Ok so I realize this may not be related but im gonna throw it out there anyway. I have a lot of lumps that hurt real bad under my skin on my lower legs. By sight its looks like red splotches and when you run your fingers over them you can feel the lump. And it hurts. However everytme this happens I usually go into flare up mode after. Which *****, cuz I hope this isnt where its headed.
Hi Prettymomma--I can relate to the tender, under-the-skin lumps with red splotches on the lower legs. You describe it very well!
I've had several of these and at first thought they were old bruises, though I never remembered having bruises there, and they last forever. They just don't go away, though the tenderness fluctuates. These mostly seem to be on the calf.
This surely isn't an MS thing (and I am not diagnosed with MS, or anything else for that matter), but it's puzzling. Have you ever asked your doctor about it? I haven't, since in my case they aren't really bothersome and I don't want to appear to be a hypochondriac.
Hope you don't have a flare! Let us know if you ever get any info about those lumps.
I am having real bad lumps red itchy and sore cannot find out what they are mine are on my upper arms they are driving me crazy waking me at night.
please let me know if you find out what is causing them.
I have this, but like Tarter, I have them all over my neck, back, shoulders, upper arms, upper thighs, and even a few spots on my tummy. They are painful and at first will just appear to be little lumps under the skin, but after a couple of days will actually become a tiny, red, raised rash, on the skin, very itchy and also very painful. I saw my neurologist yesterday and he predictably said that this must have something to do with my meds because there is no such thing as an MS rash. JUST BECAUSE he said that, I'm going to change neuros as soon as I possibly can because there are too many of us that experience this rash for it not to be related to MS, and also because I have taken the same meds for three years now and have never broken out in a rash until the past three months, so P-L-E-A-S-E!!!! I think this is qualifies as a 'SOMETHING NEW' category in my own particular MS symptoms and he should not have blown it off as something dermatological or medication-provoked. There are some neuros out there who are beginning to believe that a rash is one of the MS symptoms, so it would seem that the rest of the MS neuro community should get up-to-speed. Just my two cents....
my daughter is two and she has Myosistis and she gets the rash like ur talking about and then cant walk very well for awhile and is in pain due to her age i cant give her pain meds much
the rash start out as small bumps red then get hard and lumpy under the skin ahs is evry itchy with this she gets them on her tummy feet ankles and butt lasts about 2 1/2 weeks then gose away and comes back
dont know if its the same as what u all are haveing but i do have MS and she has MD myosistis and higher functioning Autisum we are still out on the Ms thing till we go back to Bufflo NY. when she turns 2 1/2 to see the dr
. you all might ask ur DR. to look into the Myosistis think cause from what i have lurned its a autoimun dieseas . hope this shout out helps on the quest to answers .
Hey guys, I know this is old, but for anyone who may stumble across this, those lumps sound similar to the ones found in chronic Lyme disease.
I was misdiagnosed for 12 years, by the end my whole body was covered in very hard rock-like but super sore and painful lumps and nodules and people just told me I was very tense or had a lot of knots. And I believed it too, that my muscles were just bunching up into lumps because of spasms. I also had tons of neurological issues including sensory impairments and mild paranoia.
I have now been in treatment for Lyme for ~7 months, and so many of these lumps have disappeared or are shrinking. Unfortunately it seems those lumps are packed with colonies of infection -- Lyme's signature Borrellia spirochetes, plus other tickborne co-infections which form symbiotic communities with the spirochete. When they die off, they release biotoxins which cause a Herxheimer reaction -- a pretty uncomfortable achy flu-like feeling. Picture a bad case of mono. You can avoid that if you go slow or use good detox methods though.
There's lots of good info out there. In my experience, you need antimicrobials (cat's claw, banderol, cryptolepis extract, teasel root, et. al.), biofilm busters, and antioxidants. I was on antibiotics for months but I think I'm recovering faster without them -- some believe they only target the active microbes in your bloodstream, but not the dormant ones protected by biofilms in those nodes. Not saying you definitely have Lyme, but it's worth investigating!
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