long term side effects after taking pegasy/ribrivan

[beachmomma04]

I'm 44 yr old female dx with Hep C genotype 1a stage 3 by liver biopsy, did treatment for 72 weeks 3 months after treatment i relapsed.  it will be 6 months on feb 19 since my last treatment.  I still have serve muscle and joint pain, fatigue, insomnia, white blood count still low, chronic diarrhea, shortness of breath, and can't REMEMBER things (brain fog).   My doctor told me today that my illness wasn't from the treatment but from ANXIETY DISORDER, fibromyalgia,ibs and that i needed to see a psychiatry consultation.  Is there anyone that has Hep C and took treatments having long term problems? OR is it just me!!!  Please Help and let me know

[suezeeque]

Oh my goodness...  Your ID relates to "double dosing" interferon?  Holy....

I would respectfully submit that in one of your previous posts, when you said that your post-treatment side effects resulted, "from too much exposure" you were probably correct.

Perhaps it would be a good idea to alert new members asking these questions to that fact?

I would also submit that the vast majority of people do not do what you did.  You really can't compare the risk of side effects of people who will use interferon as prescribed to someone's side effects who used it in a reckless manner, not as prescribed and certainly not in keeping with any accepted, approved HCV treatment protocol.

[nygirl7]

:o

As always, mike writes one line that sums it all up and I scramble with paragraphs and can't say a thing.

[nygirl7]

This is our new version of a politics thread, remember them?

Even though we do bash heads, it is clear we do care greatly about heppers. Hopefuly in short time (3 -5years) this will be a moot point.

Then, like families do we can argue about something else;)

God I hope all my friends are cured by then, I can't imagine being here another five years. Darn new people who make m fall in love with them and my old pals who I not want to leave!

SvR for all.

[willbb]

:0)

[mikesimon]

Very sensible post Willy. It does help to have a balanced approach which you seem to strive for in controversial topics like this one. Sometimes I wonder how we'd get along without your careful and measured objectivity.
Thanks so much.

Mike

[Willy50]

I think part of my point is that both parties have strong personal beliefs.

Both parties have seen many suffer.  Deb wrote that she has seen many die from ESLD.  No one can argue with that.

I believe that Double Dose has equal feelings and experience with long term sides.  One might even equate the number of people, in the 1-5% who were expected to die from ESLD to those who suffer from long term sides from treatment.  (  an aside.....I am NOT asserting 1-5% is accurate for the size of the IFN damage group. Nor does there be any sort of reparative therapy for the damage caused by IFN.)


Both have heartfelt opinions, personal experience and facts that back up the feelings and opinions, yes?

What I don't see or understand is the lack of tolerance for the long term sides type post.  Would you have that type of reply banned from the forum?

nygirl wrote;
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"Double Dose does it ever occur to you that you OD'd on interferon by double doing it for a year I don't think that your long term results would be the same as folks who just take it as directed. "
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Whereas I know genotype 2's who treated...... recall....this is at a lower dose and shorter time period, who suffered post TX issues.  The posts in the other thread had some people whose sides were so bad they does reduced and had TX ended early, and still had damage.  I personally think people all respond differently to IFN/ RBV.

Just as people claim staging damage is not lineal, I would suggest that damage caused by IFN may not be dose dependent.  Reasonable?

I hope/wish....that lacking a separate forum for such threads that tolerance will reign.

willy