According to my MS Specialist

[LisaJF]

Today was the "big" day to see what he thought of what was going on with me with the lessening of symptoms.

He said he didn't know.  He had Movement Disorder specialist, a Neuro-opth and a urologist look at me and they can't come up with nothing.  

The only thing left he said is, "Conversion Disorder".  

I asked him after our first initial visit, does he remember when I called him about an hour later to ask some questions and one of them was, "Do you think this is psychogenic or a conversion disorder?"  He said, "No I don't remember".  I said, when I asked you, you said "No".  I also told him that if I truly felt that this is what I was going through, I would of seen a psychiatrist long before seeing him.  In fact, if I thought by now if I had a conversion disorder, I'd be seeing one today or making an appointment to see one soon.  I told him that I would rather have something that is "fixable" and go on medications and participate in therapy to get this all squared away.

I know in my heart and with my knowledge base in the medical field, that this is not the case.

I think he had given up on me himself.  

So now what.

Lisa

[Sidesteps]

Wow! What a difference a decent doctor makes. I want to hear more so when you are up to it, can you detail the appointment?  Hugs to you Lisa, I know this fight has taken it out of you but you DID IT!!!

[Sumanadevii]

Lisa, I hate to say this but the damage from the medical profession has been done.  You will now get to spend years watching over your shoulder thinking they still got it wrong.  I know when my neuro began to aggressively fight my MS even some on this board doubted she was treating the MS correctly.  I began again to doubt.  It has now been fifteen months since I was dxed.  After this recent 30 day hospital stay, I will never doubt again.  I had some of the best neuro's in the country looking over my neuro's shoulder.  She sure was doing the right thing.

So try to put your trust in this doctor.  Plug your ears to those that do not know your story nor understand it.  I am so happy someone finally is listening and not sending you off with an excuse dx.

Hugs, Sumana

[tripnstumble]

I've been reading this but feeling so darn icky myself and not commenting much... BUT did want to say I'm so glad to hear of your outcome today. I know how hard it is when you start doubting yourself :(

[rendean]

Lisa,

Told ya it wasn't conversion disorder!!!  Now it's your turn to prove me wrong about something. Good luck :{ )..........

Ren

[drsdonthelp]

Lisa, Yay!!!! See, You are not nuts afterall!!!! Love ya . :)

Glad you had some sort of end result that seems to be more realistic !!!!!!!! Finally.

Big Hugs, Pam

[LisaJF]

Everyone:

It was a long day today going to NYC to see my Neuro (travel wise) since the city is on high alert with the terrorist threat.

Anyways, end result:

I do not have a conversion disorder.
My LP results show definitively CNS inflammation conducive to an autoimmune disease as well as some of my blood work.

MS: Probable

MRI in January and to follow up.

No medications at this time were prescribed.

(Side note: Conversion disorder does not create t2 hyperintensity nor can it alter LP results)

Thanks to you all for your support

Lisa