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Avatar universal

I lost it---literally. Feeling sad.

Got home last night after a wonderful get-together with Lulu, Ren and Michelle. We enjoyed ourselves thoroughly and consumed a million calories, all in a good cause!

However, one event marred an otherwise perfect day. Around 9 in the evening I was in my bedroom, not 4 feet from the bathroom. Suddenly I had to urinate, desperately. In that split second, I lost it, and not just a little. I wet my underwear and good pants badly. This has never happened before, not even slightly.

About 18 months ago I began to notice urinary hesitancy, stopping and starting, etc. Long story short, I went to a urogynecologist, who did urodynamic testing and diagnosed big time bladder problems. I started self-cathing, but really only needed it once a day. This went on for 4 or 5 months, and then gradually I didn't need it. Things got back to normal, and I figured good, that lesion has pretty much healed (wherever it was). I was delighted.

However, during the past several months I've had isolated instances of sudden extreme urgency. I've run, literally, but it has all worked out, until now. I'm feeling very blue. I don't want to be an old lady wearing a diaper. Guess I need to see the urogyn.

ess
20 Responses
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Avatar universal
I was literally sad today
i was trying to construct my home when i was joined my employment since i could not even i am earning good income now, still i could not have money to get it done cdma approval for my plot to construct my house
i have cleared my old house last month itself beliving uncle stating get it done cdma approval for low cost, since this not hapenign they are expecting rs.1 lakhs plus to get it done cdma approval, already i have spent rs 1.lakhs for my construction, now i have slowly started to borrwing money from my friends my superirors to get it done cdma approval i belive so i will be getting money i will construct my house
Helpful - 0
147426 tn?1317265632
What a noodlebrain I can be!  Caffeine and chocolate do not irritate the lining of the bladder!  What was I thinking?  They are smooth muscle stimulants!  They increase the activity of many of the smooth muscles in the body.  The detrusor muscle which is responsible for contracting and expressing the urine is a smooth muscle.  The intestines contain smooth muscle in their walls which are responsible for peristalsis and the heart has a mixture of smmoth and striated muscle.

So that is why caffeine makes you have to pee more urgently.

Q  (looking embarrassed)
Helpful - 0
867582 tn?1311627397
Dear Ess,

I'm so sorry you had to experience this bad ending to your great day!  It's a good thing it didn't happen before you got home!

The great thing is that you could rendezvous with Lulu, Ren, and Michelle!  (I'm envious!)  In the future, maybe you should arm yourself with some of those pads described by Quixotic1 just in case - that way you could still enjoy your tea without any worry!!

I have the same problem as GuitarGirl - I often get wet after I "go" - when a little surprise spills out.  Also, I end up "going" about 20,000 times a day!!!

I also have had a couple of very scary near calamities involving #2 -  once in the mall - where, if I had found the bathroom a minute later, it would have been a real disaster since it was totally out of my control and a real landslide that came on intensely with little warning!!  A pad wouldn't have saved me that day!

Are we having fun yet?

WAF


WAF
Helpful - 0
704043 tn?1298056844
im  so  sorry too!!  its  humiliating  embaressing--  but  hopefully  it will go away!!
     i never know  when its going 2 happen-- it went away-- it came  back  - knock on wood  - it left again...  hugs  tick
Helpful - 0
147426 tn?1317265632
The product is called Reassure and they have everything from underwear to pads.  I am using the smallest absorbency because the vast majority of my accidents are only a few tablespoons, but it has held one rather large accident.

The size I use is the :  Pillow-Top Extra pad

The site is  hdis (hdis.com) and the price is $15 for a case of 60 or $26 for 120.

I haven't tried their larger size.

Q
Helpful - 0
293157 tn?1285873439
sorry your having these problems... I have had this happen twice too me.  I also, have a tough time getting to the bathroom at times for BM... it will just happen..

I should mention it to my Dr again since it's still a problem... when I got a ultrasound done a few months ago, everything bladder wise was OK??

take care
wobbly
dx
Helpful - 0
147426 tn?1317265632
Bladder irritants are those things that make the bladder literally "irritable".  The lining of the bladder wall was nerve endings that can be stimulated by various substances.  Caffeine is one of the worst.  Not only is caffeine a diuretic, but its presence in the urine is irritating and makes the bladder contract more quickly and more often.  If the bladder is already unstable and spazzy it can cause severe spasms which often give no notice.

Chocolate has theobromine which is in the same class of chemicals (methylxanthines) that caffeine is.  It is this theobromine that also stimulates the heart for people who are sensitive to it and which is toxic to our pets.

Citrus adds citric acid, ascorbic acid - acids - to our urine and this also irritates the lining of the bladder and can cause pain and severe contractions.  It is possible that the acid in tea (?? tannic acid) also played a role here.  Oranges, for however sweet they are, still are acidic.

Does that make sense?

Quix

ps.  I'll get the info
Helpful - 0
739070 tn?1338603402
If it makes you feel any better, the tea I also drank at lunch finished off my bladder and resulted in a severe UTI with my urine resembling  the tea we drank. I still wouldn't trade the wonderful time I had for the resultant lousy UTI , for all the money in the world. On my next visit to the Cheesecake Factory, tea will NOT be what I order for a beverage. :-)

Hope your spirits are improving. I, too, have had the same type of embarrassing moments but was fortunate to be home in a pair of sweat pants so no damage done except to my pride.

Take care,
Ren
Helpful - 0
645390 tn?1338555377
(((((Ess))))),

I am sorry this is how your trip ended.  That sure isn't fair...none of these MS issues are.  I do hope eliminating "irritants" will help to relieve this for you.

Thinking of you,
Michelle
Helpful - 0
Avatar universal
I'll add my sympathy--what a way to end such a nice day.  :(  I hope you can find a way to deal with this comfortably.  I've been having some sort of flair that started at Thanksgiving and I'm definitely noticing bladder and bowel changes.  It's no fun.

Quix, could you explain more about bladder irritants?  I've been eating tons of clementines lately (drinking my regular one cup, sometimes two, of coffee, too).  Could this cause bladder issues (or rather, aggrevate ones that are occuring)?

Stephanie
Helpful - 0
195469 tn?1388322888
I am so sorry this happened to you.  It has happened to me several times.  I just suddenly got an urge, started towards the bathroom and it all went down my leg.  I couldn't stop it.  I use a pad that almost looks like a maternity pad, but it not a diaper.  It conforms to my body and will hold just about all of it, if I have another accident.  I always carry one in my purse.

I have also had the very embarrassing #2 happened in the middle of the night.  Had no sensation at all that I was going, until I felt the cold and wetness of the bed sheets.  It was so embarrassing to have to wake my partner, to tell him that I had soiled the bed.  Here we were in the middle of the night, washing the soiled mattress and changing the sheets.

I have bladder problems.  I also have bowel problems, if I get too constipated.  The constipation will be followed by very frequent and violent diarrhea.  It has kept me from leaving the house, more than one time.  My Neuro told me she hears this often with her MS patients, especially if they have lesions in the spinal cord, as I do.

I really think this happened to you, because of what Quix said and you admitting that you had alot of tea.  Sometimes that signal to piddle comes too late for us to get to the bathroom.  The very embarrassing side of MS.

Much love and gentle hugs,
Heather
Helpful - 0
1045086 tn?1332126422
I danced a Snoopy-type celebration dance the day blood tests confirmed I would no longer need a pad.  After ten years of freedom, I too would be interested in hearing about these pads.  sigh
Helpful - 0
Avatar universal
Thank you all for bucking me up. I did drink gallons of iced tea at lunch. Won't do that again. I really hate it that one after the other, so many innocent pleasures are being taken away.

Quix, yes, I'd like to hear about pads that aren't like diapers. Just to have some on hand would be reassuring.

ess
Helpful - 0
Avatar universal
I think that it is great that you were able to catch up with some forum members and have a lovely day.  It may well just have been a combination of "the day", like Quix said having the extra caffeine etc.

I can relate to how you feel, I have found myself in the same situation on numerous occasions and of late I was losing urine (all be it small amounts) without warning, my urologist has confirmed that this loss was neurological.

I am taking a tablet once a day at the moment called Vesicare, it has improved my bladder urgency no end and has stopped my accidents.  I think my bladder was going into spasms and this has managed to help.  I know Vesicare is prescribed for MS and I have had minimal side affects on it, just a dry mouth for a few days.  I am not saying this will work for you but it seems to be for me at the moment.

A one of doesn't mean it will occur again daily, our symptoms do come and go.  I must admit bladder issues are the worst thing because they are embarrasing,  I went to get out of bed once and got stuck we have a waterbed and well I wet the bed, my husband made light of the situation but I was humiliated about it and I have never told anyone about it until today!  

Hopefully it won't occur again, damn shame I live so far away, I love the sound of cake, chocolate and good conversation.

Cheers,
Udkas.
Helpful - 0
147426 tn?1317265632
Oh, honey, all is not lost.......maybe then, but not now.  I also suspect it was a Perfect Storm of things that led up to it, maybe some caffeine, lots of liquid, maybe some cold weather, and the fatigue of so much enjoyment.  That same thing has happened to me about a half a dozen times, thankfully always at home.

More than anything I hate mopping the floor at 3am.

My mom found some incontinency pad that I find actually quite comfortable.  She orders them by phone.  I had some Tena/Serenity and they did feel like diapers.  These are softer and sort of mold to my shape.  If anyone is interested I will give info.

Really, though, do NOT underestimate the bladder irritant power of caffeine, chocolate, citrus, etc.

Quix
Helpful - 0
572651 tn?1530999357
Ess,
What a way to ruin an otherwise great day.  A thought occurs to me - you dring mass quantities of ice tea at lunch.  Tea is a stimulant and perhaps you had just over stimulated your system?

GG - ISC (intermittent self catherization) is a very simple technique, and once you learn how to use it effectively it can make venturing out a bit more secure feeling.  Talk to your doctor - its very common for MS patients to need this aid.

be well,
Lulu
Helpful - 0
983008 tn?1329925830
This happens a lot to me and I've had a few ''awful'' situations - the worst being doing our weekly shopping - the whole lot came away and I couldn't stop it - I've never been back and I cried all night

now I'm very careful about not drinking for an hour before I go anywhere and wearing a 'pad' if I go out for a night out - not attractive I know but it's worked for me

Val x
Helpful - 0
405614 tn?1329144114
Sorry about the sad ending to a wonderful day.  

I've had the same thing happen four times; all when I  was in night clothes, headed for the bathroom.  The good news is, that those events happened over the past two years, and I've only had minor spots of leakage in between.

Maybe your portion of those million calories had worked its way through your system enough to be pushing on your bladder.  If you combine that with caffeine consumption, citrus, highly acidic foods, all those could contribute to an urgency too sudden to control.

Seeing your urogyn is a great idea, to make sure everythings as OK as it can be.  

wishing you the best,

Kathy
Helpful - 0
739070 tn?1338603402
Like GG, I'm so sorry that this has happened. I can totally relate and have been in the same situation.  It is embarrassing even when no one but you knows it has happened.

I do hope the urogyn can offer some practical solutions so that you don't have to endure this again.

Ren
Helpful - 0
738075 tn?1330575844
Ooooh, so sorry.  I've experienced similar, only at the end of the process - I'll rush to the loo, urinate, pull up my jeans, and WTF!?!  A little extra has decide to run out.  I haven't seen a urogyn, yet, I've been trying to use Quix's suggestions on the health pages.  But sometimes it doesn't always work. I really don't want to take MORE meds.

Thinking good thoughts for you!  Let me know how things go (yes, sorry, pun intended!).

Guitar_grrrl

P.S. Is self cathing difficult?  I've considered it before going to an event where I know I'll be a long way from the loo.  Maybe I should learn...
Helpful - 0
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