Aa
What a liar!! :(
Ok I got the report from this crazy MS doctor.
He put so much cr*p in his letter to my PCP!
Unfortunately this letter was in the packet that we sent to my new neuro.
He said he had me do heel to toe and that is NOT true. He did not.
Does this make sense?
Impression
Clinically the patient describes 2 episodes of neurological dysfunction characterized by optic neuritis and an episode of trigeminal neuralgia. However there is a marked disconnection between the patients history and inability to baclofen and Neurontin. as having MS. Clinically speaking she may have a demyelinating disorder such as MS. The patient also does not meet the typical criteria for clinically isolated syndrome where one expects to see at least 2-3 lesions in the cerebral of infratentorial white matter which would be compatible with a dx of MS. While she remains suspect for developing a full blown demyelinating syndrome such a MS she does not carry this dx at the present time.
Significant psychosomatic overlay in the patients symptoms and examination.
Then he recommends I discontinue Betaseron and decrease
Well I am so upset. I don't know what to say or do. When I had ON the first time I also had significant weakness in my right arm and leg. That is why they sent me for an MRI. Then I was sent to an MS specialist.
What am I supposed to do? I did not go to the doctor complaining of weird symptoms looking for an MS diagnosis.
I lost my vision and now I am being made out to look like a fool. This is so unfair.
He said in his report that I am living a normal daily life. Umm, no I am not. I have help with my children and cleaning. I do need help with walking at times. I can not walk heel to toe.
So now I have to go to the new doctor with this hanging over my head. It is so unfai.
;O/
LA
He put so much cr*p in his letter to my PCP!
Unfortunately this letter was in the packet that we sent to my new neuro.
He said he had me do heel to toe and that is NOT true. He did not.
Does this make sense?
Impression
Clinically the patient describes 2 episodes of neurological dysfunction characterized by optic neuritis and an episode of trigeminal neuralgia. However there is a marked disconnection between the patients history and inability to baclofen and Neurontin. as having MS. Clinically speaking she may have a demyelinating disorder such as MS. The patient also does not meet the typical criteria for clinically isolated syndrome where one expects to see at least 2-3 lesions in the cerebral of infratentorial white matter which would be compatible with a dx of MS. While she remains suspect for developing a full blown demyelinating syndrome such a MS she does not carry this dx at the present time.
Significant psychosomatic overlay in the patients symptoms and examination.
Then he recommends I discontinue Betaseron and decrease
Well I am so upset. I don't know what to say or do. When I had ON the first time I also had significant weakness in my right arm and leg. That is why they sent me for an MRI. Then I was sent to an MS specialist.
What am I supposed to do? I did not go to the doctor complaining of weird symptoms looking for an MS diagnosis.
I lost my vision and now I am being made out to look like a fool. This is so unfair.
He said in his report that I am living a normal daily life. Umm, no I am not. I have help with my children and cleaning. I do need help with walking at times. I can not walk heel to toe.
So now I have to go to the new doctor with this hanging over my head. It is so unfai.
;O/
LA
Oh, Deary me! Or maybe Oh, Dreary me!
The group covered this nitwit well, but it's a free world and I get to add my two cents and a couple epithets, too. LA, how did you find such a STUPID doctor! Yes, he shows evidence of being DUMB on several occasions, but he hasn't the mental capability to even be rational, therefore he really rises to the level of STUPID.
First, he didn't like you - I agree that he likely looks down on all women and routinely makes snide remarks to them. For this alone he deserves a letter of complaint. "ALL women leak." That is a sexist remark and has no place in the discussion of serious medical problems.
He worded his letter to be as negative of you as possible, and JJ nailed his inaccuracies and inconsistencies well. Bio also saw him for what he is - a coward. He tried to cover his denouncements with enough BS to be able to say later - "I always thought that she had MS, I was just trying to get a better grip on it." NOT!
He doesn't even know what a CIS is or understand the spectrum of how one presents. Of course, a CIS can present without a lesion or with many. We have seen the data that CIS (which is ONE episode) without lesions still has a 20% chance of converting to Definite MS which is typically defined as A SECOND EPISODE!!! Somehow, just before he slipped out to the TiddleeWinks Tournament, he caught a glimpse of some list of common characteristics of MS and misremembered them - then carved them in stone so he could claim status as an MS Specialist, but never have to think again.
DUMB - Doctors with Unfounded Medical Beliefs
MS is NOT defined by its repsonse to medications. DUMB
Lesions do not have to match symptoms - DUMB - Yes, that wiggly, little, slimy, gray think that you almost stumbled over in the hall of his office was, indeed, his brain masking a run for it.
He lied about tests that he performed on you - FRAUD
He misstated your current functioning level despite what you had told him, lying about the evidence to buck up his preconceptions - LACK OF INTEGRITY
All women leak - MISOGYNIST!
He's giving you 6 months to show him whether or not you "deserve" further MS treatment. - DUMB - It has been noted frequently that there can be "carry-over" of improvement after stopping a DMD. Who is he to say that 6 months will tell anything?
CIS is defined by the behavior of symptoms - the MRI is just added info - DUMB
While a firm letter to this moron is definitely in order, I don't see that you will gain anything by seeing him. Even if he backtracks on the assessment, he shows such a lack of intellectual and professional integrity that I doubt he could (or would) deliver quality care or thinking to your case.
You do not need to see anyone who strives (and he strove) to make you feel less than a worthy person. You deserve better. He deserves some well-placed kicks (and not from the back) and a few black-eyes in his record with the licensing board.
It's okay that you cried. I am coming to understand that women cry in anger, frustration, and for all sorts of reasons that men will never understand. It is not a sign of weakness nor of emotionality. It just is.
He is a pig, a coward, a numbnutz, and he is STUPID. When one is DUMB on so many counts, you just have to stop railing against it and realize that his tiny little stand-in brain doesn't function. (He has to have a stand-in brain, because the big brain made a run for the hills and something has to be there to keep his CSF from audibly sloshing around.)
Do not let him affect you or who you know who are or how you know you are affected by this MonSter!
Quix
The group covered this nitwit well, but it's a free world and I get to add my two cents and a couple epithets, too. LA, how did you find such a STUPID doctor! Yes, he shows evidence of being DUMB on several occasions, but he hasn't the mental capability to even be rational, therefore he really rises to the level of STUPID.
First, he didn't like you - I agree that he likely looks down on all women and routinely makes snide remarks to them. For this alone he deserves a letter of complaint. "ALL women leak." That is a sexist remark and has no place in the discussion of serious medical problems.
He worded his letter to be as negative of you as possible, and JJ nailed his inaccuracies and inconsistencies well. Bio also saw him for what he is - a coward. He tried to cover his denouncements with enough BS to be able to say later - "I always thought that she had MS, I was just trying to get a better grip on it." NOT!
He doesn't even know what a CIS is or understand the spectrum of how one presents. Of course, a CIS can present without a lesion or with many. We have seen the data that CIS (which is ONE episode) without lesions still has a 20% chance of converting to Definite MS which is typically defined as A SECOND EPISODE!!! Somehow, just before he slipped out to the TiddleeWinks Tournament, he caught a glimpse of some list of common characteristics of MS and misremembered them - then carved them in stone so he could claim status as an MS Specialist, but never have to think again.
DUMB - Doctors with Unfounded Medical Beliefs
MS is NOT defined by its repsonse to medications. DUMB
Lesions do not have to match symptoms - DUMB - Yes, that wiggly, little, slimy, gray think that you almost stumbled over in the hall of his office was, indeed, his brain masking a run for it.
He lied about tests that he performed on you - FRAUD
He misstated your current functioning level despite what you had told him, lying about the evidence to buck up his preconceptions - LACK OF INTEGRITY
All women leak - MISOGYNIST!
He's giving you 6 months to show him whether or not you "deserve" further MS treatment. - DUMB - It has been noted frequently that there can be "carry-over" of improvement after stopping a DMD. Who is he to say that 6 months will tell anything?
CIS is defined by the behavior of symptoms - the MRI is just added info - DUMB
While a firm letter to this moron is definitely in order, I don't see that you will gain anything by seeing him. Even if he backtracks on the assessment, he shows such a lack of intellectual and professional integrity that I doubt he could (or would) deliver quality care or thinking to your case.
You do not need to see anyone who strives (and he strove) to make you feel less than a worthy person. You deserve better. He deserves some well-placed kicks (and not from the back) and a few black-eyes in his record with the licensing board.
It's okay that you cried. I am coming to understand that women cry in anger, frustration, and for all sorts of reasons that men will never understand. It is not a sign of weakness nor of emotionality. It just is.
He is a pig, a coward, a numbnutz, and he is STUPID. When one is DUMB on so many counts, you just have to stop railing against it and realize that his tiny little stand-in brain doesn't function. (He has to have a stand-in brain, because the big brain made a run for the hills and something has to be there to keep his CSF from audibly sloshing around.)
Do not let him affect you or who you know who are or how you know you are affected by this MonSter!
Quix
Thank you so much to everyone for responding. I felt like I have been pushed over the edge with all of this.
I called my PCP and talked to his nurse since they had recieved this report.
I told her what areas of the letter were incorrect. I let her know that I felt awful about how I was treated.
She is going to talk to my PCP and see if he might write a letter to the new neuro. My PCP has known me for years. He thinks I am a nut :o} but not having psyhcological issues.
He approved my husband and myself for 7 adoptions and he knows I am not a whiner of attention seeker.
I was not emotional with the nurse but I was very firm. She knew I was not happy.
So sorry for those of you who have gone through this or are going through this right now.
LA
I called my PCP and talked to his nurse since they had recieved this report.
I told her what areas of the letter were incorrect. I let her know that I felt awful about how I was treated.
She is going to talk to my PCP and see if he might write a letter to the new neuro. My PCP has known me for years. He thinks I am a nut :o} but not having psyhcological issues.
He approved my husband and myself for 7 adoptions and he knows I am not a whiner of attention seeker.
I was not emotional with the nurse but I was very firm. She knew I was not happy.
So sorry for those of you who have gone through this or are going through this right now.
LA
I read this last night and was so irritated with your doctor that I couldn't think of anything suitable for posting to say. If he truly thought that your symptoms were in large part "psychosomatic," he should have REFERRED YOU for therapy for that. Since he didn't, he's clearly saying that to avoid being firm about your dx. Coward.
There are such good neuros out there--some folks on here have had great experiences--it's just a matter of finding one with confidence and courage who also listens to what you say. Not easy, is it?
Bio
There are such good neuros out there--some folks on here have had great experiences--it's just a matter of finding one with confidence and courage who also listens to what you say. Not easy, is it?
Bio
It is so frustrating!!
Maybe he is getting you mixed up with another patient.....or he is just crazy.
When I got my records at one point, they had wrong information too. Like one paragraph that read patient has arm weakness and tingling.....but then on his exam page.....it read muscle strength in bilateral arms is normal...I cannot even hold a gallon of milk with my right arm.
I wonder why I have had such difficulty getting SSDI......but they request all these records, and I am telling them I cannot use my arm very well, and the doctor report say normal strength!!!
I do feel for you, and I hope your new doctor can see the inconsistency with your old neuro.
Best of Luck....and let us know what happens.
Maybe he is getting you mixed up with another patient.....or he is just crazy.
When I got my records at one point, they had wrong information too. Like one paragraph that read patient has arm weakness and tingling.....but then on his exam page.....it read muscle strength in bilateral arms is normal...I cannot even hold a gallon of milk with my right arm.
I wonder why I have had such difficulty getting SSDI......but they request all these records, and I am telling them I cannot use my arm very well, and the doctor report say normal strength!!!
I do feel for you, and I hope your new doctor can see the inconsistency with your old neuro.
Best of Luck....and let us know what happens.
LA,
What an awful report. That doc is a @#$%.I am so sorry you are going through this.
Particularly when he says, she is leading a normal life. 1st of all, what exactly is the definition of normal? He is not is your shoes, and didn't really take enough time to talk with you and learn about your symptoms.
I truly am sorry. I hope your next neuro will listen to you and take time to examine you thoroughly.
You are in my thoughts,
Michelle
What an awful report. That doc is a @#$%.I am so sorry you are going through this.
Particularly when he says, she is leading a normal life. 1st of all, what exactly is the definition of normal? He is not is your shoes, and didn't really take enough time to talk with you and learn about your symptoms.
I truly am sorry. I hope your next neuro will listen to you and take time to examine you thoroughly.
You are in my thoughts,
Michelle
I'm so sorry LA, Dennis, and all of you who are suffering through bad doctors. I had a HORRIBLE one the first "round" (he was known as "Dr. Jerky" in my inner circle!) I know how horrible that is.
Keep your chin up and don't let that bad experience poison your approach with your next doctor. I think doctors do prefer people to be calm. There's a fine line to walk because if you're too calm, your description of your sx doesn't seem real. But if you're too upset, they label you as a wacko.
What a horrible report. Honestly, if it ends up swaying the next doctor, just start from scratch with a new one! You don't HAVE to bring your former doctor's notes with you. Just bring copies of the FACTS--labs, MRIs, reports, etc., and start fresh with a new neuro and give him/her your history.
Good luck.
Stephanie
Keep your chin up and don't let that bad experience poison your approach with your next doctor. I think doctors do prefer people to be calm. There's a fine line to walk because if you're too calm, your description of your sx doesn't seem real. But if you're too upset, they label you as a wacko.
What a horrible report. Honestly, if it ends up swaying the next doctor, just start from scratch with a new one! You don't HAVE to bring your former doctor's notes with you. Just bring copies of the FACTS--labs, MRIs, reports, etc., and start fresh with a new neuro and give him/her your history.
Good luck.
Stephanie
Dennis & LATW
>>They can both effect your quality of care
and quality of LIFE !
>>They can both effect your quality of care
and quality of LIFE !
COMMUNITY LEADER
Ahhhhhh, it's becoming clearer, he's not willing to put his name in writing to a dx, he's one of those, i think the technical term is D.U.M.B or is it S.T.U.P.I.D?
He's confident in spouting what ever he is thinking to the patient, regardless of the emotional impact, and i'm sure he sounds like he knows what he's talking about as your wee little neurons are trying to make sense of his words but he's mentally incapable of letting others in the medical field know that he got his medical licience out of a cereal box and what he knows about MS he read off the back!
So, in his medical opinion you (1) have MS (2) Clinical sx consistent with PPMS (3) cant be PPMS no spinal lession on MRI (?????) (4) dont have enough/correctly placed MRI lesions for C.I.S.(????) (5) You cried which indicates psychosomatic issues (?????) (6) Dont require/need medication for TN, widly known as suicide pain (????) (7) Recomends waiting for more MRI lesions (8) NOT prescribing DMD's with type of MS in question (9) no sorry its my opinion with this one, he's a total TWIT!
I'm surprised you didn't jump over the desk, grab him round his neck and throttle him, not dumb to cry when your being told scary stuff then having it all taken back, then given more scary stuff, i'd of left a puddle, dont be hard on your self, sheesh what a TWIT of a neuro!!!!
Cheers..........JJ
He's confident in spouting what ever he is thinking to the patient, regardless of the emotional impact, and i'm sure he sounds like he knows what he's talking about as your wee little neurons are trying to make sense of his words but he's mentally incapable of letting others in the medical field know that he got his medical licience out of a cereal box and what he knows about MS he read off the back!
So, in his medical opinion you (1) have MS (2) Clinical sx consistent with PPMS (3) cant be PPMS no spinal lession on MRI (?????) (4) dont have enough/correctly placed MRI lesions for C.I.S.(????) (5) You cried which indicates psychosomatic issues (?????) (6) Dont require/need medication for TN, widly known as suicide pain (????) (7) Recomends waiting for more MRI lesions (8) NOT prescribing DMD's with type of MS in question (9) no sorry its my opinion with this one, he's a total TWIT!
I'm surprised you didn't jump over the desk, grab him round his neck and throttle him, not dumb to cry when your being told scary stuff then having it all taken back, then given more scary stuff, i'd of left a puddle, dont be hard on your self, sheesh what a TWIT of a neuro!!!!
Cheers..........JJ
That report reads like some of the reports doctors have made about me. Like the one doctor I saw put down in his report that I was depressed because I didn't smile.
I'm not sure which is worse, the doctor that lies or the one that omits stuff. They can both effect your quality of care. Hopefully your new Neuro will see though this stuff that was written for what it is.
Dennis
I'm not sure which is worse, the doctor that lies or the one that omits stuff. They can both effect your quality of care. Hopefully your new Neuro will see though this stuff that was written for what it is.
Dennis
Hi Deb,
That was funny! Alzheimer's is right! I just wonder if he does not like women because he thought is was a funny joke saying "that all women leak" OH haha so funny. not.
I am looking up some more of what he said and this - progressive subjective neurologic symptomatology- appearntly meant conversion disorder. Oh well thank you very much!
What a crummy guy he is He said my previous doctor said their was marked functional overlay and I looked that up and it is psychological too.
But that doctor is the one who was trying to rule OUT psychological issues. This doctor took that and ran with it.
I'll get through this. It was just a slap in the face when I read this dumb letter.
Thank you for your support.
LA
That was funny! Alzheimer's is right! I just wonder if he does not like women because he thought is was a funny joke saying "that all women leak" OH haha so funny. not.
I am looking up some more of what he said and this - progressive subjective neurologic symptomatology- appearntly meant conversion disorder. Oh well thank you very much!
What a crummy guy he is He said my previous doctor said their was marked functional overlay and I looked that up and it is psychological too.
But that doctor is the one who was trying to rule OUT psychological issues. This doctor took that and ran with it.
I'll get through this. It was just a slap in the face when I read this dumb letter.
Thank you for your support.
LA
Something is really weird about this neuro. I honestly think that he's having some major brain farts, and has forgotten about what has happened in previous conversations with you and exams. Maybe he's not documenting/dictating in your file until the end of the day and is getting patients mixed up. He's probably either overwhelmed with the amount of patients, or suffering from severe cognitive issues. Either way, you need not to take this guy seriously, and run (if like that's possible) to a different neurologist.
He makes no sense. Please don't take what this guy said to heart. I would have probably cried, too. I was traumatized from an experience of someone telling me that my problems were psychological. But looking back on the situation, I realize what an incompetent, heartless boob that doctor was. He didn't even know me, and knew nothing of my medical history when he made this statement. The same goes for you. You will eventually look back on this, and realize that this doctor is in the early stages of Alzheimer's and will feel tons better. I doubt this guy will be practicing more than a year.
Deb
He makes no sense. Please don't take what this guy said to heart. I would have probably cried, too. I was traumatized from an experience of someone telling me that my problems were psychological. But looking back on the situation, I realize what an incompetent, heartless boob that doctor was. He didn't even know me, and knew nothing of my medical history when he made this statement. The same goes for you. You will eventually look back on this, and realize that this doctor is in the early stages of Alzheimer's and will feel tons better. I doubt this guy will be practicing more than a year.
Deb
Hi JJ,
Thanks so much! I thought he contridicted himself and it was confusing to read.
After he told me to go off of the meds I asked him if I had MS, he said YES.
I asked him why I should be taken off of the medication. He said he wanted to see what happened over the next 6 months. So this letter is really confusing.
I did have they phyc test and he has it now. I thought he had it before because all of my records were transferred from the previous MS clinic.
Oh and tell me how he went from me possibly have PPMS from my November appointment to taking me off of medication and telling me I do not have enough lesion to support my symptoms at this appointment.
At my November appointment he said I fit the PPMS profile of having progressive symptoms without many lesions.
This appointment I asked him about what he said last time and he looked at my with a puzzled face and said Oh well a person with PPMS would have lesions in the spine.
So I am wondering why the subject even came up in November because he had my MRI films right there in front of him.
I made the mistake of crying....dumb thing to do.
LA
Thanks so much! I thought he contridicted himself and it was confusing to read.
After he told me to go off of the meds I asked him if I had MS, he said YES.
I asked him why I should be taken off of the medication. He said he wanted to see what happened over the next 6 months. So this letter is really confusing.
I did have they phyc test and he has it now. I thought he had it before because all of my records were transferred from the previous MS clinic.
Oh and tell me how he went from me possibly have PPMS from my November appointment to taking me off of medication and telling me I do not have enough lesion to support my symptoms at this appointment.
At my November appointment he said I fit the PPMS profile of having progressive symptoms without many lesions.
This appointment I asked him about what he said last time and he looked at my with a puzzled face and said Oh well a person with PPMS would have lesions in the spine.
So I am wondering why the subject even came up in November because he had my MRI films right there in front of him.
I made the mistake of crying....dumb thing to do.
LA
Thank you Lulu,
Glad your tooth is ok! Tooth pain is the worst.
So with ON, TN, one lesion, and clinical symptoms I thought I would qualify for DMD's too.
That is why the original MS specialist put me on Avonex.
The phyco question came up when my clinical symptoms progressed but no new lesions were found.
However I do have an area in my periventricular area now that I did not have before.
Not a clear lesion but the radiologist said there is something there.
I have been on Avonex and then Betaseron for 2 years now and isn't the point of using these meds to keep more lesions from coming up?
I understand him being perplexed because my clinical symptoms are more than my MRI supports but to just kick me out as his patient is pretty crummy.
What is with those questioner things they want you to fill out before every appointment if they really do not want to hear your complaints?
I realize some of the things I checked could be related to other things but it is the doctors job to sort those things out.
My main issues are two things, my vision and my legs.
The medications I am on have been a life saver for me. Before the Baclofen I could not stand it. My legs would start having spasms and it was so painful.
Anyway.....Thanks so much for putting up with me!
LA
Glad your tooth is ok! Tooth pain is the worst.
So with ON, TN, one lesion, and clinical symptoms I thought I would qualify for DMD's too.
That is why the original MS specialist put me on Avonex.
The phyco question came up when my clinical symptoms progressed but no new lesions were found.
However I do have an area in my periventricular area now that I did not have before.
Not a clear lesion but the radiologist said there is something there.
I have been on Avonex and then Betaseron for 2 years now and isn't the point of using these meds to keep more lesions from coming up?
I understand him being perplexed because my clinical symptoms are more than my MRI supports but to just kick me out as his patient is pretty crummy.
What is with those questioner things they want you to fill out before every appointment if they really do not want to hear your complaints?
I realize some of the things I checked could be related to other things but it is the doctors job to sort those things out.
My main issues are two things, my vision and my legs.
The medications I am on have been a life saver for me. Before the Baclofen I could not stand it. My legs would start having spasms and it was so painful.
Anyway.....Thanks so much for putting up with me!
LA
Crisis is over for me - fortunately the tooth (what's left of it!) did not break. It was just the cap that came loose. And thankfully I did not swallow it. My dentist stayed late to wait for me to get there - -- this is the same dentist who came in on his day off to treat me for my log attack :-)
He is such a nice doctor - I keep wondering how I got so lucky with all my medical team.
now back to the question at hand when I was so interupted by my own problem ------
JJ did a good summary. I agree that this yahoo should have called this CIS - if I understand the concept, you don't have to show lesions to have CIS. Your TN and ON both qualify as the type of event that would get you the CIS tag.
Having CIS makes you eligible for use of a DMD.At least here in the US and if you have a neuro that is not a yahoo.
Here's hoping this new neuro will start fresh with all of your symptoms and do what is best for you!
my best,
Lulu
He is such a nice doctor - I keep wondering how I got so lucky with all my medical team.
now back to the question at hand when I was so interupted by my own problem ------
JJ did a good summary. I agree that this yahoo should have called this CIS - if I understand the concept, you don't have to show lesions to have CIS. Your TN and ON both qualify as the type of event that would get you the CIS tag.
Having CIS makes you eligible for use of a DMD.At least here in the US and if you have a neuro that is not a yahoo.
Here's hoping this new neuro will start fresh with all of your symptoms and do what is best for you!
my best,
Lulu
Oh ouch Lulu! I am such a nut head. I doubt that what I said did make sense!
"here--
There is a marked disconnection between the patients history and inability to function and the MRI scans of the brain and c-spine. Radiologically speaking the patient can not be characterized as having MS. Clinically speaking she may have a demyelinating disorder such as MS."
That is the messed up part in my first post.
I agree with PastorDan. I hope she will draw her own conclusion and not do what this doctor did to me.
So now SO I HAVE MS OR NOT???
LA
"here--
There is a marked disconnection between the patients history and inability to function and the MRI scans of the brain and c-spine. Radiologically speaking the patient can not be characterized as having MS. Clinically speaking she may have a demyelinating disorder such as MS."
That is the messed up part in my first post.
I agree with PastorDan. I hope she will draw her own conclusion and not do what this doctor did to me.
So now SO I HAVE MS OR NOT???
LA
COMMUNITY LEADER
Here we go again, whats with these dr's?
I cant remember if you've had a psych test done, I thought you did, anyway this guy sounds like he didn't find the right amount of lesions (in his mind) to account for your symptoms, therefore they cant be real. He another TWIT!
It also seems that he's saying with this comment "However there is a marked disconnection between the patients history and inability to baclofen and Neurontin. as having MS" bnhhhhhhhb (my cat had her say too lol) that if you had MS the baclofen and neurontin would be working, which sounds really idiotic.
He's also hedging his betts, when he says "Clinically speaking she may have a demyelinating disorder such as MS" he's acknowledging you do have 'clinical' sx consistent with MS but then throws at the end the possibility that your a nutter with his crystal ball dx of "Significant psychosomatic overlay in the patients symptoms and examination."
You need the psych tests to throw out his crystal ball dx, the rest is saying there is evidence, consistent with MS but in his opinion your lesions are not enough, YET! I'm quite confused with his understanding of C.I.S. you filled the criteria for C.I.S. with the first ON episode and other neuro sx. He seems to equate C.I.S. as needing a specific number of lesions (2-3) in a specific place (cerebral of infratentorial white matter) but seems to then confuse the point even more by stating "which would be consistent with a dx of MS."
I would expect if I can see these discrepancies, a half way decent MS neuro would too, I'm left wondering where his head was at when he composed this pearl of illogical twattle, did he really have the right person in mind at the time or was he trying to make it so converluted that it was meaningless. I do sympathise with you, he was a twit on so many levels, its hard to un-ring a bell but i think his converluted muse is going to help you because in his own hand its filled with discrepencies.
Cheers.............JJ
I cant remember if you've had a psych test done, I thought you did, anyway this guy sounds like he didn't find the right amount of lesions (in his mind) to account for your symptoms, therefore they cant be real. He another TWIT!
It also seems that he's saying with this comment "However there is a marked disconnection between the patients history and inability to baclofen and Neurontin. as having MS" bnhhhhhhhb (my cat had her say too lol) that if you had MS the baclofen and neurontin would be working, which sounds really idiotic.
He's also hedging his betts, when he says "Clinically speaking she may have a demyelinating disorder such as MS" he's acknowledging you do have 'clinical' sx consistent with MS but then throws at the end the possibility that your a nutter with his crystal ball dx of "Significant psychosomatic overlay in the patients symptoms and examination."
You need the psych tests to throw out his crystal ball dx, the rest is saying there is evidence, consistent with MS but in his opinion your lesions are not enough, YET! I'm quite confused with his understanding of C.I.S. you filled the criteria for C.I.S. with the first ON episode and other neuro sx. He seems to equate C.I.S. as needing a specific number of lesions (2-3) in a specific place (cerebral of infratentorial white matter) but seems to then confuse the point even more by stating "which would be consistent with a dx of MS."
I would expect if I can see these discrepancies, a half way decent MS neuro would too, I'm left wondering where his head was at when he composed this pearl of illogical twattle, did he really have the right person in mind at the time or was he trying to make it so converluted that it was meaningless. I do sympathise with you, he was a twit on so many levels, its hard to un-ring a bell but i think his converluted muse is going to help you because in his own hand its filled with discrepencies.
Cheers.............JJ
I totally understand!!!! Those poopy heads!!!! Sorry most of what wants to come out is just not nice!!!! Hang tight!!! Somethings gotta happen to make things right!!! Don't even know what, but it's just gotta!!! I'm hanging tight too!! So sorry LuLu about your tooth!!!
Alex is so level-headed with all these crazy neuros .Please take a deep breath, remember to exhale.
Crap - I was chewing on a caramel and just broke my tooth and pulled out the cap.
It's always something.
Lulu
Crap - I was chewing on a caramel and just broke my tooth and pulled out the cap.
It's always something.
Lulu
I know how upsetting this is. I had a Neurologist send my PCP a letter saying Patient likes having headaches and does not have MS. Like anyone would like having migraines and yes I did have MS. The witch would not even look at my MRI.
Then next Neurologist looked at that Doctor's note and mumble something about who is this doctor, idiot and unethical behavior.
Do not say anything negative about the doctor to the new doctor if the new doctor is good at his job he will draw his own conclusions like my new MS Specialist did.
It is unfair.
Alex
Then next Neurologist looked at that Doctor's note and mumble something about who is this doctor, idiot and unethical behavior.
Do not say anything negative about the doctor to the new doctor if the new doctor is good at his job he will draw his own conclusions like my new MS Specialist did.
It is unfair.
Alex
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