Aa
I have a couple questions re: symptoms
I was wondering if noise intolerance is a symptom. I had this about a year ago and it lasted for 5 or 6 months. Any kind of sound would make me cringe and become very aggitated. I hated the phone ringing and the tv could only be at a certain level, (My husband would tell me he couldn't even hear it.)
Also, extreme weepiness... When the Caylee Anthony story came out on Nancy Grace, I cried so hard, you would of thought she was my baby. Any time I would watch Nancy Grace and that story was on, I sobbed and sobbed, it was awful.
Another one is weird muscle spasms in my abdomen. It felt like if I had a baby in there grabbing onto a muscle and shaking it back and forth, this comes and goes and is not constant but it happens and I have never experienced this in my life.
Ear clicking.... or popping, not sure what to call it. just feels like my left ear has bubbles bursting in it . this also comes and goes.
Last one,,,, night sweats!! not all the time but I have been awaken a few nights needing to change my clothes because they were drenched.
Just wondering!! Hope everyone is well. Take care, Pamela
Also, extreme weepiness... When the Caylee Anthony story came out on Nancy Grace, I cried so hard, you would of thought she was my baby. Any time I would watch Nancy Grace and that story was on, I sobbed and sobbed, it was awful.
Another one is weird muscle spasms in my abdomen. It felt like if I had a baby in there grabbing onto a muscle and shaking it back and forth, this comes and goes and is not constant but it happens and I have never experienced this in my life.
Ear clicking.... or popping, not sure what to call it. just feels like my left ear has bubbles bursting in it . this also comes and goes.
Last one,,,, night sweats!! not all the time but I have been awaken a few nights needing to change my clothes because they were drenched.
Just wondering!! Hope everyone is well. Take care, Pamela
i didnt know there was a look either. I guess I have that problem too, When ever I see a doctor, I smile and say Hello! They must not be looking for someone being polite to have something wrong with them. LOL
I wonder about the appearance thing too. The last appointment I had with my neuro was the first one I asked about MS. She immediately dismissed it as a possibility (somewhat understandable given a totally normal MRI) and said "you don't have the look, you don't have the history." I was like, um, there's a look? She said yes, and that I'm not miserable enough. Great, so no help til I'm miserable!
Would you all believe that I did take a list of my symptoms and when it happened to neuro # 1 and neuro # 2 and it was put into the folder with a quick " You do not have MS" because my MRI was "normal". Anything that I mentioned during my visits were not taken seriously. I almost want to see a dr. when I first wake up in the morning before making myself presentable. Does anyone else feel that the more presentable you look the less serious they take you.
During my initial visit with neuro # 2 , I had already begun my process for ssd because of my eye disease and double vision, I was put on lifting restrictions by the Optic nerve specialist. When my neuro asked me why I was applying for ssd and the form he had to fill out regarding my disability I explained to him briefly it was due to eye problems. He left the room and I heard him ask the receptionist if they knew I was trying to get ssd, and they said to him, "No, is she disabled" and he replied with a grunted laugh " No" I was sooooo devastated, I couldnt wait to leave, and I left crying and felt that unless you have an assistive device or something on the outside showing your disability, no one believes you.
I know that something is wrong when you slurr your speech for two weeks separated by one year apart and have numerous odd symptoms happen that have never occurrred before. I will get to the bottom of this someway somehow and with the help of everyone here on the forum.
Thank you , Pamela
During my initial visit with neuro # 2 , I had already begun my process for ssd because of my eye disease and double vision, I was put on lifting restrictions by the Optic nerve specialist. When my neuro asked me why I was applying for ssd and the form he had to fill out regarding my disability I explained to him briefly it was due to eye problems. He left the room and I heard him ask the receptionist if they knew I was trying to get ssd, and they said to him, "No, is she disabled" and he replied with a grunted laugh " No" I was sooooo devastated, I couldnt wait to leave, and I left crying and felt that unless you have an assistive device or something on the outside showing your disability, no one believes you.
I know that something is wrong when you slurr your speech for two weeks separated by one year apart and have numerous odd symptoms happen that have never occurrred before. I will get to the bottom of this someway somehow and with the help of everyone here on the forum.
Thank you , Pamela
My neurologist told me that getting overwhelmed by alot of noise, and several conversations going on around me, is a common cognitive symptom of MS and I've just had to learn to adapt, or avoid those types of situations.
I have noise/light sensitivity. Diagnosed with fibromyalgia. I also have abnormal brain MRI and haven't seem my primary about that yet. My neurologist said it is not tumors nor a neurological problem. They did say it seemed to be a conntectivity tissue issue. The only ONE thing I can truly tell you is that a medical journal is so beneficial. Keep track of all your symptoms BEFORE you go to doctor because MS, Fibromyalgia, and many other diseases have numerous symptoms. Good luck!
Yes it was definately overwhelming. I would be hearing just a simple normal everyday sound yet It drove me crazy, I just wanted to sit quietly by myself with nothing going, I was very irritable and of course hubby and I had some arguments over it, Every single day I heard "WHAT IS WRONG WITH YOU", and my reply was " I don't know" with my angry irritated voice.
Very crazy I know, lol Pamela
Very crazy I know, lol Pamela
I've definitely had the problem with being overwhelmed by noises. It's kind of terrifying. One night in particular I was walking the dog and was near a busy restaurant patio, a house having a party, and three or four cars driving by at the same time and was just completely out of sorts. My partner was with me and was freaked out by my weirdness but I couldn't quite explain what the problem was. Finally said the noises were just so overwhelming, which is the only way I can really come up with to describe it.
I honestly didn't know it was a symptom, sort of thought I was going nuts or having a bad reaction to a med. And I'm undiagnosed so that disclaimer applies..
I honestly didn't know it was a symptom, sort of thought I was going nuts or having a bad reaction to a med. And I'm undiagnosed so that disclaimer applies..
Thanks for the replies, I wish this was easier to figure out. I do know that I have never had these problems before and they started to get worse before they got better. Right now I am not experiencing the noise intolerance , ear clicking or night sweats. I occasionally get lightheaded but certainly not like it was over that 8 month span I had.
I still get the muscle spasms and the twitching thumb on occasion. I have not had problems with lymphoma, ?? not sure if someone else on here does and we were mixed up, but thought I would clear it up.
Hugs to all, I am so grateful to have all of you to talk to . It has been very helpful.
Pamela
I still get the muscle spasms and the twitching thumb on occasion. I have not had problems with lymphoma, ?? not sure if someone else on here does and we were mixed up, but thought I would clear it up.
Hugs to all, I am so grateful to have all of you to talk to . It has been very helpful.
Pamela
I actually had that for a long time before being dx'd. I describe it as feeling like my brain is going to split in half. I find that I can not go shopping during Christmas, like on black Friday, because the crowds and noise levels throw me off and I get really confused. Once, before I stopped shopping during Christmas season during the heavy traffic time, I go so confused I broke down and cried. So now, I go like to Walmart and shop after hours. Much quieter.
I've had the clicking sound in my ear. I used to call it Morse code. It's due to a muscular spasm, actually. I have a lot of ear problems and have sensory nerve damage in both ears (my right ear significantly worse).
I don't think I'm sensitive to noise, but there are certain frequencies that when hit (like on the piano), it seems to vibrate in my head. I've heard of other people with extreme noise sensitivity,however.
I don't think I'm sensitive to noise, but there are certain frequencies that when hit (like on the piano), it seems to vibrate in my head. I've heard of other people with extreme noise sensitivity,however.
that question about sound/noise levels is very familiar. For a year or two before I was even thinkng about having MS I had noticed crowds and even family gatherings (that is a crowd!) left me on edge. I couldn't take it for long periods of time and was always the first one to leave.
It's a hard sensation to describe - it was almost like the noise was short circuiting my entire nervous system. Not painful, but definitely uncomfortable. The hyper- sensitivity to sounds stopped a few months after starting copaxone.
be well Lulu
It's a hard sensation to describe - it was almost like the noise was short circuiting my entire nervous system. Not painful, but definitely uncomfortable. The hyper- sensitivity to sounds stopped a few months after starting copaxone.
be well Lulu
Hi Pamela, Some of the symptoms you talk about could me MS related but as you know they could be alot of things. I would have the night sweats looked into becuase of the Lymphoma issues.
I find that I am more emotional when my pain level goes really high or if I am homebound for long periods of time. You are alot younger though, you might talk to a therapist just to have some support.
I hope you get answers soon!
hugs, Red
I find that I am more emotional when my pain level goes really high or if I am homebound for long periods of time. You are alot younger though, you might talk to a therapist just to have some support.
I hope you get answers soon!
hugs, Red
hi, YES i have the noise thing. l it is very hard to deal with and YES also on the irribality too. I'm going through the same thing, it is sometimes like a severe startle effect and i jump a mile. When we go to restaurants, sometimes it is very hard, and i have to cover up one ear because it is to much. I have also had hubby bring me home because I can't stand it.
The Dr.s have told mle it is a type of panic attack, and to increase my anti-depressant, but i don't want to. They seem to be "got a problem, take a pillD" kind of dDr;s and i want to know
before i take a pill that the problem has been found out.
good luck with your surgery.... it will abe fine, and we will be praying for you.
Yes I also get the whole body thing and the weird muscle spasms in the abdomen too. I also am not preggie, and have had 2 or mly own, and have grank kids too, and it is quite similar actually. the night sweats can be hormonal, or your med's.... but yes, we have those too.
I guess I should say "welcome to the club" but it does seem like an odd thing to say.
who wants to be a memeber of this MS club ........... i think we would all like to trade in .....
\\
take care,
Candy
The Dr.s have told mle it is a type of panic attack, and to increase my anti-depressant, but i don't want to. They seem to be "got a problem, take a pillD" kind of dDr;s and i want to know
before i take a pill that the problem has been found out.
good luck with your surgery.... it will abe fine, and we will be praying for you.
Yes I also get the whole body thing and the weird muscle spasms in the abdomen too. I also am not preggie, and have had 2 or mly own, and have grank kids too, and it is quite similar actually. the night sweats can be hormonal, or your med's.... but yes, we have those too.
I guess I should say "welcome to the club" but it does seem like an odd thing to say.
who wants to be a memeber of this MS club ........... i think we would all like to trade in .....
\\
take care,
Candy
Hi,
I not dx with anything yet ..still in limbo land but I to been having weird muscles spasms in my abdomen I told my husband it's like when I was pregnant and I could feel the baby kicking..and no I'm not pregnant I have 3 boys and that is plenty for me... Also I occasionally get night sweats....my T-shirts is completely drenched and I too have to get up and change it....As far as noise with me it could be having 3 loud boys plus a lot of steroids that makes me intolerant at the moment..ha ha
Have a good night,
Hope you get answers soon
Also I'm schedule for a quick surgery on Wed ( nothing major ) but I'm little worried it might make my symptoms worst..hopefully not I really need to get it done..
I not dx with anything yet ..still in limbo land but I to been having weird muscles spasms in my abdomen I told my husband it's like when I was pregnant and I could feel the baby kicking..and no I'm not pregnant I have 3 boys and that is plenty for me... Also I occasionally get night sweats....my T-shirts is completely drenched and I too have to get up and change it....As far as noise with me it could be having 3 loud boys plus a lot of steroids that makes me intolerant at the moment..ha ha
Have a good night,
Hope you get answers soon
Also I'm schedule for a quick surgery on Wed ( nothing major ) but I'm little worried it might make my symptoms worst..hopefully not I really need to get it done..
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If noise seems incredibly louder, that is hyperacussis, which is certainly neurological. I have heard that it can be part of MS, but if so, it's pretty rare. I've suffered from that in the past and nearly went bonkers. The popping or clicking, though, is generally an ear issue only. It's incredibly common among the population as a whole, and I don't think is associated with MS.
If noise is making you over-stimulated, that's another problem entirely. In MS, that would be a cognitive thing, trouble processing what used to be easy.
The emotional reactions you talk about are found fairly often in MS, also a brain issue. It's called lability, meaning your emotional centers are not stimulated normally, so you can move from one feeling to another very quickly, and not always appropriately. Sometimes this can get a bit extreme.
I've never had abdominal spasms and don't really know about this, but muscle spasms in general are a major feature of MS, so who knows?
As to night sweats, this is another incredibly common problem. People here have posted about this fairly often, but since it is so often hormonal I don't think neuros consider it in terms of MS.
Hope this has been some help. I'm far from an expert but I've been here 3 years now and have learned so much.
Best of luck to you,
ess