much of that is because it's such a hectic, busy week for us and all your post have made me realize..... THIER all doing it.... I'm not even going to the airport tomorrow! THEY CAN handle it. That is HUGE, HUGE, HUGE for me.
On that note..... I am dragging off to do my short 4 hour day at another job I decreased my hours from 10 to 4-5 hours!
thanks all :), I may be changing many things here and sticking with it even after :)
WISHING you a feel good day. Lauri
Lauri
Sorry your getting flattened so bad right now. For me, week three was around the time I got very anemic very fast (lost 6 points in just over a week) and believe me...I thought I was going to DIE. Had anyone tried to have sex with me well...Lorena Bobbitt would have come to mind and FAST!
It's very hard on our bodies and our minds to do treatment and BOTH of them have to do with the ability, need, desire - whatever it is - to have sex.
I know your husband isn't going to get it because well face it...it's not happening to HIM. The only advice I could give to you is to KEEP TALKING and keep the lines of communication open even MORE than they were before. Because he just can't understand that you are just going to really be THAT tired. As women (and you know how much stronger than men we really are) they expect us to be able to do everything AND look good AND smile AND take care of all their needs at the same time. When that 'support system' that they live for (our support) starts to need to take care of itself...well they seem to just LOSE IT! Waaa who's going to be here for MEEEE they cry! So just keep talking and try and get him to 'get it'.
You are going to HAVE to learn to cut back now. I used to NEVER EVER have a minute of ME time. Once I got ill with tx though - I decided that I had had enough pain and if I intended to make it through work I would have to make it ALL ABOUT ME for once!!!!!!!! I declared Saturday (the day after my shot) my DAY OF REST. I stayed in bed (which I'd NEVER done before except when I had the flu) each adn EVERY SINGLE SATURDAY of treatment. I put the remote in my hand...a box of mallomars or containner of ice cream by my side...a heating pad and an ice bag and flipped the channels just snoozing on and off ALL DAY.
Wow. That's like a mother/wifes DREAM isn't it? Just think you have a reason now to DECLARE THIS DAY FOR YOU TOO!
I'm telling you, not only physically but MENTALLY it was the best thing I ever did for myself. would have have been able to do 72 weeks without it.
Oh yes - if my son had a big game I'd go over to it...or something like that. But gone was the lady who got up to wash the kitchen floor and scrub the bathroom. FUGGIDABOWDIT!
If you don't 'LEARN' to put YOURSELF first here you are going to run into trouble so you HAVE TO! Hey, if it takes a bit of acting on your part at first to convince yourself well then you DO IT. Leave on your pjs and slippers and stay in and REST.
It DOES help your body and your MIND for the coming week.
Sorry this got so long but I just want you to know...it's a whole new world. It's a whole new concept. YOU NEED TO COME FIRST RIGHT NOW. YOU NNNNEEEED TO. so please...do!
Debby aka NYgirl
72 weeks - Stage 3 Grade 2 - Geno 1A/1B
Sorry your getting flattened so bad right now. For me, week three was around the time I got very anemic very fast (lost 6 points in just over a week) and believe me...I thought I was going to DIE. Had anyone tried to have sex with me well...Lorena Bobbitt would have come to mind and FAST!
It's very hard on our bodies and our minds to do treatment and BOTH of them have to do with the ability, need, desire - whatever it is - to have sex.
I know your husband isn't going to get it because well face it...it's not happening to HIM. The only advice I could give to you is to KEEP TALKING and keep the lines of communication open even MORE than they were before. Because he just can't understand that you are just going to really be THAT tired. As women (and you know how much stronger than men we really are) they expect us to be able to do everything AND look good AND smile AND take care of all their needs at the same time. When that 'support system' that they live for (our support) starts to need to take care of itself...well they seem to just LOSE IT! Waaa who's going to be here for MEEEE they cry! So just keep talking and try and get him to 'get it'.
You are going to HAVE to learn to cut back now. I used to NEVER EVER have a minute of ME time. Once I got ill with tx though - I decided that I had had enough pain and if I intended to make it through work I would have to make it ALL ABOUT ME for once!!!!!!!! I declared Saturday (the day after my shot) my DAY OF REST. I stayed in bed (which I'd NEVER done before except when I had the flu) each adn EVERY SINGLE SATURDAY of treatment. I put the remote in my hand...a box of mallomars or containner of ice cream by my side...a heating pad and an ice bag and flipped the channels just snoozing on and off ALL DAY.
Wow. That's like a mother/wifes DREAM isn't it? Just think you have a reason now to DECLARE THIS DAY FOR YOU TOO!
I'm telling you, not only physically but MENTALLY it was the best thing I ever did for myself. would have have been able to do 72 weeks without it.
Oh yes - if my son had a big game I'd go over to it...or something like that. But gone was the lady who got up to wash the kitchen floor and scrub the bathroom. FUGGIDABOWDIT!
If you don't 'LEARN' to put YOURSELF first here you are going to run into trouble so you HAVE TO! Hey, if it takes a bit of acting on your part at first to convince yourself well then you DO IT. Leave on your pjs and slippers and stay in and REST.
It DOES help your body and your MIND for the coming week.
Sorry this got so long but I just want you to know...it's a whole new world. It's a whole new concept. YOU NEED TO COME FIRST RIGHT NOW. YOU NNNNEEEED TO. so please...do!
Debby aka NYgirl
72 weeks - Stage 3 Grade 2 - Geno 1A/1B
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